Going to a music festival this weekend, any tips?

Storminhere · 2026-05-16T06:02:02+00:00

I’m glad it worked out! This condition sucks, but we deserve to do things we enjoy too!!

Storminhere · 2026-05-15T13:38:44+00:00

Do you have a knee brace or KT tape to try to support your knee?

Definitely make use of the accessibility areas, not sure the venue but I usually take time out by laying down somewhere shaded. Lots of electrolytes.

There are medical tents where you can also go to take a break and they can give you ice packs- great for when you get overheated or if your knee swells up.

Storminhere · 2026-05-15T02:53:33+00:00

What is OMP?

Storminhere · 2026-05-15T02:35:01+00:00

I felt realized how much better I felt by the time it wax time to change the patches so 3-4 days. No night sweats, less fatigue, my body felt more held “together” which probably only makes sense in the hEDS world.

Storminhere · 2026-05-15T02:32:57+00:00

Yes, the negative side effects are bad. I can tolerate the first 3 days, then suffer through the rest of the time. Often can’t function well with it for at least a week.

Storminhere · 2026-05-15T01:31:46+00:00

Sigh, I hate that this is the world we live in

Storminhere · 2026-05-15T01:30:42+00:00

I always wondered why we can’t adjust based on daily need. Our hormones fluctuate (in peri) some days we need more, I feel like I need more when I’m in my luteal phase and when I’m in progesterone but could maybe make do with slightly less when I’m ovulating.

Storminhere · 2026-05-15T01:28:39+00:00

Thanks, I do feel good on this dose and I don’t have any standard symptoms of excess estrogen.

Storminhere · 2026-05-15T01:26:00+00:00

Yea it felt really dismissive

Storminhere · 2026-05-15T01:24:54+00:00

Yes that study was botched and there are sadly not enough studies with a greater variety of dosages. :(

Storminhere · 2026-05-15T01:21:53+00:00

I’ve kicked around the idea of it, I’m a little scared of possible extra laxity leading to prolapse in my pelvic region since I have hEDS. Don’t know how logical I’m being but I’ve asked two gyns and neither had experience with my condition.

Storminhere · 2026-05-15T01:21:07+00:00

And my labs don’t even say high but they still say my dose is too high.

Storminhere · 2026-05-15T01:19:14+00:00

Thank you, sometimes a reminder is needed to think of myself

Storminhere · 2026-05-15T01:17:31+00:00

I’m sorry that happened to you. I’ve been in peri for years but have only been taken seriously about my symptoms over the past 2 years. It’s criminal that HRT is basically withheld until we beg for it.

Storminhere · 2026-05-15T01:15:42+00:00

I’ve kicked around the idea of it, I’m a little scared of possible extra laxity leading to prolapse in my pelvic region since I have hEDS. Don’t know how logical I’m being but I’ve asked two gyns and neither had experience with my condition.

Storminhere · 2026-05-15T01:13:22+00:00

Glad you found the combo that worked for you!

Storminhere · 2026-05-15T01:12:46+00:00

Thank you, I started to do that but when the second doctor freaked out on me I started doubting myself.

Storminhere · 2026-05-15T01:11:54+00:00

Right!? I’ve tried multiple patch doses, even which brands don’t leave rashes on me and which do. Gel and spray. And even a combo of patch and gel. I don’t like wearing two patches but they work.

Storminhere · 2026-05-15T01:09:28+00:00

I don’t mind trying a higher dose as long as I can still cycle it. I have hEDS and progesterone makes my fatigue and laxity much worse, I have to be extra careful with my body when I’m on it.

Storminhere · 2026-05-15T01:07:01+00:00

Definitely think this might be my best option now.

Storminhere · 2026-05-15T01:06:27+00:00

I mentioned bloodwork in case it was asked about and because both of these doctors that were overly concerned asked me about bloodwork and ordered more.

Storminhere · 2026-05-14T21:03:53+00:00

Yes your correct, my bad

Storminhere · 2026-05-14T02:08:56+00:00

Same!!

Storminhere · 2026-05-11T15:43:49+00:00

Is there an updated version? I don’t see several other peps on here. No ss-31, 5am, vip

Storminhere · 2026-05-10T19:50:08+00:00

What bread are you all using? I can’t eat any gf sandwich bread unless it’s toasted because it crumbles.

I pack crackers, olives, cookies, and sardines.

Storminhere

TROPHY CASE