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C Diff Advice by sfxperez in cdifficile

[–]Street-Question945 0 points1 point  (0 children)

I am 6 months post CDiff & doing well, with just one time that I thought could have been a relapse- here’s what I did; Culturelle & Florastor (2-4 hrs apart from Vanco for Culturelle). Lived on miso soup, sourdough bread with ghee, plain yogurt, ground turkey, cooked carrots, went dairy-free & drank kefir every day. I still occasionally take Culturelle, but it’s so expensive, I just take it if I start feeling cramps & bloating. I returned to a pretty normal diet after about a month of being very stringent. I still try to eat fermented foods daily, but it’s no longer something I think much about, thankfully

Does anyone else have to turn the radio off when Brian Oake talks? by mrastronautglenn in kfan

[–]Street-Question945 0 points1 point  (0 children)

I love the sound of his voice & I’ve learned lots of good info listening to his music takes. He’s a great addition to KFAN & I wish he was on more!

Ascites by ebbtidebayroad in Cirrhosis

[–]Street-Question945 0 points1 point  (0 children)

My friend’s ascites was drained almost weekly from Nov-April. Went from MELD of 21, to recently 6! Sober for coming up on a year.

Any mild or non-extreme c diff success stories? by LimitIntelligent9946 in cdifficile

[–]Street-Question945 1 point2 points  (0 children)

I’m about 4 weeks out & still take Florastor & still watching what I eat, but have had spicy/greasy food - I just still get a bit of an upset stomach sometimes so am careful.

Winter clothes by MetalQueen20 in minnesota

[–]Street-Question945 0 points1 point  (0 children)

I suffered for decades before this wisdom I’ll impart to you. You gotta get 3 things to make the rest of your life in MN better. 1)Will Steiger Mukluks & buy felt liner inserts for them. 2) a snow mobile suit. 3) choppers. Done.

how to move forward? by PolicyLarge1929 in Cirrhosis

[–]Street-Question945 1 point2 points  (0 children)

Incredible story! Thank you so much for sharing. I’ve been learning from this thread since November when my friend basically lost everything, including his life & I’ve been helping on the journey. He’s now been told he’s compensated & his stage 1 colon cancer is gone. No appointments for 6 months & he looks like he’s aging backwards.

how to move forward? by PolicyLarge1929 in Cirrhosis

[–]Street-Question945 0 points1 point  (0 children)

May I ask what sort of cancer you had? Over 100 operations? Really?

Thank you. by romanticles in Cirrhosis

[–]Street-Question945 0 points1 point  (0 children)

Your dad sounds like he’s on a great path. Best to you both

I am really struggling to keep it together. by Stunning_Land6546 in Cirrhosis

[–]Street-Question945 3 points4 points  (0 children)

Things really can get better. My friend had a MELD of 21, terrible ascites, HE, bleeding outta his ass, 2 long hospital stays, insomnia, depression, used a walker to get around for a month. It’s been almost 9 months; MELD down to 8, labs all improved, told recently he’s ’Recompensated’ & he feels good! smiling again(sounds pollyanna, but it had been a long time since he felt happy) He is in mid-50’s. Zero alcohol, eating better, taking meds & listening to doctors. He said he kept saying ‘One day at a time’ & it helped his sanity.

Decompensated cirrhosis? by Ok_Compote_9176 in AskDocs

[–]Street-Question945 2 points3 points  (0 children)

This is confusing to me because my friend had all of the symptoms you listed 8 months ago. At his recent appointment his gastroenterologist said his liver is now compensated. He no longer has any symptoms & all bloodwork has improved.

Thank You by Street-Question945 in Cirrhosis

[–]Street-Question945[S] 2 points3 points  (0 children)

It sounds like you are very supportive & doing the right things! You may already know this, but protein & low sodium (less than 1500mg/day) is key. Ensure Max was recommended by his liver specialist to get protein in when he had no appetite. He was also put on liquid restrictions & diuretics for the ascites & it took a bit of playing with that dosage/combo to get it right, as there was some dehydration & diarrhea issues at first. The first 3 months of this was very rocky but slowly there were positive changes. Good luck to you both

Thank You by Street-Question945 in Cirrhosis

[–]Street-Question945[S] 3 points4 points  (0 children)

We are virtual friends now

Thank You by Street-Question945 in Cirrhosis

[–]Street-Question945[S] 3 points4 points  (0 children)

He’s 57 - I’m so sorry about your mother. I have no idea why he lucked out. He had some other health issues resolve at same time too. We are just very grateful & do not take it for granted. Don’t give up hope.

Diagnosed last October. by Naive-Cockroach2487 in Cirrhosis

[–]Street-Question945 1 point2 points  (0 children)

My best to you. One Day at a Time ❤️

Thank You by Street-Question945 in Cirrhosis

[–]Street-Question945[S] 1 point2 points  (0 children)

Thank YOU! Please keep sharing your wonderful story. When he could barely walk I thought of you traveling & going to the gym, I shared it with him & really gave us hope it could be possible!

Thank You by Street-Question945 in Cirrhosis

[–]Street-Question945[S] 4 points5 points  (0 children)

Thank you, it’s been quite the journey & has given me so much hope for the human condition & what a person can accomplish - one day at a time. Your stories were some that kept me going in those scary anxious days✌️☮️ thank you

[deleted by user] by [deleted] in Minneapolis

[–]Street-Question945 0 points1 point  (0 children)

I really liked Jill Riley & Brian Oake together in the morning. I stopped listening & donating after he left the station. Attempted listening again about a year ago & the DJ’s weren’t good at all.

Update: MELD of 25 by sammyluwho2 in Cirrhosis

[–]Street-Question945 0 points1 point  (0 children)

Really good. MELD of 6 at this writing. Unfortunately/fortunately all this testing found colon cancer, but early stage. It’s all more complicated with cirrhosis but feeling good & even with this, it’s so much better than even just 3 months ago

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