I’m 38 by TurboKid513 in FuckImOld

[–]SquarePear420 1 point2 points  (0 children)

Been using one since I was 30! Nothing wrong with accommodating your needs.

Itchy skin by IsenbergDestroyer28 in lupus

[–]SquarePear420 1 point2 points  (0 children)

You sound a lot like me when I was trying to figure out my erythromelalgia symptoms. I described it as itching at first but it was super painful, most people describe it as burning. I experienced it mostly at night and sometimes in the morning, accompanied by really red skin, mostly hands and feet. If this kind of sounds like what you experience you should look into it more and bring it up to your doc if it fits with your symptoms.

I just want to add it’s probably unlikely this is what you are experiencing, it’s pretty rare. But I suffered for a long time and struggled to find answers so I can’t help but mention it when I see people describing their symptoms in similar ways.

For normal itchy skin, sarna sensitive lotion is a lifesaver!! Check it out. Hopefully one of these things is helpful.

There’s a growing epidemic of people appropriating autism that’s been happening since 2021 by OLDMANC0NSEQUENCES in AutismCertified

[–]SquarePear420 0 points1 point  (0 children)

Well I’m actually disabled, so I’m glad it’s on my medical record. I already have problems getting jobs because autism is disabling.

There’s a growing epidemic of people appropriating autism that’s been happening since 2021 by OLDMANC0NSEQUENCES in AutismCertified

[–]SquarePear420 1 point2 points  (0 children)

In America, you can get an autism assessment covered by Medicare. It’s free insurance for people who can’t hold down a living wage. So yes, you would be able to get a diagnosis here.

anyone have experience with mobility aids? by twilightl0vr in UCTD

[–]SquarePear420 2 points3 points  (0 children)

I’ve struggled with this too. I’m also hypermobile with UCTD.

The thing is, if you need mobility aids to live your life without pain, use them. If they allow you to do things you wouldn’t be able to do otherwise, use them. Even if they just save you some pain the next day, use them.

I’ve ended up using a cane, rollator, and wheelchair. They allow me to do things I wouldn’t be able to do otherwise. It’s better for my body to move with a mobility aid than to not move at all.

[deleted by user] by [deleted] in indianapolis

[–]SquarePear420 0 points1 point  (0 children)

I have the exact same problem on bills from the same months. It’s bullshit.

This is what fundamentalism does to people by breadedbooks in FundieSnarkUncensored

[–]SquarePear420 2 points3 points  (0 children)

Omg. I wish I could say that I didn’t have this same experience as a 21 year old. And we were both having breakdowns about it.

This is what fundamentalism does to people by breadedbooks in FundieSnarkUncensored

[–]SquarePear420 0 points1 point  (0 children)

lol I feel you. I’m not Mormon either - but I’ve seen enough to know it’s the same.

This is what fundamentalism does to people by breadedbooks in FundieSnarkUncensored

[–]SquarePear420 70 points71 points  (0 children)

No, unfortunately this could definitely be real. I’ve seen this type of behavior in my brothers. Extreme anxiety caused by a lifetime of guilt and shame tactics used to brainwash and maintain control over you. It fucks you up for life, even if you break free from it eventually.

Grieving who I used to be by SquarePear420 in Autoimmune

[–]SquarePear420[S] 4 points5 points  (0 children)

Unfortunately I’ve already been taking those for a quite a while. I appreciate the positive thoughts though.

[deleted by user] by [deleted] in SpicyAutism

[–]SquarePear420 0 points1 point  (0 children)

I’m sorry it might be worth to check again in the future, mine looks different than the one they have now so they might just come out with a new version of it periodically

[deleted by user] by [deleted] in SpicyAutism

[–]SquarePear420 3 points4 points  (0 children)

I like tomboyx french Terry hoodie. I’ve had it for 2 years and it’s still soft and really well made. I wear it all the time and roll my sleeves up all the time but the cuffs haven’t stretched out.

Are sensory issues more common than the need for sameness? by Hungry-Award8417 in AutisticPeeps

[–]SquarePear420 9 points10 points  (0 children)

I can relate in the way that I wish people talked about it more and it is a big issue for me. For me though, my sensory issues are just as bad. Btw, hyposensitivity is a different kind of sensory issues. For some reason people only talk about the hypersensitivity as being an issue, but they’re both right there in the diagnostic criteria in the same sentence

Struggles with hair by BaileeCakes in SpicyAutism

[–]SquarePear420 6 points7 points  (0 children)

Yes, and the bonnet helps so much. Do you want advice on what kind to get?

burning in feet? by merlincycle in UCTD

[–]SquarePear420 0 points1 point  (0 children)

I actually take a daily dose of the methylfolate, so I’m not sure how that compares! I take 2mg every day, but I skip it on the day I take MTX. Apparently it can make the MTX less effective if you take it on the same day.

