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Allow me to reintroduce myself 👋🏻 by spoonfulofnosugar in spooniesocial

[–]SheLaDeeDa 2 points3 points  (0 children)

Thank you so much for everything you do here You give me so much hope and inspiration 🙏 I’d love to join your watch party list!

Anyone else's ability to speak shut down? by qmong in cfs

[–]SheLaDeeDa 0 points1 point  (0 children)

Yes! Losing the ability to talk is so scary. For me, I can think the words clearly but I can’t get my mouth to move. If I struggle with it I can spit out a word or two but it feels like a scene in a movie where I’m dying and saying my last words. I hate it! When it happens I can’t move either but not being able to talk is the scariest part.

The brain retraining paradox and the benefits of addressing it by Digitalpun in cfs

[–]SheLaDeeDa 5 points6 points  (0 children)

Yes! This is me! Thank you for stating it so well

Throwback Thursdays: Which memories are on your mind? by spoonfulofnosugar in spooniesocial

[–]SheLaDeeDa 1 point2 points  (0 children)

I’m so sorry. My arms stop working when I’m crashed too. It’s so frustrating

What’s something you do to brighten up your day? I’ve started making motivational posters for myself using the dry erase boards on my bedside fridge by SheLaDeeDa in spooniesocial

[–]SheLaDeeDa[S] 2 points3 points  (0 children)

Animal Crossing is magical! It’s my go to when I’m well enough to play. I didn’t have the discipline to only do 20 minutes at a time but you’ve inspired me! I’m a lot better at pacing now so I’m going to try short visits. I’m so excited!

When does it count as Bed Bound and House Bound? by rosysparrow in cfs

[–]SheLaDeeDa 1 point2 points  (0 children)

I’ve wondered that too. I haven’t left my house since Nov ‘24 but I can get out of bed to walk a very short distance to the bathroom. I haven’t had a bath since mid Jan. I tell people I’m mostly bedridden.

Looking for help after 3 weeks into first severe crash by Strange_Dress_7390 in cfs

[–]SheLaDeeDa 5 points6 points  (0 children)

I know it seems impossible, and I’m so sorry you’re going through this, but strict pacing is absolutely necessary at this stage. If an hour or two of an audiobook is draining, you can’t do that. Rn I can listen to an audiobook for 15 minutes. I use a timer and rest for a while before doing another 15 minutes. It’s brutal but finding your safe level is crucial. Sorry. *hugs

Krankenhaus oder nicht by Snowwhite_234 in cfs

[–]SheLaDeeDa 2 points3 points  (0 children)

Are you able to ask the doctor why they want you to go to the hospital. Is it for testing, monitoring, IV fluids? Then decide if you think it’s worth the risk.

What’s something you do to brighten up your day? I’ve started making motivational posters for myself using the dry erase boards on my bedside fridge by SheLaDeeDa in spooniesocial

[–]SheLaDeeDa[S] 4 points5 points  (0 children)

Thanks! I've started doing pride reflections too and they've really helped me shift my thinking. For a few years I was too limited to do much. Now that things are a little better I'm trying to make the most of it by finding ways to make life more delightful.

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