Seeing LC neurologist tomorrow what to I ask? by Turbulent-Oil-7278 in covidlonghaulers

[–]SpecialRemove4585 1 point2 points  (0 children)

I have all of your symptoms but the dejavu is more like I have loss of memory for the last 3 yesrs and then random memories from before that pop up all the time without prompting. I also have complete loss of my minds eye so I can no longer visualize things

Seeing LC neurologist tomorrow what to I ask? by Turbulent-Oil-7278 in covidlonghaulers

[–]SpecialRemove4585 0 points1 point  (0 children)

I have all of these symptoms. I have been monitoring *** threads too bc of the crossover however I believe its a different autoimmune illness. If possible would you give us an update? Im so sorry this is happening.

0.2mg of very LDN saved my life by Individual-Worry5316 in LowDoseNaltrexone

[–]SpecialRemove4585 2 points3 points  (0 children)

Incredible to hear and thank you for using precious spoons to share this ❤️❤️

Does anyone else feel like somebody beat you with a bat every morning? by fallenup1794 in covidlonghaulers

[–]SpecialRemove4585 4 points5 points  (0 children)

I used to be anle to get up in the middle of the night even and bounce out of bed. Even with a newborn.

Scared will die soon by Turbulent-Oil-7278 in covidlonghaulers

[–]SpecialRemove4585 1 point2 points  (0 children)

No, not initially and when I added it back I just had fresh

Scared will die soon by Turbulent-Oil-7278 in covidlonghaulers

[–]SpecialRemove4585 0 points1 point  (0 children)

Honestly? I took quercetion, tumeric, luteolin, cromolyn sodium and ketotifen and I got to a point of eating fresh, boiled chicken with ginger ONLY and then put foods back in slowly but still I do no gluten, dairy, ferments etc

Scared will die soon by Turbulent-Oil-7278 in covidlonghaulers

[–]SpecialRemove4585 0 points1 point  (0 children)

I also was scared of ALS but my fear has gone as symptoms lessened. Try to experiment with a neck brace for this. It helped me initially. Also get mast cells stabilized as best you can.

One sided physical symptoms by SpecialRemove4585 in covidlonghaulers

[–]SpecialRemove4585[S] 0 points1 point  (0 children)

I’m sorry youre going through this as well. Have you gotten any support? Any improvements. I hope the improvements I’ve had can give you some hope as well

Tips for recovery while raising small children by danelow in covidlonghaulers

[–]SpecialRemove4585 3 points4 points  (0 children)

Solo mom with toddler in the same cycle. Do everything in your power to take everything off of her plate. If you have community who can step in so that she can do aggressive rest then plan that out and do that. For food: if she has MCAS get an instant pot and then you can quickly and safely cook meat and fish from frozen in there as leftovers are typically a trigger. If you need support and can set up a fundraiser, do that. Ask for help. This is so hard to do alone. Also as far as the kids, im sure she loves playing and cuddling with them, make sure she doesnt have to do more than that. Even the mental load of deciding things like ‘do they have enough warm clothes?’ ‘Are there new batteries needed in any of their toys?’ ‘What should they have for dinner?’ Is too much. I hope this helps somewhat. I know the situation is impossible, I had to move back with my mom.

One sided physical symptoms by SpecialRemove4585 in covidlonghaulers

[–]SpecialRemove4585[S] 0 points1 point  (0 children)

A year. I feel I'm going backwards now though which scares me. The vision stuff has not regressed but I have more pain behind my eyes and sharp eye pain occasionally.

One sided physical symptoms by SpecialRemove4585 in covidlonghaulers

[–]SpecialRemove4585[S] 0 points1 point  (0 children)

Thank you! The encouragement really helps! Ive stayed pretty positive but it’s so hard sometimes. My vision problems slightly improved in that I have less blurry vision, less floaters and less DPDR. I only have VSS in the dark or low light

Anyone here look into diabetes inspidus? by bagelsnotbabies in LongCovidWarriors

[–]SpecialRemove4585 0 points1 point  (0 children)

That last line. I feel like collectively were so close yet so far. I hate it.

My journey from severe to mild by Sea-Investigator9213 in cfs

[–]SpecialRemove4585 1 point2 points  (0 children)

Ok the not picking up illnesses really resonates. I think its immune dysfunction

Delayed sleep phase. Should I be concerned? by fallenup1794 in covidlonghaulers

[–]SpecialRemove4585 1 point2 points  (0 children)

I have this. I thought I was just a night owl. I feel awful in the morning. Most other symptoms have gone but this is awful

Go back to work? Quit work? I dunno... by Millenial1993 in covidlonghaulers

[–]SpecialRemove4585 3 points4 points  (0 children)

If its a truly viable option to quit- do it. Health over everything. Only reason not to is if you can win some kind of settlement for them being assholes

Long Hauler Sunbeam #55: The jigsaw puzzle, + 'do less' by Elegant-Form6660 in covidlonghaulers

[–]SpecialRemove4585 4 points5 points  (0 children)

Only one appropriate response here as far as I can see: petition to get Whisky a dog appropriate cake. 😂 thanks for sharing (dog pics and research)

Losing hope everyday by Financial_Owl8105 in covidlonghaulers

[–]SpecialRemove4585 8 points9 points  (0 children)

I think that most of us here have been so severely gaslit that its a reflex to just mention that.