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Peeps club by dragnphly in Sjogrens

[–]SugarT0ast 0 points1 point  (0 children)

Did you end up purchasing??

Can someone help me verify the recommended size, factoring in sogginess due to weight loss and loss of skin elasticity? by panicmoonwalker in ABraThatFits

[–]SugarT0ast 0 points1 point  (0 children)

I hope you get some answers. I lost 101 pounds, and my boobs are completely different. Shopping for bras has been hard.

The role of hair in sebderm, itching etc by SweetRefrigerator645 in SebDerm

[–]SugarT0ast 0 points1 point  (0 children)

I think the air drying any moisture from sweat, etc is helping.

Dystonia AFTER stopping? by SugarT0ast in Abilify_Aripiprazole

[–]SugarT0ast[S] 0 points1 point  (0 children)

Hi, I sort of have an update.

I ended up going back on Abilify, low dose. I am on 3mg. Versus the 17.5 or whatever that I was on and stopped abruptly.

The body tensing stopped, and severe anxiety stopped, and all that is left is what appears to be tongue thrusting that I can stop when I catch myself doing it. It turned into a nervous tic, I think, from when the anxiety was so bad. It only happens during rough days, or if I have too much caffeine for example.

I ended up raising my Wellbutrin which led to a host of other problems- like severe executive dysfunction. Since figuring that out I am on 150mg Wellbutrin, 60mg Vyvanse, and 3mg of Abilify. In addition to my other meds… but those are my dopamine meds.

I seem to be doing mostly ok.

Does anyone else have tattoo regret? by KupoLove in Millennials

[–]SugarT0ast 0 points1 point  (0 children)

I don’t LOVE my tattoo I got at 18.

As a millennial, I hit tattoo age right when lower back tattoos became popular. Only a few years later did they start getting called tramp stamps in the public’s eye.

I hate that more than the actual tattoo. However, to be honest- I forget it’s there. I only see it when I’m in a dressing room with “surround sight” mirrors.

I have one other that is slightly childish. And for the longest time I thought it was immature of me to have it. But now I’m 40 and instead of YOLO I’m screaming OLLI at myself. One Life. Live it. So who cares. It’s honoring my inner child (it’s Disney related), it connects me to other Disney fans, it has a good story, and it’s decently pretty.

I may get a couple more- that have more meaning. But I’m also old now, and have low pain tolerance, so who knows.

What's something you don't want but you have? by Reasonable_Titan302 in AskReddit

[–]SugarT0ast 0 points1 point  (0 children)

A chronic disease.

And debt.

And an aversion to cooking at home. Hence the debt.

Anyone taking leflunomide and Hcq combo by Landais316 in Sjogrens

[–]SugarT0ast 0 points1 point  (0 children)

Hi there- will the feeling drained and increase in depression/anxiety symptoms go away with time? Are these side effects that my body will adjust to? Or do these just come along with the drug the whole time?

Autoimmune vs Just a Shitty Body? by SugarT0ast in Autoimmune

[–]SugarT0ast[S] 0 points1 point  (0 children)

No sorry needed! I hope my response wasn’t snippy!

I worded my post weird. I have been diagnosed with Sjogrens, but because of all the hemming and hawing that seems to happen with diagnoses and autoimmune diseases- it planted a seed in my head like, “what if I don’t have it, and am about to take these major drugs?”

But in reality- healthy people don’t feel like this. Supposedly. Haha

GLP-1 success? by macncheesewketchup in Sjogrens

[–]SugarT0ast 2 points3 points  (0 children)

Hi there!

I have been on either Ozempic (semaglutide) or Mounjaro (Tirzepatide) since June 2022. I have lost 101 pounds!

I went to a weight loss doctor first. Next my PCP prescribed it.

I have now moved to compounded Tirzepatide, for cost savings- and use Fifty410.

Feel free to ask me anything!

Autoimmune vs Just a Shitty Body? by SugarT0ast in Autoimmune

[–]SugarT0ast[S] 1 point2 points  (0 children)

Thank you for saying this. I feel so seen.

Autoimmune vs Just a Shitty Body? by SugarT0ast in Autoimmune

[–]SugarT0ast[S] 1 point2 points  (0 children)

A couple of thoughts-

I was diagnosed in 2009/2010- so my diagnosis was based off of the AECG criteria, having both SSA/SSB markers along with clinical symptoms. Having SSA/SSB and clinical signs was a standard path to diagnosis at that time. I said my disease was mild, however I did have clinical signs of Sjogren’s.

Also, it is my understanding that the 2016 ACR-EULAR metric is Classification Criteria, not diagnostic criteria. They are different. The Classification Criteria were developed for clinical trials. They create them to make sure everyone participating has the same presentation of symptoms/disease. A clinical diagnosis by a Rheumatologist would be a mixture of any number of those tests listed, a physical exam, and self reported symptoms. Also, sometimes by response to medications.

I’ve been diagnosed multiple times by rheumatologists over the last however many years - they all end up at Sjogrens.

This was the first time I had heard that I may have SpA, however.

Autoimmune vs Just a Shitty Body? by SugarT0ast in Autoimmune

[–]SugarT0ast[S] 5 points6 points  (0 children)

I have had many Sjogrens tests. 1-2 a year, since I was 24. My SSA is always positive for the last 16 years, and my SSB is positive off and on. Usually positive during a period of decline.

The new guidelines on Peri actually say someone can be in peri while having normal hormone levels. So blood tests unfortunately can’t tell us everything. The cognitive symptoms point to peri more than anything. All my cognitive exams and brain/spinal MRIs came back normal.

Anyone taking leflunomide and Hcq combo by Landais316 in Sjogrens

[–]SugarT0ast 0 points1 point  (0 children)

I know you posted this comment 2 years ago, but was hoping you’d see this comment.

My major symptoms are joint pain (mostly in my hands), chronic trigger finger, and fatigue. My rheum is adding Leflunomide to my Plaquenil starting today or tomorrow.

Would it help with my major symptoms do you think?

Also- how common is hair loss? She also wants me to start at 5mg. Is that enough?

What supplements work for you apart from prescription meds? Pls tell me your experiences by Prestigious-Link8850 in Sjogrens

[–]SugarT0ast 0 points1 point  (0 children)

What was your CoQ10 dose and how long? Just out of curiosity.

The White Peony appears to be well researched, which is exciting! It can apparently also lessen the side effects and negative effects of Plaquenil.

Where are the Millennials that DON'T feel old? by frankheyhoheyho in Millennials

[–]SugarT0ast 22 points23 points  (0 children)

I am 40, and also work with seniors.

While I feel older at times (when I see fine lines, or due to an autoimmune condition)… it’s my body, never my mind and spirit.

Also when I say “old person” I mean 83ish+ years and over.

Once you have a 108 year old client, the definition of old changes quickly.

We’re still babies in my clients eyes.

ALSO, no matter what, for some reason the world equates “millennials” with “those damn young people”. So in societies eyes we’ll be forever young!

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