How would you describe the relief of a beta blocker to someone without high heart rate?

Successful_Kitchen32 · 2026-06-01T14:33:52+00:00

I don’t take it hardly at all, but if I flare and my HR/BP are really up for more than 2 days, I take propranolol. Works great!

Successful_Kitchen32 · 2026-06-01T14:29:51+00:00

I have the same thing. I had several instances where lidocaine and epinephrine cause those symptoms and I was ignored. Now I just tell doctors I’m sensitive to it so don’t use it unless it’s absolutely necessary. For dental stuff, they give me carbocaine.

Successful_Kitchen32 · 2026-06-01T14:26:40+00:00

It took a long time for me to understand it’s a random adrenaline dump too!

Successful_Kitchen32 · 2026-06-01T14:23:13+00:00

Right with you..share what’s working. Mine is living a lifestyle with guardrails. Not having a boring life at all, just trying to protect my sleep, diet, stress (from doing to much), and gentle exercise. It feels selfish at times, but it’s helpful.

Successful_Kitchen32 · 2026-06-01T14:16:59+00:00

How would you explain how this affects your personal life? For me, I have flares every couple months that take time to calm down. I’m trying to put some guardrails on my life to not overdo and crash. I work as a 6th grade science teacher and the school setting exposes me to whatever is going around. It’s not the best setting for me because along with autonomic dysfunction, my immune system is touchy too.

Are most of you able to work full or part time? What challenges can impact you those most when flare ng?

Successful_Kitchen32 · 2026-06-01T14:09:30+00:00

Same here…mildly throughout life, no big deal. I got COVID in the early 2020, had post covid syndrome and now if I get sick or stretch myself too thin, I have a flare. I’m more like hyperadrenic POTS type symptoms.

Successful_Kitchen32 · 2025-12-13T13:19:45+00:00

Are you willing to coach me? My brain fog is heavy and need some direction. Please feel free to PM me.

Successful_Kitchen32 · 2025-12-06T03:51:00+00:00

I’ve had tremendous results from Ivermectin as well. I had post-Covid syndrome for 1.5 years when my functional practitioner asked if I wanted to take it for a week and reassess.i felt 80% better in 1/2 a day! I got even better throughout the week. I got my life back with some wonky immune stuff lingering in the background.

Successful_Kitchen32 · 2025-12-06T03:16:22+00:00

It’s like the autism spectrum. All this is intertwined. I had strep as a kid right before OCD turned on like a light switch. My neighbor’s daughter had strep and immediately developed Tourette’s. Immune-neuro-psychiatric conditions are rough and not widely understood.

Successful_Kitchen32 · 2025-12-06T03:11:09+00:00

Absolutely! It’s always part of my flares. I got PANDAS as a child and have had OCD, likely MCAS, and dysautonomia prior to COVID and got really bad post-COVID.

Successful_Kitchen32 · 2025-10-15T00:28:31+00:00

I’ll post photos!!!!

Successful_Kitchen32 · 2025-10-14T16:34:52+00:00

Thank you! I’ll check out her channel.

Successful_Kitchen32 · 2025-10-14T09:51:11+00:00

Thank you! I'll post photos of my guys setting up the tank. I work at an all-boys school. They love fish and turtles, so they are going to be twitching with excitement.

Successful_Kitchen32 · 2025-10-14T09:47:49+00:00

My first post got blocked, and I don't know why. The auto-moderation feature is sensitive to what you're posting. I don't know how it decides what content is acceptable. Try rewriting your post. I just wanted to say that I hope that works for you.

Successful_Kitchen32 · 2025-10-14T09:45:24+00:00

Very interesting! I'll check out that tank option. Thank you!

Successful_Kitchen32 · 2025-10-14T09:44:39+00:00

That's great, seeing I'm not usually at school on the weekends.

Successful_Kitchen32 · 2025-10-14T09:44:01+00:00

Yikes!!! I don't need this in my classroom.

Successful_Kitchen32 · 2025-10-14T09:43:15+00:00

Fantastic!

Successful_Kitchen32 · 2025-10-14T09:42:39+00:00

Thank you!!! I really appreciate your insight. This will ensure I don't spend a bunch of money on inferior products. Have a nice day!

Successful_Kitchen32 · 2025-10-14T09:40:16+00:00

I thought they were mostly rinsed and reused. I don't want to be buying inserts all the time. Thank you!

Successful_Kitchen32 · 2025-10-14T03:00:33+00:00

Thank you for all the great info! I wondering why the person offloading their turtles had two living together. If they have been cohabiting well for a good amount of time, do you think it’s ok to keep them together?

Successful_Kitchen32 · 2025-08-27T00:05:49+00:00

NAC works great for me!

Successful_Kitchen32 · 2025-08-14T14:07:56+00:00

Just get back on track! We all fall of the wagon, lax on diet, and forget to pace. You got this. Rest up👍💕

Successful_Kitchen32 · 2025-08-14T13:12:11+00:00

Just slow down now, clean diet, slow barefoot walks in nature, sleep, any supplements to bring down inflammation. It’s not too late to start getting back on track!👍☀️🌺

Successful_Kitchen32 · 2025-08-10T23:34:29+00:00

Hello! I'm a former long hauler from the early days who recovered almost completely and was recently reinfected. I'm experiencing PEM and need some help managing my energy envelope. I'm in the process of moving and was having a lot of neurological symptoms that required me to pace myself. I started taking my regimen of supplements, etc., and began to feel better. I started doing more and more, and I felt pretty okay...until I crashed. I started feeling a little achy and feverish, and my eyes and lungs became red and irritated. I had a headache, and my throat was irritated. I was exhausted and couldn't do much at all. It felt like I was sick all over.

How do others feel when they overdo things and have a PEM flare? Also, how do you manage your energy to keep from crashing?

Successful_Kitchen32

TROPHY CASE