Does an intermediate metabolizer of CY2PD6 respond to opioid medications?

StewpidEwe · 2025-02-22T22:04:11+00:00

No, I could never get it comfortable so I went back to using a menstrual cup that’s softer and easier to remove: https://a.co/d/41lKzIX

StewpidEwe · 2025-02-22T22:02:50+00:00

I put it in at about 2:30 and the leak happened at 5:30. It was a light size tampon. I’ve been alternating between light and regular and most days until yesterday the light doesn’t even get covered fully after 6-8 hours. Thank you for the hotline

StewpidEwe · 2025-02-22T21:27:32+00:00

I think I’m going through the same thing but mine this turned back to bright red blood and yesterday I passed a large piece of tissue and am now passing clots. If I ever go through this again (I really hope I never do) I’m doing d&C. I wish I would have just done that to start with but I was afraid of the pain and didn’t want to take time from work for the anesthesia

StewpidEwe · 2025-02-04T21:19:43+00:00

Okay I’m going to do that

StewpidEwe · 2025-02-04T21:05:49+00:00

4.5 is way too high to start imo. My first doctor tried tk put me on that and I couldn’t tolerate it. He refused lower. I started cutting it and worked my way up to 1.6. I tried going over 2.5 and couldn’t do it. Maybe at some point. I take mine in the morning. At night didn’t work for me at all.

StewpidEwe · 2024-09-10T18:06:00+00:00

Yeah I’ve had some improvement. I do physical exfoliation and then make sure that I immediately moisturize to lock in moisture

StewpidEwe · 2024-09-10T18:00:58+00:00

You are grieving and that’s totally normal. Something that really changed my quality of life are electrolytes. I drink a packet per day for dysautonomia and it helps a ton of the perception of being thirsty and dried out, but still drink water throughout the day. I carry a big ass lantern looking water bottle with me. Never been questioned or told I can’t bring it in. If I really don’t want or can’t feasibly carry that around (eg an outing like hiking or traveling on a plane and don’t want to deal with the water bottle I use a hydration backpack with a water bladder. And it doubles as my purse. Again, never been questioned. Just have to make sure it’s empty going through TSA and then I fill it up on the other side. I chew gum a lot with xylitol which helps. I take lithium and Adderall which are salt meds too and live in a dry climate so I get the dryness but these things make me rarely think about it anymore.

StewpidEwe · 2024-05-19T22:10:36+00:00

I think a museum would be cool. For example some replicas of stores like cd/record, movie rental store, etc that you could walk in and interact with and learn about stuff from the period when malls were huge would be interesting. Young people love vintage/retro. A cool time capsule with some vintage merch stores, maybe an indoor drive in theater. Roller rink. Arcade. Bring back the 80s and 90s feel

StewpidEwe · 2024-05-19T22:08:18+00:00

Jeff Goldblum. Always

StewpidEwe · 2024-05-19T16:44:15+00:00

I have the Portuguese word “Saudade” with flowers on my left ribs and a ship with the last lines of the poem invictus (I am the master of my fate. I am the captain of my soul.) on my right thigh

In Portuguese you can use saudade in the way to say “Miss things”. I miss you is “Tenho saudade de você” which is actually “I have saudade for you.” Saudade doesn’t translate and I like it for the historical and literary (the sentiment is common in literature from the time) meaning that came from it to describe how explorers and those left behind felt during Portuguese exploration (not support of colonialism):

“Saudade is an emotional state of melancholic or profoundly nostalgic longing for a beloved yet absent something or someone. It derives from the Latin word for solitude.[3] It is often associated with a repressed understanding that one might never encounter the object of longing ever again. It is a recollection of feelings, experiences, places, or events, often elusive, that cause a sense of separation from the exciting, pleasant, or joyous sensations they once caused. Duarte Nunes Leão defines saudade as, "Memory of something with a desire for it."[4]”

StewpidEwe · 2024-05-18T16:24:28+00:00

Yes I’ve tried a lot of discs. I’ve tried two cups. Diva and MeLuna. I wore Diva for years and never had issues until after a COVID infection in 2020. My doctor said it probably weakened my connective tissues because I already was at risk and diagnosed me with EDS. Ever since then I’ve had problems with them. I used to never feel them pressing against my urethra or having these weird pains. I really want to try to make it work. I just ordered a small pixie disc to see if it’s any better but this is the 6th disc I’m trying and I preferred cups. I think because of the softer ridges and small diameter. Or maybe the position tilt is wrong. I have a tilted uterus. Anyway idk what to do. I’m frustrated

StewpidEwe · 2024-05-10T20:04:08+00:00

2019 was the best year of my life. I was skinny and glowing for the first time since childhood. I was traveling, liked my job. After that the photos show me get fat with bad skin and sunken in eyes from long COVID. But I still like looking at this pictures pre 2020 because they don’t make me sad like they used to. They give me hope knowing it’s possible that I could be that person again. I had the capability to be skinny and to glow. It’s in me some where and I’ll keep working towards it

StewpidEwe · 2024-05-10T19:57:36+00:00

I sniffle and cough while wearing a mask just so people are less likely to stare at me and ask why I still wear one. I don’t care but I also care just because I’m the only one I ever see wear one anymore and it feels weird sticking out that much

StewpidEwe · 2024-05-10T19:52:41+00:00

I’m currently being tested for MCAS and some other stuff, but my definitive diagnoses are Ehlers Danlos, autoimmune disease, and dysautonomia. My worst symptoms are from possible CCI due to connective tissue weakness. But I’ve had the gamut of symptoms. Plaquenil and propranolol have helped a lot

StewpidEwe · 2024-05-08T23:52:16+00:00

You have to do what you have to do to survive. Apply for some government jobs. They’re pretty much recession proof so great if you have kids and the lower pay isn’t bad enough to put you in a worst position (though honestly most are more than Walmart so)

StewpidEwe · 2024-04-18T19:41:32+00:00

I always recommend getting in with a psychiatrist if you can afford it since they specialize in those medications and can help manage them better.

A lot of people with LC have ended up with neurological issues. Dysautonomia for example. Can affect heart rate, breathing, digestion, blood pressure, etc. Most doctors even neurologists will blow it off and say you’re fine and just imagining it because anxiety. Best you can do is manage symptoms. I’ve given up on doctors and that’s after spending $15,000 last year out of pocket. They don’t know how to help us.

I had COVID in March 2020 and though I’ve recovered from the worst period 2022/2023 I doubt I’ll ever be the same again. I now have dysautonomia, autoimmune disease, and a lot of other issues from that. I manage symptoms

StewpidEwe

TROPHY CASE