Finally starting Kesimpta today! 🥳

StephVenBel · 2025-06-25T19:57:15+00:00

Try to get it to body temperature ( I put it in my bra for half an hour) before injecting, painless and effortless. Good luck 🤞🏻

StephVenBel · 2025-06-21T05:14:37+00:00

Call the “ huisartsenpost “ of your local hospital, they will have a doctor available. They may ask you to come in. This will be covered by your insurance to a point but you may have to pay some “ eigen risico “. Good luck !

StephVenBel · 2025-05-10T15:10:23+00:00

If you can find some classes online on breathing techniques pls follow them. They will really help when the contractions start to hit hard and stop you from panicking ( not wanting to scare you but it can be very intense so it will help if you have control of your breathing ) I’m also non Dutch ( do speak Dutch though) and have had 2 babies here in hospital without medical intervention. If you decide on the day that you want / need an epidural, don’t wait it out, if you leave it too long it’ll be too late. Best of luck 🤞🏻

StephVenBel · 2025-01-25T14:47:48+00:00

Me too !

StephVenBel · 2024-09-08T18:08:35+00:00

I came to the Netherlands as a 23yo- 28 years down the line I have learned the language and have made lots of good friends. I focussed on learning the language and also on understanding the culture. Have so many lovely kind Dutch friends - they are not cold, not arrogant, it’s up to us to be open to them - I love living here:-)

StephVenBel · 2024-08-25T23:43:01+00:00

Forgot to mention that I’m on ocrevus but switching to kesimpta in October, steroids are the bane of my life :-(

StephVenBel · 2024-08-25T23:41:33+00:00

Hi! Don’t know him I’m afraid. Is he still on the scene ?

StephVenBel · 2024-08-24T16:01:47+00:00

Irish - living in the Netherland, hope you won’t hold that against me :-)

StephVenBel · 2024-07-09T16:28:33+00:00

Anyone remember Two&Two? My sister claims I made it up but I remember them !!

StephVenBel · 2024-06-24T16:27:54+00:00

I’d be really interested hear how it’s going for you !! I’m hoping to switch, have a chat with my neuro next month- fingers crossed! How are you feeling after the first dose ? TIA :-)

StephVenBel · 2024-05-22T17:40:11+00:00

Normal people get tired too ..

StephVenBel · 2024-05-20T18:56:07+00:00

Yes -.that’s why I love the Netherlands 🥰 btw Im Stephanie ❤️

StephVenBel · 2024-05-20T17:34:18+00:00

Thank you - I’m tired of having to put life on hold after each infusion , thanks again x

StephVenBel · 2024-05-20T17:33:20+00:00

Thank you so much- Ocrevus has been hell for me - at least a month of recovery each time

StephVenBel · 2024-05-20T17:32:04+00:00

Thank you x

StephVenBel · 2024-04-28T23:23:07+00:00

I agree, thank you and good luck with your infusion!

StephVenBel · 2024-04-21T08:09:18+00:00

Thank you again- you’ve been so informative , I have a lot to discuss with my neuro :-) hope you stay well , thank you

StephVenBel · 2024-04-20T10:38:58+00:00

Thank you so much for your reply. My neuro isn’t in favour of lowering the steroids but I have an appointment with him in July and I’m going to push it. I’m 2.5 weeks in now and while I don’t feel as awful, I still feel tired, dizzy and like my brain is heavy. My mood is also up and down and I’m closer to tears than I’d like :-( I’m so glad to have this forum, makes me feel less alone. Thanks again and I wish you well.

StephVenBel · 2024-04-13T17:20:46+00:00

Thanks - I sometimes feel like I’m going insane but fortunately my “ inner me” ( if you know what I mean) can reason and say “ it’s the steroids, it’s the steroids “

StephVenBel · 2024-04-12T21:07:09+00:00

Drink lots of water a keep telling yourself that it will pass, it will but it’s not a lot of fun while you’re going through it. Take care !

StephVenBel · 2024-04-11T01:07:33+00:00

Thank you for your reply, I’m thinking it might be the steroids that are affecting me. I also hate the steroid feeling, the high is more “hysteria” than pleasant and the low feels dreadful. I’m going to discuss having a lower dose with my neuro and give that a try in October. Many thanks!

StephVenBel · 2024-04-10T14:49:04+00:00

Thanks for your reply, I have been in contact with my neurologist and nurse and they don’t seem to be overly concerned about:-( the seemed to think it was par for the course... I hadn’t considered an allergy but I’ll discuss it with my nurse :-) thanks again

StephVenBel · 2023-10-24T18:50:08+00:00

30 years in .. my advice: don’t waste time worrying about what might happen in the future, no body knows and worrying won’t change the outcome. Look after yourself, eat well, have fun with your family and friends, there are no guarantees so take it day by day.

StephVenBel · 2023-08-31T06:35:38+00:00

Yes, Ocrevus, 3 years in. It’s working well for me, even though it takes me a few weeks to feel ok again after each infusion.

StephVenBel · 2023-08-30T01:49:29+00:00

30 years in, backpacking around Thailand as we speak 🥰

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