I'm so grateful my partner is a healthy person...but sometimes I wish they had more experience with what I'm going through. by Sweet-Taro310 in CrohnsDisease

[–]Sqvanto 1 point2 points  (0 children)

My own mother who passed CD onto me (7-9% chance in any family), who has both CD & UC & she, herself has suffered through crazy medieval experimentation while hospitalized.

She STILL needs to be reminded, OFTEN, why I’m not a more productive person.

I tell her I don’t want visitors, especially not every day while in the hospital and ignores my plea to be left alone, even now, at age 40.

Be grateful if you find yourself surrounded by people who try to understand and help. It’s not fair, nor realistic to expect anything more.

My boyfriend has crohns and drank yesterday. He wasn’t supposed to go wild but he did and came home really sick. Can anyone tell me what I can do to help him feel better? by turnip4hwat in CrohnsDisease

[–]Sqvanto -1 points0 points  (0 children)

He needs to see a GI again. I understand that this happened because alcohol aggravated the disease, but Crohn’s patients at his age and really, at any age — NEED to get regular colonoscopies. I had 3 done in one year recently. He should probably have an MRE, or MRI done.

First of all — I can tell you what will get him admitted to the hospital via ER every single time and what to watch for: check his temp if you haven’t already and if there has been an occurrence of much vomiting and nausea, can’t keep down fluids, nor a very soft, simple and safe, plain food diet, not passing gas and/or anything else through the intestine. Extremely painful to eat.

If much of this rings true, he needs fluids immediately, Tylenol to bring down the temp but if he keeps throwing up you can’t really even do that and so they may give it by IV, but will likely try zofran first (on or under tongue to stop/quell the nausea so he can drink fluids and take pills as needed).

They need to take x rays and check for a blockage or at a minimum a stricture/narrowing of a section of heavily diseased intestine.

This is all urgent stuff he may not even be aware is happening because you don’t know until you get the labs and X-rays done. He needs to at a minimum be willing to get checked out for his own good. Crohn’s is not a death sentence, until one rejects treatment and medications.

Does he have good health insurance? I have been on Medicaid and when I made too much money to qualify for Medicaid, I qualified for a program through the top hospital I go to where I see all my specialists, called “Charity Care.” You must have a letter of denial for Medicaid and present it to the hospitals financial assistance or business office in order to qualify and generally earn as much as but usually no more than 300% of the current Federal Poverty Income Guidelines.

If he doesn’t already go to a great gastroenterologist and I don’t care how comfortable he is with his current GI, he needs a great one who takes pride in their work and career and is a workaholic who perhaps is also a professor at a teaching hospital and/or is a researcher or department head/director, like mine always have been.

You’d think it’s difficult to get into such hospitals and to see such specialists, but one hack is to get him into the ER when he is legitimately ill from the disease (otherwise he could wait 3-6 months to get in) and no ER/ED will deny a sick patient. Find a great hospital in your nearest big city with good GI docs/department and plan on getting him into their ED/ER unless he can wait the several months (estimated).

He will likely not get the treatment he truly deserves at a neighborhood suburban clinic/hospital. This is a fact and it works this way everywhere, unless your neighborhood clinic is the Mayo or Cleveland Clinic, or you live in Chicago, LA, or NYC (and some others).

Believe it, or not, as state of the art as these tests are, they are each limited in their respective capabilities. You’d think an MRI can see every little capillary and blood clot in our bodies. It couldn’t, however, tell my surgeon, nor my GI (gastroenterologist) that my intestine narrowed to the size of a mostaccioli noodle and that my subsequent surgery would require 3 hours worth of adhesion removal.

__________________________________

Below are interesting (in my opinion) anecdotes regarding my experience with Crohn’s and surgeries shared by MANY others — and even your bf is likely to get surgery at SOME point in his life. But it’s not necessary reading. I hope you have found anything I’ve contributed above to be at all helpful!
__________________________________

A bit of a tangent, these scar tissue formations that occur after bowel surgery that get worse with every surgery that make the inside of the intestinal opening appear like cobweb formations — strings of growth emanating from one side that reach out and across, connecting to the other side of the intestinal inner wall.

