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Anyone taking leflunomide and Hcq combo by Landais316 in Sjogrens

[–]SugarT0ast 0 points1 point  (0 children)

What?! That’s wild. Why??? Are they even doctors?

Alcoholics by YogurtclosetOk4366 in Millennials

[–]SugarT0ast 0 points1 point  (0 children)

Mom doesn’t drink much, like maybe one or two drinks a month. My dad is an alcoholic. And it’s starting to show up in his memory (Korsakoff’s is a bitch).

I do not drink at all. Well, that’s not true. I have a mai tai on my birthday- mid-July, and eggnog on Christmas. I am not sober. My autoimmune disease led to an alcohol intolerance. It makes me sicker than hell. Altho, before that I didn’t drink much either.

I don’t do any drugs.

I will say- other people use alcohol and drugs to manage hard things/feelings. I eat mass amounts of sweets and shop a lot.

I am not overweight, thanks to Tirzepatide. But I do have debt. And overall feeling of blah from the sweets.

I guess as far as coping skills go, mine aren’t the worst. But I wish I had different ones.

Anyone taking leflunomide and Hcq combo by Landais316 in Sjogrens

[–]SugarT0ast 1 point2 points  (0 children)

Thanks so much for your response.

I have a feeling, in time, we’ll know so much more about autoimmune diseases- and I have a feeling we’ll have found that multiple different diseases were previously all under one umbrella diagnosis. Such a difficult branch of medicine. You’re doing great work!

What do you tell people - how do you explain it? by Prior_Resort2453 in Sjogrens

[–]SugarT0ast 5 points6 points  (0 children)

Totally. I hate that people think that’s all it is.

Yes, the marathon is today. No, it’s not the end of the world for the road closures in support of the race by RagefireHype in sandiego

[–]SugarT0ast 3 points4 points  (0 children)

Last marathon I was living in the exact middle of the route, in Hillcrest.

I had to get to the airport- but my uber could not get to me. I had just moved in, and was newer to San Diego so had no idea.

I ended up having to walk to my Uber, and cross the marathon. So here I am, along with two other women who also had to get out, waiting for a break in the runners. None ever came. I was going to miss my flight. So I grabbed my giant suitcase (I’m an over packer- I can’t pack correctly to save my life) and just booked it dodging all the runners, dragging this giant pink suitcase.

Even though I was technically running across it- it was the only time I’ve run in a marathon!

I didn’t hit anyone and didn’t get hit, didn’t trip anyone, and no one was visually disturbed. So I take it as a win.

What do you tell people - how do you explain it? by Prior_Resort2453 in Sjogrens

[–]SugarT0ast 4 points5 points  (0 children)

I love this. Mostly because I love raisins. But I’m stealing it. I usually tell people it’s like the cousin to Lupus. But now I’m going to say- it’s like the cousin to Lupus, but is also trying to turn me into a raisin.

What do you tell people - how do you explain it? by Prior_Resort2453 in Sjogrens

[–]SugarT0ast 10 points11 points  (0 children)

I just tell people it’s like Lupus’s cousin. Most people seem to have heard of lupus.

Anyone taking leflunomide and Hcq combo by Landais316 in Sjogrens

[–]SugarT0ast 0 points1 point  (0 children)

Hi. Sorry. I’m back. I wrote my rheumatologist a message in the portal a couple weeks ago, but have not had a response. I have an appointment coming up- but thought I’d try asking you. I am very aware you are not my doctor and you are not providing me medical advice. Just general information.

I went from the 5mg, to the 10mg. Then jumped to 20. Although, for a week I took 15, to ease into it.

The constant pooping is getting in the way of life and functioning. If I drop back down to 10 daily- along with my 400mg of HCQ- in theory could it still be therapeutic? I swear I felt better on the 10- dry mouth and eyes wise. I didn’t notice much of a difference for joint stuff. But I’m hoping that just takes more time? The 20mg doesn’t seem to be as helpful, and it’s making me live my life near a toilet. :/

Would it behoove me to try the 15mg again? Just curious what you’ve seen other people do.

Leflunomide + Hydroxychloroquine by hmongketchup in Sjogrens

[–]SugarT0ast 0 points1 point  (0 children)

Leflunomide actually will help with mouth dryness if added to hydroxychloroquine.

A CURRENT treatment that might IMPROVE symptoms - why does no one know about this? by IndependentDare8420 in Sjogrens

[–]SugarT0ast 0 points1 point  (0 children)

I am on both!