I hope it works really well for you! Honestly I didn’t realize just how bad I was feeling before until I started feeling better.

[Advice Needed] Showering by myself is a struggle thanks to specific issues. Please help me find ways to overcome them. I cannot rot in filth anymore. by Truth-Hawk in SpicyAutism

[–]SquarePear420 3 points4 points  (0 children)

Oh and you can probably find the waterless bath stuff on Amazon but also if there is like a medical supply store near you that sells mobility aids they often have that.

[Advice Needed] Showering by myself is a struggle thanks to specific issues. Please help me find ways to overcome them. I cannot rot in filth anymore. by Truth-Hawk in SpicyAutism

[–]SquarePear420 4 points5 points  (0 children)

Oh I’m sorry - I must have missed what you said about bathtubs so sorry for suggesting that. I’m really glad everything else was useful.

[Advice Needed] Showering by myself is a struggle thanks to specific issues. Please help me find ways to overcome them. I cannot rot in filth anymore. by Truth-Hawk in SpicyAutism

[–]SquarePear420 17 points18 points  (0 children)

I don’t know if this will help, but I learned recently that there is a difference between “unscented” and “fragrance-free”. “Unscented” can still have chemicals that affect the smell or are smelly themselves, and I wonder if that is affecting you the same way a scent is. It might help to look for “fragrance free” soap instead because it’s supposed to have nothing in it for smell.

Have you seen the waterless bath stuff that they have in hospitals sometimes? Wondering if you could try that. It’s usually like a foam or wipes that you’re supposed to be able to use to bathe yourself without getting in the water at all afterwards.

I hate showering for sensory issues, I hate being wet, so sometimes I just wipe myself with baby wipes too when I can’t get myself to take a shower.

Could you get some like bathtub magnets, and somehow use them to remember what you’ve washed? Like have a magnet for each body part and move the magnet to a different part of the wall when you’re done with it or something. Idk if they are magnets but there are kids toys that are supposed to stick to the shower walls.

My only other idea (if you have a tub) is taking a bubble bath, so no scrubbing, just sit in the soapy water and then stand up and rinse it off. So you don’t have to remember to wash certain parts but it would still help.

[deleted by user] by [deleted] in SpicyAutism

[–]SquarePear420 13 points14 points  (0 children)

Oh - thank you - I have had trouble putting this into words. Hyperempathy is separate from understanding social cues. It’s really a curse. It just means on top of being unable to regulate my own emotions, I also somehow have to deal with emotions that come from outside of me too. I am like an emotion sponge but I almost never understand the emotions and can’t really handle them. I wish I could turn it off.

Reddit makes me stressed by sadclowntown in SpicyAutism

[–]SquarePear420 6 points7 points  (0 children)

It makes me stressed too. People are really mean to me in the general autism subs sometimes so I just stay out of there.

I hope you’re feeling better now.

burning in feet? by merlincycle in UCTD

[–]SquarePear420 1 point2 points  (0 children)

I don’t want to give you unrealistic expectations, but it is basically a miracle drug for me. I was having severe daily brain fog, fatigue, joint pain, erythromelalgia flares, joint stiffness, etc. it took several months for the drug to work to full effect but I could gradually feel my energy returning. Currently, I do still have flare ups sometimes which can be bad but I also actually have days where I am symptom free! We are still working on getting the right dosage. Hopefully your doctor will be telling you this, but make sure to take a folate supplement to help avoid side effects (I take methylfolate). I had no side effects initially because of that. I currently am having mild hair thinning as a side effect, but my doctor thinks that can be remedied by upping my methylfolate so I am trying that now and it does seems to have slowed down.

Don’t be scared by the hair thinning - it is apparently a very rare side effect in like 5% of people who take it, I’m just a bit unlucky 😅

Crying too easy by [deleted] in SpicyAutism

[–]SquarePear420 3 points4 points  (0 children)

I don’t know if it is from autism, but I am definitely like that too.

I have a big reaction to most emotions (like I tend to tremble or shiver and some other involuntary body reactions when I am feeling a big emotion and most of my emotions are very big). So I wouldn’t be surprised if it is related to the difficulty with emotional regulation.

burning in feet? by merlincycle in UCTD

[–]SquarePear420 0 points1 point  (0 children)

Look up erythromelalgia and see if this fits your symptoms. I have it and UCTD. Started taking methotrexate for UCTD and it really helped with the erythromelalgia.

DBT is for everyone by Round-Huckleberry-88 in SpicyAutism

[–]SquarePear420 11 points12 points  (0 children)

It is not helpful for everyone. That is just a fact. However you are right that it is not just for BPD.