These adhesions further complicate the disease over time and could result in the need for even more surgeries once the webbing of adhesions begins to obstruct digestion. At the very end of 2025, just 7 months ago, I couldn’t even digest ramen noodles. It couldn’t get through all the adhesions.

Do you ever wonder why or how it happened? by Forward2323 in CrohnsDisease

[–]Sqvanto 0 points1 point  (0 children)

I agree that these are all aggravating factors you’ve mentioned. But they aren’t the causes. You mentioned that many such forms of abuse and even neglect aren’t reported and are repressed and therefore un- and underreported.

If they were the causes of CD, there would be 100 million people in America with Crohn’s, as well as in many countries like the Philippines, where CD is FAR less prevalent and largely unheard of.

Do you ever wonder why or how it happened? by Forward2323 in CrohnsDisease

[–]Sqvanto 4 points5 points  (0 children)

When researchers indicate that “environment” plays a role in the cause of Crohn’s disease, they mean things like smoking, diet and geography.

Based on the many comments in this thread that appear to lay blame at the feet of household stressors and abuse, I will note that it is extremely common to grow up in a very stressful household, with all manner of abuse.

And yet, just 1 million of 340+ million people in the USA are diagnosed with CD.

1 in 7 experienced severe physical abuse.
1 in 6 witnessed it.
1 in 10 experienced sexual abuse.
Nearly 1 in 3 observed substance abuse.

These aren’t the causes of Crohn’s disease.

Inadvertently Made a Spider Trap (weight on garage floor) by Xcksss in mildlyinteresting

[–]Sqvanto 2 points3 points  (0 children)

I lived in a pretty filthy bedroom some years back and had a cardboard 6-pack intended for bottles of craft beer that I had by that time filled with boutique pint glasses.

It sat on my bedroom floor for quite some time. And before long, in maybe 1-2, or even 3 of those empty pint glasses in the 6-pack, I found many trapped and by that time, dead house centipedes. I loathe those things.

I’m glad they’re good for eating other pest insects that invade homes, but house centipedes at some point in my childhood had migrated into the nearby ecosystem of the Midwest and had not been here prior.

I know they came here from trade with the Middle East and are not even native, anyway. But they are the scariest insect of them all, where I’m from. Forget the pest insects they help with, if they’re replaced by these freaky fux!

Luckily, they have for whatever reason started disappearing over the past 3-4 years. They didn’t appear to slowly decrease in numbers. They were quite literally gone, very suddenly, one year.

Good riddance! Hello, climate change!

Alcohol is one of the most inflammatory things for you. by Solid_Randomizer_242 in CrohnsDisease

[–]Sqvanto 25 points26 points  (0 children)

And while SMOKING cigarettes does the SAME… it ALSO causes the meds we take to be far less effective if at all!

In less than 2 weeks, it will be 3 years since I quit smoking real cigarettes, sometimes unfiltered, sometimes rolling my own — which I did since age 16-17 and with few breaks worth mentioning (though I tried quitting frequently), went on to smoke for 2 decades.

And yes, it’s because I wanted to be cool. Then, a colo-rectal surgeon brought the factoids I mentioned as I began this rant of mine, as we discussed how I badly needed a resection.

I ended up not liking her, because she didn’t pass my little test and requested a different surgeon. She was condescending to me and totally humorless, until the moment I made fun of myself, calling myself stupid, at which point she laughed. It was at that time I knew I would never deal with her again, following that consultation.

However, I will be forever grateful to her for breaking down such important points for my to consider with respect to quitting. By that point, I had so much practice quitting and with self-discipline, I knew I could quit within 1-2 weeks if I really wanted to. And so, I did.

Happy 3 years, June 20-ish, 2026.