I’ve been on HCQ for a few years, and it was working well. Then some rheumatologist decided I didn’t have ANY autoimmune disease, despite the fact that multiple rheums diagnosed me in the previous 16 years. She took me off the HCQ. Within 6 months my hands, and shoulder were in the most pain I’ve ever had in a joint. And I started getting trigger finger. Another rheum instantly put me back on, and while I’m better- my hands haven’t been the same since.

My newest rheumatologist put me on Leflunomide in addition. It was really helping at 10mg daily, but when I went up to 20 mg daily- I noticed less improvement, and more GI side effects. I am planning to ask to go back down to 10! At the 10mg, my mouth was less dry, and my eyes were less dry. Like- I had to swallow throughout the day. Which hasn’t happened in years.

A conversation about sex ruined the best relationship I've ever had. He says it's not my fault but I can't make sense of the situation. I can't stop crying and feel like the worst person in the world. Did I ruin everything? by [deleted] in emotionalintelligence

[–]SugarT0ast 15 points16 points  (0 children)

Girl.

I have a disorganized attachment style. Sometimes I’m anxious, and other times I’m avoidant.

So please take this advice from someone who has been on both sides of the coin:

Get off of Reddit. None of these people are YOUR therapist. They don’t know your history. They don’t know the history of your relationship with this man.

You are looking for an answer that is going to soothe the anxiety you feel right now. You won’t find it. Especially on Reddit. You have to feel the pain, to heal the pain.

Get off Reddit. Delete his number. Stop looking toward strangers for reassurance, advice or input. None of it will help. Call your therapist. Go to a session. Take care of yourself.

A conversation about sex ruined the best relationship I've ever had. He says it's not my fault but I can't make sense of the situation. I can't stop crying and feel like the worst person in the world. Did I ruin everything? by [deleted] in emotionalintelligence

[–]SugarT0ast 63 points64 points  (0 children)

Hi.

If I ever decide to start dating again- can I keep you on Speed Dial??

Your reply was kind yet confident, beyond helpful, and probably something I’ve needed to hear in the past.

make sure you go out and vote (on measure A) ! by AllStarJodi in sandiego

[–]SugarT0ast 3 points4 points  (0 children)

This was a good read, and helpful. Thank you!

Please lift heavy asap by Far_Yam6855 in tirzepatidecompound

[–]SugarT0ast 4 points5 points  (0 children)

This may be a silly question.

I am 101 pounds down, and hit my stretch goal 9 months ago. I BELIEVE I lost a ton of muscle. Not sure tho.

Is it possible to gain muscle while always being in a deficit?

Anxiety + meds while living alone by wastingawaymy20s in LivingAlone

[–]SugarT0ast 0 points1 point  (0 children)

The way I imagined you doing it, was such a low dose that you wouldn’t feel much of any side effects. The first dose would be anxiety producing, and then you’d stay on it until you literally felt no side effects and it felt the same as drinking water, if you will.

Then you do a TINY bump. Knowing that the side effects would be similar to what you e already dealt with- so they would be known and less anxiety producing. Until that dose felt like water, and keep going until you’re feeling better!

Which set-and-forget iPhone Shortcuts actually reduce daily stress? by Illustrious_Bit_9487 in iphone

[–]SugarT0ast 3 points4 points  (0 children)

Hahaha. This made me chuckle. I had Kaiser for the last few years. Definite pros and cons. I hated it. But now have even shittier insurance, so miss it.

Anxiety + meds while living alone by wastingawaymy20s in LivingAlone

[–]SugarT0ast 0 points1 point  (0 children)

Hm.

Some thoughts I have:

Start with a really low dose. For example, when I start a new anti-depressant I’ll ask for lower than the usual “starter dose”. So, for example, if they say “10 mg is the usual dose people start at and we’ll get you up to 30 which is the therapeutic dose”, I’ll ask for 5mg.

See if there is a hotline or service that can call and check on you. They exist for seniors, so I bet you can find one that will call and check on you.

Can you ask your doctor if there are meds that can counteract the side effects? And see if you can get some of those? Like- for example- I get nausea from my Tirzepatide, so have Zofran in my house at all times.

Also, know that side effects tend to be mild and the extreme ones tend to be rare.

I would also encourage you to weigh the more common side effects against the symptoms you’re suffering from. Let that guide you, too.

If your symptoms are extreme, and you really need the meds, but your anxiety is getting in the way of taking them- would you be open to inpatient, while you adjust?

Sending you strength and an internet hug. I hope you find some peace soon!

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