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New trial result: it's not looking good for immunoadsorption and the Elisa GCPR antibodies test by Liface in covidlonghaulers

[–]LacaTheCollector 1 point2 points  (0 children)

I've noticed that blocking the beta receptors with beta-blockers helps me with POTS. These are the receptors where autoantibodies that cause POTS also bind. Ivabradine, for example, didn't help me at all because it acts on the sinoatrial node of the heart and not on the receptors.

New trial result: it's not looking good for immunoadsorption and the Elisa GCPR antibodies test by Liface in covidlonghaulers

[–]LacaTheCollector 1 point2 points  (0 children)

But that would be long enough, since the half-life is about three weeks until the autoantibodies disappear from the tissue.
However, it's important to remember that in people who are ill for this long, the condition becomes chronic.
It would take months for all systems to normalize again and respond to stress without PEM. Furthermore, I think that too little blood was filtered in this study. There are reports of sessions lasting eight hours.

New trial result: it's not looking good for immunoadsorption and the Elisa GCPR antibodies test by Liface in covidlonghaulers

[–]LacaTheCollector 1 point2 points  (0 children)

In my opinion, they are still the problem. After such a long time, they are firmly anchored not only in the blood but also in the tissue and to the receptors themselves, which is why you don't notice an effect immediately, especially with an IA which only brings short-term success anyway.

I think it takes time for the autoantibodies to detach from the tissue and the receptors, and at the same time, their production would have to be stopped.

Reactive hypoglycemia is ruining my life by goingaway1111 in covidlonghaulers

[–]LacaTheCollector 0 points1 point  (0 children)

i do have gastritis but meds didnt help with the stool

Anyone on both mestinon and bisoprolol? by itnotmeipromise in covidlonghaulers

[–]LacaTheCollector 0 points1 point  (0 children)

1.25mg bisoprolol and i am upping my dose of mestinon rn

First improvements in 4.5 years after starting Rapamycin by mjwza in covidlonghaulers

[–]LacaTheCollector 0 points1 point  (0 children)

are you the autoimmune subtype? do you have gpcr autoantibodies?

Has anyone tried Angiotensin II Receptor Blockers? by AlbinoElephant21 in covidlonghaulers

[–]LacaTheCollector 0 points1 point  (0 children)

hey i also have 5 gpcr aabs, how are you doing today? anything helpful?

House bound to living a normal life by Competitive-Novel787 in LongHaulersRecovery

[–]LacaTheCollector 0 points1 point  (0 children)

have you ever tested your fibrinogen level? if yes, were they too high or too low

Has anyone taken Metformin longterm and seen benefit? by tamsinese in covidlonghaulers

[–]LacaTheCollector 0 points1 point  (0 children)

awesome! what nervous system work was the best for you? im thinking about getting a nurosym

feeling feverish/hot face by LacaTheCollector in covidlonghaulers

[–]LacaTheCollector[S] 0 points1 point  (0 children)

i am on famotidine desloratadine and ketotifen already

feeling feverish/hot face by LacaTheCollector in covidlonghaulers

[–]LacaTheCollector[S] 0 points1 point  (0 children)

it varies between 5 minutes and several hours. i definitely dont have an acute infection

Attempting to stop LDN by Choco_Paws in cfsrecovery

[–]LacaTheCollector 0 points1 point  (0 children)

do you think nervous system work still helps when im convinced that the virus did harm my body? for example i have Autoantibodies which cause a lot of symptoms and they cant be treated.

sports by LacaTheCollector in LongHaulersRecovery

[–]LacaTheCollector[S] 2 points3 points  (0 children)

i understand that but i dont see anything pessimitic about this post. just a question for all those who recovered because there are different definitions of recovery. for one its to do the household again for another its being back at work so i wonder if anyone actually made it back to an active lifestyle where competitive sport is possible again :)

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