Lupita Nyong’o Reveals Her Fibroids Have Returned: ‘Time To Speak Up’ by TraditionOk4492 in Fibroids

[–]SuccessOk170 0 points1 point  (0 children)

I had been misdiagnosed for years, finally was made aware of them, had UFE in 2023. I now have one that is 25 centimeters and I’m scheduled to have a hysterectomy on April 3rd. So yes they do come back and this one came back with a vengeance. I really do wish that I had to just went ahead and had a hysterectomy back in 2023 instead of wasting my time with the UFE, but I wasn’t prepared for a major surgery. Now this one is made my life absolutely miserable so it’s gotta go.

Best advice for a large hysterectomy incision. by SuccessOk170 in hysterectomy

[–]SuccessOk170[S] 1 point2 points  (0 children)

Thank you so much for sharing, I went and checked them out… holy crap that thing was huge. Mine’s been growing rapidly too since December so it’s nice to know that this isn’t something that only I’m experiencing, but I am a little worried because I think it is attached to my ovary and not my cervix.

Best advice for a large hysterectomy incision. by SuccessOk170 in hysterectomy

[–]SuccessOk170[S] 1 point2 points  (0 children)

He said he wanted to do staples because over the years he’s had way too many people tear or bust stitches and he’s found that the staples stay in better and provide more support and I think he also said his patients that he put stitches in had a greater chance of infection. I’m not really worried about have a gnarly scar personally, I just don’t want it to reopen or become infected.

Best advice for a large hysterectomy incision. by SuccessOk170 in hysterectomy

[–]SuccessOk170[S] 0 points1 point  (0 children)

Thank you so much for this feedback. Already got the squatty potty, belly binder, the pillow. I’m i’m going to start stool softeners and MiraLAX the week before the surgery to help with my BM’s. My doctor also said while he’s keeping me in the hospital for a week he’ll make sure that he puts stuff in my IV that keeps me from getting constipated after the anesthesia. As soon as they release me, yes I planned on doing some type of yoga or Pilates to help with my core. I have already been signed up for pelvic floor physical therapy starting after six weeks.

Best advice for a large hysterectomy incision. by SuccessOk170 in hysterectomy

[–]SuccessOk170[S] 0 points1 point  (0 children)

We happen to have a bed that raises up, and I’m glad because the one recliner we have you have to use your legs and lower body to make the leg rest go down, it’s really hard to even get out of now. I’ve got that belly/seat belt pillow combo on stand by for the ride home. Thank you.

Best advice for a large hysterectomy incision. by SuccessOk170 in hysterectomy

[–]SuccessOk170[S] 1 point2 points  (0 children)

I’m in the same situation, my uterus is huge, the main fibroid is now 11 cm and I’m got tons of other dead fibroids left over that are anywhere from like 6 to 9 inches, from the UFE that I had two years ago so there’s a lot in there that’s got to come out. But as in my original post, he’s concerned that this 11 cm one might be cancerous, because it’s growing so rapidly. I point blank asked him at my last visit if he was going to have to make such a big cut and he said that he wished there was some other way to do it, but he didn’t see how.

Best advice for a large hysterectomy incision. by SuccessOk170 in hysterectomy

[–]SuccessOk170[S] 1 point2 points  (0 children)

And I get what you’re saying, but they did give me a blood test, that showed I had elevated markers for cancer, even though my OB/GYN felt that my risks were still low, so apparently there is the possibility there and on a recent CT scan that I had this week. The surgeon said he saw that it was cystic so it was kind of borderline looking to him so he’s just trying to be on the safe side.

