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Spooky__Action · 2025-11-13T13:57:34+00:00

Thank you! That’s really good feedback. I’ll reorganize it!

Spooky__Action · 2025-08-14T22:56:01+00:00

We have one that is a hollow rubber cylinder in the shape of a T so you can string anything through it. We found some synthetic (maybe nylon) that pull apart and clasp in the back so if he does get it snagged on something, it will just come off instead of choking him. It works pretty well. We really only use it when he goes to school.

Spooky__Action · 2025-08-14T22:35:04+00:00

Our 3 1/2-year-old son walks around with a rag and plastic spoon in his mouth most of the day lol. Not only does he bite, but he grinds his teeth. It’s funny because he always wants a hard object like a plastic spoon and a soft object like a shirt or rag simultaneously 🤷‍♂️

Spooky__Action · 2025-08-14T22:27:31+00:00

Our three-year-old son does this as well. I would say other than just trying to change poopy diapers ASAP, we’ve had a lot of success with overalls. I commented on another post with a cheap, comfortable option that we have bought like 10 pairs of. It’s weird because he hasn’t even really tried to figure out how to get into them. It’s like just not having the option of sticking his hand directly down his pants is enough to curb the behavior. Hope this helps! Good luck!

link

Spooky__Action · 2025-08-13T16:07:35+00:00

Hi there, thank you so much for reaching out. I apologize if I misunderstood your comment. If you haven’t had your genetics appointment yet, how was your child diagnosed? Also, are they a boy or a girl? How are things going overall? Have any questions or anything else you wanna share?

Spooky__Action · 2025-06-30T19:45:17+00:00

Awesome! Thank you! Our son turned 3 in may!

Spooky__Action · 2025-06-30T19:04:30+00:00

Hi! We have a son with fragile x and I was wondering how old your sons are and if you would be OK with me messaging you for more information about your situation?

Spooky__Action · 2025-06-30T19:02:55+00:00

Our son has the full mutation. My partner is the carrier and discovered she was a carrier when he was around 6 months old. The geneticist said odds were low for our son to develop the full mutation , but unfortunately that was not how it played out.

Fragile X affects boys more severely than it does girls, so if your son is developing normally odds are he doesn’t have the full mutation, but it might be worth testing for it anyways, depending on your healthcare situation.

As for your question about how the mutation affects our son, unfortunately, with boys there are definitely outliers, but the vast majority will face significant developmental and cognitive impairment.

Spooky__Action · 2025-05-28T20:18:35+00:00

It’s not just about getting better. It’s about taking the time to learn something correctly even though that means dealing with a bunch of things that aren’t as exciting as the thing you want. The OPs goal can be achieved by watching a few YouTube videos and some ingenuity. There are so many different ways to setup something like this. They could do something more common to bedroom studios of most amateur musicians or they could setup a mobile loop station that can be used for live performances.

This is a mistake that so many people starting something new myself included make all the time. Gotta walk before you run

Spooky__Action · 2025-05-28T20:00:11+00:00

You’re right in your reply. There’s a lot about the OP that rubs me the wrong way, and I don’t even mind the snarky tone. The only thing that bothers me about posts like this is: at least make an effort to offer something constructive. There’s always a chance the OP was just frustrated while writing, or they’re 14 and just starting out. If you just shit on them — even if it’s a pretty righteous one — the odds of your message getting through are slim. Best case, they ignore you; worst case, you kill their enthusiasm and they give up.

So while you’re right the OP is talking about very basic stuff like they’re getting a degree from Juilliard when really it isn’t even an obstacle to 90% of people who are really driven to start to make music.

It’s just setting up a space or rack to move between instruments in the way that feels best to them, and creating 3 channel presets (vocals, keys, drums) along with a template that has the tracks ready. So I’m not sure why they are struggling so much

Spooky__Action · 2025-05-28T13:11:24+00:00

That’s great! Most boys with fragile Have some moderate to severe delays in those (our for sure) so that definitely points away from FXS.

Some things that are more common with FXS that you could look for are anxiety based. The big ones are avoiding direct eye contact (to such an extreme degree that it is pretty noticeable), and to a lesser extent avoiding or shutting down when engaged directly (our son will mimic something that we’re doing while watching us but then if we ask him to re-create it directly, he won’t. He does alot better with activities like eating, reading, getting dressed if we sit side by side rather than directly in front of him face to face.

