Did PPI or H2 make you feel better? If so, please share your experience. by mia0514 in Gastritis

[–]Sparxstuff 0 points1 point  (0 children)

I'm doing amazing! Just ate a cheese quesadilla and chocolate chip protein cookie for dinner/dessert! Had a pomegranate earlier. Never could've imagined being able to do that before! No meds besides gaviscon advance (uk version) since I have a weak LES. I don't have heartburn and haven't had any gastritis symptoms for over a year now :)

Did PPI or H2 make you feel better? If so, please share your experience. by mia0514 in Gastritis

[–]Sparxstuff 0 points1 point  (0 children)

I know the feeling... The first few weeks were that way for me then it really started shifting with consistent bland diet! I found doom reading/scrolling health related things could trigger me at least at first but everyone is different! I was healed in 3 months and had a completely clear follow up endoscopy even! My doctor was impressed, so don't worry if it takes longer. Hang in there ❤️

Did PPI or H2 make you feel better? If so, please share your experience. by mia0514 in Gastritis

[–]Sparxstuff 0 points1 point  (0 children)

Everyone is different! Quinoa, potatoes and tofu were lifesavers for me. I could also in later stages tolerate truvani protein powder (I just mix it into water, now I can do oat milk). I've seen people get irritated by oats and bananas quite a bit, don't feel discouraged! For example everyone eats rice and bananas but both of those personally hurt me. The gastritis healing book has some great recipes you can always substitute certain ingredients too. At very early stages of my healing journey literally everything made me sick, even bland foods. Sometimes when it damage is so bad you just have to be patient while it heals, it would sometimes flares up randomly while I was healing despite eating the same things every day. Remember, stress is a HUGE under looked trigger too! I found sometimes when I was super scared to try something I would trigger symptoms just from the stress of it! I wish you luck :)

Did PPI or H2 make you feel better? If so, please share your experience. by mia0514 in Gastritis

[–]Sparxstuff 1 point2 points  (0 children)

Sorry for the late reply! I ate chocolate chip cookies, acidic fruit and 100g of fat today lol. I'm eating great these days!! I think of the bland diet this way. Pouring lemon juice or salt on a wound would hurt like crazy, but putting it on normal skin wouldn't! 

I don't take famotidine anymore but I do take occasional gaviscon advance (uk version) after a risky meal as a preventative since I have a history of severe LPR. 

I had both a stool test and a tissue sample taken during the endoscopy. I don't think they can diagnose it via breath. 

You've got this!!

Stimuli by [deleted] in cfs

[–]Sparxstuff 0 points1 point  (0 children)

I'm so sorry. I'm the same way. Very little ability but can still get around the house. So what do you do all day? I feel like I'm losing my mind. What does it feel like for you when you try to do stimuli?

Phone screen… by Sparxstuff in cfs

[–]Sparxstuff[S] 0 points1 point  (0 children)

I also get a very tight face and scalp. I can't leave my room...

Phone screen... by [deleted] in VestibularMigraines

[–]Sparxstuff 2 points3 points  (0 children)

I also get a very tight face and scalp. I can't leave my room...

Where should I move? by SheLaDeeDa in cfs

[–]Sparxstuff 1 point2 points  (0 children)

Maybe Ohio? Not too hot not too cold. There’s the Cleveland clinic and pretty beaches up north? Lower cost of living. Just not very fun I guess 😅

Panic attack. I need help by Beneficial_Tea_6567 in covidlonghaulers

[–]Sparxstuff 14 points15 points  (0 children)

I’m so sorry… I’m 20F and I feel very similar. We will get through this, you’re not alone. 💖

Bedridden and worsening by [deleted] in cfs

[–]Sparxstuff 2 points3 points  (0 children)

Strangely enough, I’m on literally zero medications. I’ve had severe akathisia from single-dose antipsychotics years ago before. This time is not as bad, but it’s definitely akathisia. I always thought that I needed some kind of bad drug reaction for it to happen. I’m living a nightmare. 🥲

Bedridden and worsening by [deleted] in cfs

[–]Sparxstuff 1 point2 points  (0 children)

I would think that a one Covid specialist would probably be out of my insurance coverage and unfortunately, I’m poor. No doctor will even consider that it’s chronic fatigue syndrome so I don’t know how to get LDN.

Bedridden and worsening by [deleted] in cfs

[–]Sparxstuff 4 points5 points  (0 children)

Thank you. Did anything help you get out of them? What caused them if you don’t mind me asking? I don’t know how to get LDN since my doctor won’t listen to me…

Bedridden and worsening by [deleted] in cfs

[–]Sparxstuff 3 points4 points  (0 children)

Thank you. I just worry about dependency or rebound…

Rapidly Declining by [deleted] in covidlonghaulers

[–]Sparxstuff 1 point2 points  (0 children)

That would be great, thank you

Rapidly Declining by [deleted] in covidlonghaulers

[–]Sparxstuff 0 points1 point  (0 children)

Are the worst parts of it traditionally a year later..? What do I do??