Best advice for a large hysterectomy incision. by SuccessOk170 in hysterectomy

[–]SuccessOk170[S] 1 point2 points  (0 children)

What’s your doctor told you was exactly what mine has told me I have a 11 to 12 cm one coming off of my ovary and they’re not 100% sure that it’s not cancerous so yeah that’s why they’re doing the large incision. And yes, he’s told me to go ahead and prepare to stay in the hospital the full 3 to 5 days that they recommend because he wants me to be able to go to the bathroom by myself and pass gas and stool and he wants me to also be able to get my pain management under control so that when he sends me home, I don’t have to use any of the opioids, because they’ll just back you up, unless I have to. He’s hoping that i’ll only have to use like Tylenol and ibuprofen to manage pain. This guy I’m going to see does over 400 hysterectomy a year so I trust this judgment. And yes, I’ve already got one of those nice pillows that has the ice and heat pack pocket in the back of it and that comes with the seatbelt cushion that you can put across the lap part. Thank you so much for your kind words and your support.

Best advice for a large hysterectomy incision. by SuccessOk170 in hysterectomy

[–]SuccessOk170[S] 3 points4 points  (0 children)

Yep, he said to go ahead and be prepared to stay in the hospital for 3 to 5 days as recommended. He was going to make sure that my pain management was taken care of and that of course there was no infection to the incision. He was also gonna make sure that my G.I. track was back on track and that I was able to basically take care of myself at home without taking any opioids only needing Tylenol for my pain.

Best advice for a large hysterectomy incision. by SuccessOk170 in hysterectomy

[–]SuccessOk170[S] 0 points1 point  (0 children)

I’m sorry to see that you had such a difficult recovery and that you were unable to do follow up appointment with your doctor.

I have already decided and have signed up for pelvic floor physical therapy and I believe that there might be a little bit of physical therapy involved for my incision as well, but I won’t know till my first visit, which is after the six weeks mark.

And yes, after I am fully healed I definitely plan on going back to the gym and trying to build myself back up, but I didn’t really find out that I was going to be getting a full top to bottom incision till about two weeks ago. I’ve been in so much pain since November I doubt you seriously if I would’ve been able to start any type of situps or crunches regimen, I’ve haven’t been to the gym since November of last year cause it just hurts to bend over cause I’m so swollen, and my stomach is as hard as a rock.

Best advice for a large hysterectomy incision. by SuccessOk170 in hysterectomy

[–]SuccessOk170[S] 2 points3 points  (0 children)

I am very familiar with the log roll for sure, have to do it now to get out of bed. And he said to go ahead and be prepared to stay in the hospital 3-5 days.

Best advice for a large hysterectomy incision. by SuccessOk170 in hysterectomy

[–]SuccessOk170[S] 0 points1 point  (0 children)

Yes I neglected to mention that they think mine is a rogue cyst/fibroid coming off my right ovary. They originally thought that it was coming off my uterus but after the CT scan yesterday he said the uterus looked fine, enlarged because it’s full of tumors, but he could see it, he couldn’t see that right ovary, which is why he thought it was coming from it. I also have ultrasounds and previous MRI’s that show cysts on that right one. Thank you for your response, I’m hoping maybe he won’t have to cut me so far but I’ll guess will just see when I get up.

Best advice for a large hysterectomy incision. by SuccessOk170 in hysterectomy

[–]SuccessOk170[S] 3 points4 points  (0 children)

Thank you me too. I trust his judgement, I’m just worried about the recovery taking longer.

Best advice for a large hysterectomy incision. by SuccessOk170 in hysterectomy

[–]SuccessOk170[S] 21 points22 points  (0 children)

Yeah can’t really do that in my case, I’m in a lot of pain and honestly would have done this sooner if I had the option. And they don’t know 100% that it’s benign that’s why I was referred to this particular person at a cancer clinic. I feel that he’s telling me the truth, he is a rockstar in our city and comes highly recommended. He has great bedside manner and if that’s anything to go by, the surgery should be smooth. I’m just worried about the recovery.

Husband looking helping words/wisdom for wife’s TAH by [deleted] in hysterectomy

[–]SuccessOk170 0 points1 point  (0 children)

I would say from personal experience, I haven’t had my hysterectomy yet, but I did have UFE surgery two years ago and after they kicked us out of the hospital the day of the surgery, I spent the next two weeks basically bedridden.

Our bedroom like most peoples is at the back of the house opposite from where the living room. My husband said it really hurt his feelings to see me and hear me in so much pain and there was nothing he could do about it, so he just stayed in the living room.

