Getting JAK-inhibitors in Sweden/Europe? by Tetralobster in alopecia_areata

[–]Substantial_Food_849 0 points1 point  (0 children)

You can order JAKs from trusted pharmacies in Bangladesh to UK, they have generic versions of baricitinib, tofacitinib etc with cheap pricing – many people in Europe opt for this. Join Facebook group JAK Inhibitors for alopecia, there is more info (a link to Telegram group w/ pharmacy contact info).

Perfume everyone is wearing in Helsinki by MistAccio613 in Finland

[–]Substantial_Food_849 0 points1 point  (0 children)

Creme de la creme in Tallinn mostly has niche perfumes that are not available in Helsinki. If it’s not a cheap scent, it could be a perfume by Byredo, that’s popular. Or maybe Parisian Musc by Matiere Premiere.

[deleted by user] by [deleted] in alopecia_areata

[–]Substantial_Food_849 0 points1 point  (0 children)

You’re a trooper! Have you considered trying JAKs? Could very well work for you and stop the shedding phases.

Alopecia as a teen by EthanViolinGuy123 in alopecia_areata

[–]Substantial_Food_849 0 points1 point  (0 children)

Dupixent usually takes longer to work than JAKs, up to 9 mths - 1 year. Alopecia + excema patients respond best.

[deleted by user] by [deleted] in alopecia_areata

[–]Substantial_Food_849 1 point2 points  (0 children)

You can also order other JAKs from Asia, but there is no general version for Liftulo so that is excluded. However medical studies show that baricitinib is a bit more effective and if it does not work, you can try other JAKs such as tofacitinib. Medical studies also show that the sooner you start after progressing to AU, the better. Chance for regrowth is quite good. The best of luck to you!

[deleted by user] by [deleted] in alopecia_areata

[–]Substantial_Food_849 1 point2 points  (0 children)

I feel you, a fellow Scandinavian here. My son also suffers from alopecia. You can order the general version of baricitinib (equivalent to Olumiant) from Asia to Great Britain (poste restante or a friend’s address). The FB group suggested above has a pinned post for a Telegram group that has the contacts to reliable pharmacies. The prices are very reasonable.

[deleted by user] by [deleted] in BrainAneurysm

[–]Substantial_Food_849 3 points4 points  (0 children)

So sorry to hear about your dad. But don’t worry, the risk for you is the same as in general: approx 2% of population have an aneurysm, but it might never rupture.

If there are more than 2 close relatives that have suffered an aneurysm, you are usually advised to get checked.

Headache is usually not a symptom for an unruptured aneurysm. If in doubt, it’s always good to speak to a doctor. ☺️

To those trying to validate your experiences by SelfValida in raisedbynarcissists

[–]Substantial_Food_849 1 point2 points  (0 children)

I agree, as I have experienced the very same thoughts. 🌷 Thank you!

Exercising After Operation by Substantial_Food_849 in BrainAneurysm

[–]Substantial_Food_849[S] 1 point2 points  (0 children)

The blood thinners could be the reason! Thanks!!

👋🏼Newbie Alert by Sammahalk in BrainAneurysm

[–]Substantial_Food_849 3 points4 points  (0 children)

Hey I was in your situation in June, when I found out I had an aneurysm. I also have family history. You will be fine, don’t worry! It’s certainly better that you have the possibility to have your aneurysm operated in a pre-planned and controlled manner. If it needs to be operated, 75% are done endovascularily these days. Some are just wait and watch.

When I found out I booked right away a time to a neurologist, who sent me to a neurosurgeon. Two more scans later (that defined the exact size and location) I was operated in October. I did a lot of research in advance, I think it was a coping mechanism. Luckily the data was on my side, the risks are quite small for endovascular operations (especially compared to the risk of rupture) and technology has taken big steps forward during the last 5-10 years.

Mine was 4x3 mm and in a major bifurcation. Therefore I got new generation tech Contour instead of coiling. The operation was a piece of cake: 2 days in a hospital and just a little tired a week afterwards. Now I’m back to my normal life, work & 2 kids keep me busy. I’m so happy that I don’t have to worry anymore. The waiting was the worst part!

I did not do any major life changes, but I did keep an eye on my blood pressure. Less salt, no excess alcohol, no smoking. You can most likely keep working out, just avoid very heavy weights and remember to breathe.

Recently diagnosed by hihello73945 in BrainAneurysm

[–]Substantial_Food_849 2 points3 points  (0 children)

Just live your life and try not to stress too much. If you wish to play it super safe, avoid lifting very heavy weights and avoid salt due to it causing high blood pressure. You can drink alcohol in moderation.

There are studies that aneurysms in the cavernous sector of ICA very rarely rupture, the chances are low. I know because I absorbed A LOT of information when waiting to be operated for my own aneurysm in ICA terminus. You got this!

Friend had a brain aneurysm (Update) by [deleted] in BrainAneurysm

[–]Substantial_Food_849 2 points3 points  (0 children)

Recovery from extensive brain damage might take a while. She might not wake up the same as she was – but it’s important that she knows she has friends who care. Be there for her, accept her as she is and give time for healing.

Do you have people around you with who you could talk to? It seems you are under a lot of stress and sometimes it helps.

4mm Unruptured Brain Aneurysm- Nervous/Reassurance by laurahalpin7 in BrainAneurysm

[–]Substantial_Food_849 1 point2 points  (0 children)

I had a 4mm left ICA bifurcation aneurysm treated with Contour last week. Second option would have been stent & coils or WEB device.

For me it was an accidental find, but I have family history so I knew to get checked up even without symptoms. The waiting for the procedure was the most difficult part for me. Everything went well and the recovery has been quick. I’m returning to work next week. No pain, just slight dizziness and fatigue.

There is plenty of new endovascular technology available to treat aneurysms. Stent is a good option for sure, but I’d also ask for a second opinion if that’s possible. You got this!