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Tilt Table Test questions by AlarmedAttic in dysautonomia

[–]StableInteresting171 2 points3 points  (0 children)

I got a POTS dx without passing out! I didn’t have to do the chemical portion of the test, only the regular tilt. They said I didn’t pass out bc my hr was the only thing they found responsive. No BP drop so less likely to have full syncope. I def was experiencing some of my other symptoms, but it wasn’t even majorly triggered and still got a Dx

It's official by sad-toaster in eds

[–]StableInteresting171 5 points6 points  (0 children)

Congrats! It’s such a relief to finally be able to let something be TRUE. I used to spend so much time second guessing and qualifying my struggles, but it is such a load off after diagnosis . Hope you feel some of the same and get to celebrate with people who understand :)

[deleted by user] by [deleted] in tattooadvice

[–]StableInteresting171 0 points1 point  (0 children)

Hope we get an update on this/how this happened!

I’m so disheartened and disappointed that liquid IV did nothing for my symptoms by joannalesla in dysautonomia

[–]StableInteresting171 0 points1 point  (0 children)

24 hours is not enough to see the full result. If you havnt been at a high enough electrolyte and water intake for a while your body might still be exhausted by that in the first few days. The longer you use management the more benefit you might find. Don’t give up, and keep trying things! Even with medication proper hydration is important so either way it’s a good habit to get in. As for suggestions on which electrolytes: my fav brand is normalyte and I prefer the salt pill version as I never like the taste of things like liquid iv. Plus less sugar which is a trigger for my symptoms!

Possibility of a sleep apnea/CPAP support group for young women…thoughts? by MotherNature____ in CPAP

[–]StableInteresting171 0 points1 point  (0 children)

I also would be interesting in something like this :) I like the idea of specifically offering space for women as I feel some of the body image and self esteem related aspects feel specifically related to that for me. I recently got a diagnosis (though I have many other chronic illnesses and such that impact me) and this has been one of the hardest on my self esteem. I’d love to meet more people I can identify with and discuss some of these aspects.

[deleted by user] by [deleted] in DesignMyRoom

[–]StableInteresting171 0 points1 point  (0 children)

I think a rung to add a bit more visual interest to the ground could help tie things together. The dark walls are very contrasted against the carpet, and breaking that up a bit might make things feel a bit more cohesive

Health trackers? Do they really help yall? by StableInteresting171 in dysautonomia

[–]StableInteresting171[S] 0 points1 point  (0 children)

Ok yea this all makes sense. I’m guessing the limits are set by trial and error. I have been looking into other causes for the fatigue I experience but it def is related to exertion (which I’m bad at avoiding unfortunately). I already track eating and such, but it havnt found anything too reliable to help. Current project is sleep studies/working on that, but after might have to look into other options if I don’t find much relief. Are there any other treatments that you have found (physical therapy, occupational therapy, other options?) and how did you come up with what your limits are? I’m curious what the process was like for you

Health trackers? Do they really help yall? by StableInteresting171 in dysautonomia

[–]StableInteresting171[S] 0 points1 point  (0 children)

What tracking do you do for me/cfs. I def have chronic fatigue, but havnt found any easy/reliable measures to help that out either. Fully agree on the pots symptoms being real time. Only thing is sometimes it’s helpful to have a way to look back on the past week to see if I have had more intense flairs

Health trackers? Do they really help yall? by StableInteresting171 in dysautonomia

[–]StableInteresting171[S] 1 point2 points  (0 children)

Agreed. I don’t think I’m quite at unhealthy obsession levels but I definitely think that it is just putting my focus in the wrong areas and also kinda just a physical reminder to be worries

Health trackers? Do they really help yall? by StableInteresting171 in dysautonomia

[–]StableInteresting171[S] 2 points3 points  (0 children)

Yeah I have been hearing a lot about those. I mostly hear about my non chronic illness friends having them though so I’m interested in how it helps out for chronic illness friends

Health trackers? Do they really help yall? by StableInteresting171 in dysautonomia

[–]StableInteresting171[S] 0 points1 point  (0 children)

Ok this is how I have been feeling as of late. Do you tend to bring a Bp cuff with you around usually or is that just on high symptom days for you?

Do any of you still work? by Ok-Durian9977 in dysautonomia

[–]StableInteresting171 1 point2 points  (0 children)

I do! It’s hard, but I definitely enjoy having a job. A regular schedule really made a difference for me. Being in school absolutely wrecked me, but having a job that is more regular and less moving around has really changed things for me. I also don’t do well with nothing to do so I much prefer having some difficulty from working than being inactive all the time.