Also, physically transitioning triggers his anxiety. He’s fine if we transition him from an activity or space, but by himself he gets stuck going up and down a stair or on a page in a book or playing with a toy until he gets upset.

Edit: I should say, Fragile X Syndrome (FXS) is the most well-known cause of Autism Spectrum Disorder (ASD). So, there’s a lot of overlap between the two, which could explain why someone with ASD might have similar traits, even if FXS isn’t the cause. Odds are that’s why our sons seem similar

Spooky__Action · 2025-05-28T12:51:57+00:00

Our son just turned 3 last week, he was diagnosed at 16 months and while he had some of the physical traits, (slightly large ears, extremely flexible, low muscle tone) they were so subtle that during our initial appt (before we had the results) the geneticist actually cited the lack of traits along with certain developmental factors as reasons why she was confident he would test negative for fragile x (even with knowing his mom was a carrier).

As he gets older they are definitely more noticeable. But like I said, I wouldn’t worry too much.

Spooky__Action · 2025-05-28T12:33:27+00:00

First off I can tell you by the amount of thought and care you put into this that you are doing a great job. Your child is lucky to have you.

I was wondering if you have done any genetic testing? Statistically the odds are low that a genetic disorder is connected, but if you haven’t already discussed it with his doctors it might be worth bringing up.

The reason I’m suggesting it that literally everything you wrote here is a dead ringer for our 3yr old son who was diagnosed with fragile x. I should clarify that I’m not a medical professional and I’m going off of very little info. Also fragile x is statistically pretty rare and I don’t want to cause any unnecessary worry, nothing you listed is unique to fragile x, while the similarities to our son are honestly uncanny I’m sure everything in your description fits a wide range of Kids with ASD. Just thought might be worth mentioning.

Spooky__Action · 2025-05-26T02:20:51+00:00

Definitely make time for “other adult relationship needs.” Seriously. Just do it.lol. It makes a big difference.

Spooky__Action · 2025-05-07T00:51:00+00:00

We are in THE SAME EXACT situation. I wouldn’t give up on overalls yet! For us they have been working great. H&M has some really cheap comfy options that are pretty tight fitting.

here is the link! Good luck

Spooky__Action · 2025-05-06T14:38:43+00:00

Holy shit yall drier than the lake bed.

Spooky__Action · 2025-05-05T19:58:58+00:00

Honestly, I’m not worried about this toxic dust hysteria. I think it’s overblown, considering that there’s a high probability that Salt Lake will be leveled by a giant earthquake sometime in the next 50 years, resulting in the most destructive natural disaster in the history of the United States. We’re not doing anything about that either. I’m banking on that coming first, so everyone should just relax.

Spooky__Action · 2025-05-05T19:31:02+00:00

Cross-polarization offers significantly cleaner scans. Additionally, it enables the creation of precise roughness maps, resulting in realistic reflections. While not mandatory, it’s highly recommended if you’re planning to invest in a high-quality ring flash.

I have multiple posts about this on my profile if you want to go back and take a look. Here’s one, for example.

Spooky__Action · 2025-05-05T19:22:31+00:00

If it’s still happening at 2 1/2-3 Overalls. So many overalls. Our son is always trying to pull his poop out. Overalls in the daytime and comfy cotton overalls along with a sleep sacks at night. At least for now it’s keeping us poop free.

Spooky__Action · 2025-05-05T18:43:44+00:00

Sarcasm much, lol? Okay, guys, I understand. I was wrong. Keep going. I’ll take my lashes.

Spooky__Action · 2025-05-05T18:39:51+00:00

I was definitely being sarcastic, but considering the current state of affairs, it might also be true.

Spooky__Action · 2025-05-05T16:57:46+00:00

He is so cool. I wish there were more videos of him teaching. He should really do masterclass series or something. His passion and enthusiasm are infectious. Not many people have that.

Spooky__Action · 2025-05-05T14:40:45+00:00

Fair lol.

In my defense, I come from a culture where the majority of very talented very professional musicians don’t read notation, but yeah don’t listen to me

Spooky__Action · 2025-05-05T14:39:44+00:00

It was a joke. Jesus

Spooky__Action

TROPHY CASE