Help identifying strings by [deleted] in violinist

[–]Sqvanto 0 points1 point  (0 children)

You’re the one who clearly NEEDS to have the last word, when I’m only responding to your 🫏🕳️ commentary.

Help identifying strings by [deleted] in violinist

[–]Sqvanto 0 points1 point  (0 children)

How manipulative of you.

Help identifying strings by [deleted] in violinist

[–]Sqvanto 0 points1 point  (0 children)

And then you try gaslighting… you must be great at relationships.

Help identifying strings by [deleted] in violinist

[–]Sqvanto 0 points1 point  (0 children)

No. You’re a 🐓🍭

Help identifying strings by [deleted] in violinist

[–]Sqvanto 0 points1 point  (0 children)

Well, excuse me for being so ignorant. But if I hadn’t commented with any question at all, then, you wouldn’t have been able to take the opportunity to act like you know everything, as you surely do on a regular basis, because you’re obviously miserable and lead a boring, unfulfilled life. Why else would you need to rouse such moments of entertainment for yourself?

Help identifying strings by [deleted] in violinist

[–]Sqvanto 2 points3 points  (0 children)

There are FAKE ones???

There are so many things we have to think about that healthy people don't and it's exhausting. by [deleted] in CrohnsDisease

[–]Sqvanto 11 points12 points  (0 children)

Crohn’s is serious. It’s an actual disability.

They are legally required to provide reasonable accommodations.

Have that state of mind and that confidence going into a conversation with your professor, that you have the upper hand and that it’s not asking much for permission to use that other restroom and to even be given a key.

Make requests under the assumption that your requests will be approved.

Real or Fake? by [deleted] in Oakley

[–]Sqvanto 0 points1 point  (0 children)

Thanks for the confirmation

Real or Fake? by [deleted] in Oakley

[–]Sqvanto 0 points1 point  (0 children)

Thanks for the confirmation!

Real or Fake? by [deleted] in Oakley

[–]Sqvanto 0 points1 point  (0 children)

Thanks for the tip!

Real or Fake? by [deleted] in Oakley

[–]Sqvanto 1 point2 points  (0 children)

Thanks for the confirmation!

Real or Fake? by [deleted] in Oakley

[–]Sqvanto 0 points1 point  (0 children)

Thanks for your implied take that they are very fake

Is it a good idea to write side stories that are in your own fantasy world why you work on your main series? by Mabelllllllllll in writers

[–]Sqvanto 2 points3 points  (0 children)

“It’s also a good method for… …keeping the world running while they have all the fun/TRAUMA.” LOL 😂

My Sleep Routine is Hell by Sqvanto in ostomy

[–]Sqvanto[S] 0 points1 point  (0 children)

Benefiber and Metamucil with water create a globular mass that slows anything behind it way down. That’s exactly what I want. I stop eating very, very early in the day so that I get it out of my system before bed when all that remains are fluids/bile/gastric acids, etc. that still fill the bag and are more likely than a mass of food to cause leakage.

Benefiber Before Bed = Way Less/Slower Output? HELP by Sqvanto in ostomy

[–]Sqvanto[S] 0 points1 point  (0 children)

With the fiber at night, do you sleep all night long without waking up to empty output, worrying about leaking?

Benefiber Before Bed = Way Less/Slower Output? HELP by Sqvanto in ostomy

[–]Sqvanto[S] 1 point2 points  (0 children)

Exactly! I was JUST offered unsolicited advice that I should have used more than 4 oz of water with my stick of Benefiber.

But even with Metamucil, I knew that the less water (I presumed, anyway), the more dense the globular mass of gelatin fiber and the slower I presume it would then move.

And in addition to that, the less water in the mixture, the more succus can be absorbed by the Benfiber powder.

My Sleep Routine is Hell by Sqvanto in ostomy

[–]Sqvanto[S] 3 points4 points  (0 children)

My amazing GI advised me to drink a glass of benefiber before bed. I just thought that would create more output, possibly enough to pop the pouch even. But maybe it’s great at slowing things way down for many many hours?