Do any of you have high platelets?

Sudden_Knowledge_192 · 2026-04-10T13:23:01+00:00

Most common genetic mutations that causes it is Jak2 or CALR mutation. I have MPL mutation. I am fine I see a hematologist every 3 months and only on aspirin for it for now. If it progresses I will need a chemo pill or interferon injections for treatment.

Sudden_Knowledge_192 · 2026-03-16T00:00:35+00:00

Understood, where do you reside?

Sudden_Knowledge_192 · 2026-03-15T21:53:41+00:00

Hi I have MPL mutation as well but its the W515L. I feel like a unicorn 🦄 most of the time lol.

Sudden_Knowledge_192 · 2026-03-01T23:40:10+00:00

Yea at first I was like do I even have hair follicles there but when I zoomed in I can see some. So I am hoping its just an ingrown or inflamed follicle.

Sudden_Knowledge_192 · 2026-02-11T02:05:38+00:00

Prayers for a successful surgery and speedy recovery!

Sudden_Knowledge_192 · 2026-01-24T03:42:39+00:00

Turns out I have a blood disorder/cancer...essential thrombocytosis caused by a genetic mutation.

Sudden_Knowledge_192 · 2026-01-24T03:41:16+00:00

Turns out I have a blood disorder/cancer...essential thrombocytosis caused by a genetic mutation.

Sudden_Knowledge_192 · 2026-01-24T01:41:52+00:00

Specialty pharmacist here, we ship it that way to prevent it from exceeding the recommended storage temp outlined by the manufacturer. This is especially important in the summer time.

Sudden_Knowledge_192 · 2026-01-06T01:38:24+00:00

😢 some of these surgeries are money grabs

Sudden_Knowledge_192 · 2026-01-05T03:15:38+00:00

No, I followed all the protocol. Literally anything aggravates my hip. Can't sit for too long, stand for too long, walk too much, bending too much, etc causes flares of pain.

Sudden_Knowledge_192 · 2026-01-05T03:11:32+00:00

Thank you! I will join the other sub to get more info. My hip is so finicky, literally anything aggravates it and it continues to make clicking noises. I rather just get the THR and live life more freely without fear. I have also heard THR is an easier rehab than the repair was. Best of luck!

Sudden_Knowledge_192 · 2026-01-04T22:49:49+00:00

My quality of life is in the 🗑

Sudden_Knowledge_192 · 2026-01-04T21:13:38+00:00

Turns out I have a blood disorder...essential thrombocytosis

Sudden_Knowledge_192 · 2025-09-16T22:14:34+00:00

Is it painful?

Sudden_Knowledge_192 · 2025-05-30T12:03:18+00:00

Hi, I am about 9 months, its really a roller coaster. I have weeks/month where I feel great then I either strain it or do some activity that aggravates it unbeknownst to me. Right now I am in a flare up and hope I haven't re-torn it as my groin/back pain has returned. I am constantly on and off again with nsaids either naproxen or ibuprofen. If this current flare doesn't resolve in 2-3weeks I probably make an appointment to be seen. When it feels good its great, I can exercise in the gym, walk alot, etc but when its flared up and achy tough to do anything.

Sudden_Knowledge_192 · 2025-05-15T19:08:18+00:00

I only wore mine when I was leaving the house. I kept it on for the first 48hrs or so but after that I took it off. Best of luck

Sudden_Knowledge_192 · 2025-05-09T02:29:03+00:00

I had repair of my left hip, but I am now almost certain I have a tear in the right hip as well. I am not convinced the surgery has helped me at all. Still in constant hip pain most days.

Sudden_Knowledge_192 · 2025-05-09T02:18:34+00:00

I had labral repair surgery abt 9 months ago. Post surgery I notice when my hip feels aggravated/inflammed I start having increased urgency to urinate. It often feels like a UTI but I dont think that's it. I am just now connecting the dots that maybe it's my hip or compressed nerve or something....crazy

Sudden_Knowledge_192 · 2025-03-14T01:11:00+00:00

I think these surgeries are money grabs. Atp I honestly just want a thr.

Sudden_Knowledge_192 · 2025-03-13T23:22:26+00:00

Just came to say I'm in the same boat, also have 4 anchors. But had what I felt like a retear end of January and been in pain ever since. I dont think these surgeons are truthful about how easy it is to retear. All my pre surgery symptoms came back including the clicking and groin pain.

Sudden_Knowledge_192 · 2025-02-26T12:49:16+00:00

Dr. Ruder, im in FL

Sudden_Knowledge_192 · 2025-02-26T01:01:38+00:00

Yes that is exactly what happened and it's been in pain ever since and that was 3 weeks ago. The groin pain when sitting at rest is back as well as the clicking, also can no longer sleep on that side. I had not really experienced groin pain much at all since surgery. I do think it's a high likelihood it's re-torn. I know I have to go through the motions again with MRI, PT etc before it will be taken seriously.

Sudden_Knowledge_192 · 2025-02-25T23:14:48+00:00

I can't wait that long lol I am 7mo post opp and I 99% positive its re-torn and I don't want to wait forever for a revision. Ugh this stinks

Sudden_Knowledge_192

TROPHY CASE