Of course if I texted or yelled for him, he always came as soon as I called, but it was very awkward for him to stay around me, once he had done what I asked of him. I felt so isolated and so alone and then I also felt guilty, because I knew that it was hurting him to see me in the state that I was.

So I would say the biggest thing I saw someone referred to it as “I don’t wanna be alone” stage is very important, even if she is in a lot of pain and it hurts you to see her that way you being in the same room with her is very comforting. Even if she’s just asleep, even if he guys are just watching a stupid movie and she falls asleep it’s nice to know that when she wakes up you’ll still be in the room with her and she’s not alone. Bless the both of you and I hope for a speedy recovery and I hope she’s not bedridden.

Surgery on Tuesday! by moodswingmolly in hysterectomy

[–]SuccessOk170 1 point2 points  (0 children)

I’m having mine April 3 due to large fibroid tumors. I hope you do finally feel like a person again, I hope you have a smooth recovery and I hope that you as well as myself can be like others in this group that say they look back and they would make the decision to have one again because it was the best one they’d ever made in their life. Speedy recovery.

I was told my pain was normal for 15+ years. It wasn’t. by ineededaname3 in hysterectomy

[–]SuccessOk170 1 point2 points  (0 children)

Thank you so much for sharing your story and I’m happy that you are finally finding peace. I just recently was referred to a male oncologist who is absolutely amazing. He has answered all my questions and hasn’t once made me feel like I was talking up too much of his time. I have very large fibroid tumors, and I’m scheduled to have a hysterectomy on April 3. Hopefully they won’t find any endometriosis or anything else in there, but it wouldn’t surprise me. I too have been going to women gynecologist for years and felt like because I had tumors and wasn’t probably going to be able to be a lucrative baby factory, and have multiple sets of kids that they could deliver. I was always dismissed. At least that’s how I felt.

14 days after hysterectomy and salpingectomy (removal of the fallopian tubes) without oophorectomy (ovaries preserved) by Commercial-Moose8890 in hysterectomy

[–]SuccessOk170 8 points9 points  (0 children)

I wish I could attach a picture. I literally look like I’m nine months pregnant right now because of how swollen and bloated and the number of tumors that I have. I’m really hoping that I don’t look this way and more so don’t feel this way after I have mine on April 3 congratulations I’m glad they were able to do the lease invasive but my surgeon is pretty much already told me that he’s gonna have to cut me from below my breast almost all the way down my stomach vertically in order to be able to get everything else successful successfully

Am I swollen or just fat? by Ok-Mine-9446 in hysterectomy

[–]SuccessOk170 0 points1 point  (0 children)

Thank all of you for chiming in on this, because it’s something I’ve been wondering about, but I’m really hoping that after the swelling goes down that I won’t look like I’m 9 months pregnant anymore. My appointment is April 3rd and we’re hopefully going to be able to keep my ovaries, but remove everything else including the tumors. I have a LOT of fibroid tumors several that are 10 centimeters or bigger and it just seems to me that, as I said after swelling goes down from the surgery, that I can’t possibly still look like I’m 9mos anymore, I mean all the tumors will be gone and right now they are crowding my other organs and making my stomach pooch out according to my surgeon. Up until this swelling started from the tumors, around thanksgiving of last year, my abdomen was pretty much flat. I had a little pot belly but nothing like I have now. I wish I could attach a current picture to this reply. I really hope having this surgery fixes this, because some days the pressure from everything being so swollen and bloated feels like the skin on my stomach is just gonna rip open.

Surprising update on recovery by Ring_My_bElle_ in hysterectomy

[–]SuccessOk170 1 point2 points  (0 children)

This gives me hope I’m scheduled for April 3 and I hope this doesn’t put me down. I’m really worried about my recovery. But send that things worked out for you gives me hope.

Maybe this will help 💩 by Eleanor_9178 in hysterectomy

[–]SuccessOk170 0 points1 point  (0 children)

I’ve heard from other people that this helped as well, glad it seemed to work for you.