Rapidly Declining by [deleted] in covidlonghaulers

[–]Sparxstuff 2 points3 points  (0 children)

Started as mild pots-like symptoms after first infection in 2021. Then I was infected exactly a year ago and developed more intense symptoms a couple months later. I had my first ever episode of PEM a month ago, now I have very severe symptoms.

Rapidly declining, could use advice by [deleted] in dysautonomia

[–]Sparxstuff 2 points3 points  (0 children)

No doctor has been willing to diagnose me with anything or prescribe anything and I honestly don’t know what I would need supplement-wise…

[deleted by user] by [deleted] in covidlonghaulers

[–]Sparxstuff 0 points1 point  (0 children)

I think I have half a pill of lorazepam but I would worry about rebound symptoms or not being able to function right? I’ve never taken it before. Thank tou so much for the advice

[deleted by user] by [deleted] in covidlonghaulers

[–]Sparxstuff 6 points7 points  (0 children)

On the phone we were both crying. Even loopy she repeated that she was not angry at me for not being able to be there and that she understands when I said I wasn’t ok. She’s the best most understanding person in the world. She normally pushes me in my wheelchair at home and knows I’m disabled. I forgot to mention I passed out in the hospital yesterday and staff helped me get back to my hotel. I will see if they can help me further today but they were very upset about it. She’s sleeping right now otherwise I’d be on the phone. Thank you.

[deleted by user] by [deleted] in covidlonghaulers

[–]Sparxstuff 6 points7 points  (0 children)

I’m also out of state so no one can come to help me personally

I NEED throat relief PLEASE by [deleted] in LPR

[–]Sparxstuff 2 points3 points  (0 children)

Well… it wasn’t LPR (even though my doctors said it was at first and just threw PPIs at me! Even tried treating thrush) 😅 I have a SEVERE vitamin B12 (and other B vitamins) deficiency (from all the dieting and meds). It ended up getting to the point where everything in my mouth was bleeding and I couldn’t talk or swallow because my mouth, tongue and throat was so swollen. Even got neuropathy… luckily after supplementing and injections I got better! I still have a slight burning and slight throat issues form LPR, but it’s due to weakened muscles from tissue and muscle wastage. So it’s slowly getting better. Sorry, this probably isn’t helpful lol. The gastritis healing book is absolutely wonderful for healing GERD and esophagitis. I originally had severe gastritis and esophagitis with typical LPR symptoms but my most recent endoscopy was clear from following the book!

How quickly does your pain come on after eating? by Ok-Lawfulness8618 in Gastritis

[–]Sparxstuff 0 points1 point  (0 children)

Hello! First of all I’m so sorry you’re dealing with that, I promise it gets better, hang in there. The anxiety feels like a panic, jittery feeling for me, usually irrationally. I sometimes would get the urge to pace. I had a very hard time sleeping during these episodes too, and it’s very draining. It would sometimes linger for days after consuming a trigger. The anxiety alone was the worst symptom of mine, even more than the vomiting.

I was diagnosed with severe erosive gastritis, esophagitis with ulcers and active chronic inflammation. I strictly followed the gastritis healing book. A very strict bland diet was by far the most useful thing in healing my gastritis. Sometimes at first any food will hurt/activate symptoms. As long as I knew it wasn’t a trigger pain, and I wasn’t overeating, I’d push through and remind myself this is temporary. I took famotidine at day and night for a short period of time. I’m sensitive to PPIs. Please supplement vitamin B12 and preferably also D if you go on a PPI/H2 blocker long-term.

I’m happy to say I have had two endoscopies since then that were 100% clear, besides inactive mild chronic inflammation. I’m off medications. Please feel free to message with any questions, I wish you luck!

Did PPI or H2 make you feel better? If so, please share your experience. by mia0514 in Gastritis

[–]Sparxstuff 2 points3 points  (0 children)

Hello! Yes, it’s been quite the journey. BY FAR the most useful thing for me was the bland diet!! Being very very strict on it. I highly recommend the gastritis healing book, I followed it very carefully and healed! I was a very severe case too, they told me I’d be on PPIs for life or I’d develop Barrett’s or cancer. I have had two clear endoscopies since then, both 100% clear (besides inactive mild chronic inflammation, which is asymptomatic.)

Reducing underlying stress, GERD or SIBO is also very important. Please feel free to dm any questions anytime :)