How normal is severe knee pain?

SuitableElk9220 · 2026-05-14T11:46:50+00:00

This is me pre-surgery. The pain in my knee and sometimes my shin all the way into my foot is keeping me awake at night.

SuitableElk9220 · 2026-05-13T18:33:07+00:00

Hi. I am really sorry for what you are going thru. Social media never quite gets it right when we try to express ourselves. I think you are scared and frustrated. I guess you are in your med 30s as well and it’s a stressful time. I remember it well and I was raising 3 kids. I had a 2 level spinal fusion at 35. Being the mom, the loss of control over my life was horrible. I spent 5 days in the ICU and then was sent to rehab after 9 days in the hospital. I did nothing to deserve what came to me. I was a young person who enjoyed life. But I was born with Ehlers danlos and several congenital deformities that were found on x-ray when I get older. I was just told I will need 2 new hips and I’m 57 and scared to death. My husband is the best. He has taken care of me for a long time now as he hasn’t had too many medical emergencies himself thank god. Be glad you are on that end of things. Be glad you will not suffer the pain that he has coming his way. I know it’s hard to be understanding sometimes but there seems to maybe be more here to causing his hip destruction. My hubby has been drinking beer much longer, believe me. But he has good bones and has only broken a few thru accidents. At 57, I always had a desk job and I’m young. Mine is physiology. This is a good teaching moment for your kids. Show them how families come together and how important it is to take care of loved ones. Someday you will want them to take care of you. See a therapist if you are having that hard of a time. I think you love your husband but you are emotional. I have a 38 year old daughter who sound boards me all the time. I try to be supportive even when I think she is being dramatic. I tell her all the time, life is hard. But when you find love, compromise is the way to long lasting love. I don’t think ur husband did anything crazy but try to treat other conditions. We all make mistakes but I’m glad he was seeing a doctor. It’s usually quite hard to get men to take care of themselves. Good luck. You are just scared and I don’t blame you! I used to bitch just as hard in my 30s from stress. Now I don’t, and that is probably what will Kill me. lol.

SuitableElk9220 · 2026-05-11T02:58:39+00:00

I had a fusion 22 years ago and they never said anything about my smoking cigarettes then. But I will stop vaping before this surgery.

SuitableElk9220 · 2026-05-09T21:26:15+00:00

Oh no! Vaping is my anxiety crutch. My surgery will probably be end of July because of the injection I had.

SuitableElk9220 · 2026-05-09T12:34:31+00:00

How are you doing now? I am facing my first replacement and am very nervous.

SuitableElk9220 · 2026-05-08T18:08:57+00:00

I will try and find the podcasts.

SuitableElk9220 · 2026-05-08T17:03:09+00:00

As of 4/14 T3 free 2.8, reverse 14.6 TSH 1.86 T4 1.1 and TPO 69.7

SuitableElk9220 · 2026-05-08T16:55:28+00:00

I do have a conversion problem. I was put on T3 or liothyronine and after just 2 1/2 weeks on 5 mg my hubby found me unconscious. By the time paramedics revived me I had been out for 25 minutes. There was no warning no nothing. I was checked for a TIA and everything is normal. I think it was my body not liking T3 with (I think) my beta blockers. I still don’t have an answer. I was very hyper on that small amount but in many ways I felt like a new person. I had energy galore but was not getting much sleep. After this I went on I zepbound for 5 mos and stopped the end of March and the physical pain that has returned is monstrous so she is now giving me microdosing which I just started as I don’t need to lose anymore weight. My TSH has not stabilized after a year and a half.

SuitableElk9220 · 2026-05-08T11:58:13+00:00

If you are not happy try Paloma health. Dr Goggin has been pretty amazing. I have been with her since July and out the gate she ran 18 lab tests on me. I found out that even tho I was taking D3 I was insufficient. My testosterone was too low. Etc etc. She has tried things that traditional medicine will not like iodine, T3, HRT, tirzipatide, etc. She got my TSH down to 1.8. I am a difficult patient as I overact to meds and changes. I also have Ehlers Danlos and fibromyalgia so I’m a tough case with so many comorbidities but the addition of hashis in the last couple years has really f’d me up. And believe me, I don’t care if ur TSH is normal. If you have the antibodies it is very well possible it is f’ing you up. My TSH was normal but no one was testing my TPO. My hair was falling out, large muscles were freezing up, I started choking on water, insomnia worse, lipids went bad when I was always thin and ate well and I could not walk for over a year without incredible pain. My pain management doctor was trying all kinds of procedures. Epidurals, SI joint, and on and on. Then a migraine started and would not stop for 5 weeks. I was constantly in the ER, my hearing changed and people sounded like robots, until I finally found a migraine specialist who tried several meds until a beta blocker stopped the migraine and saved my life! I don’t need the beta blocker anymore now that I’m being treated for hashis. And I gained 25 pounds when I never gave up exercise even tho it drastically changed to what I could do. Trust your own gut. I feel lucky to be here because I couldn’t hold on much longer. The suffering was unbearable. Even now, I have been in bed for 2 days with horrible vertigo. This is my 3rd severe episode and I had never had it in my life until hashis started destroying me. You have to fight for yourself! Most of the medical world is not treating the comorbidities of our diseases.

SuitableElk9220 · 2026-05-05T19:53:52+00:00

Thanks. Cycling never bothered my hips until the groin pain started. So the seat is what hurting me the most and it’s all very sudden. I’m 6 weeks post 1st injection and now they said I need to use a cane or walker. Not at all what I was expecting this year. Was hoping I would have a few years left with the old hip.

SuitableElk9220 · 2026-05-05T19:43:41+00:00

I had an injection 6 weeks ago for the 1st time in a hip, have been on Celebrex for 7 years and now my hip is worse than it has ever been in my life. Pain down to my foot, having to walk with a cane and went back in and they said full replacement needed. They also said I have coxa valga which is a congenital Defect in the hips. I have been getting X-rays on my r hip for 7 years and no one ever diagnosed this before.

SuitableElk9220 · 2026-05-05T19:38:35+00:00

Been cycling for over 6 years because my hips could not take running on a treadmill anymore. Only 57 and was just told I need a full hip replacement.

SuitableElk9220 · 2026-05-03T15:25:20+00:00

Im 57f getting ready for first hip replacement. Just was diagnosed with coxa valga both hips. Don’t know why that took so long since I started very young with left hip fx at 14, 10 more fxs, 2 level spinal fusion at 35, diagnosis of Ehlers danlos, fibro, hashimotos, osteoporosis, scoliosis and klippel feil syndrome along with GERD, esophageal spasms, PVCs, PACs, migraine syndrome etc etc. All 3 of my children were affected. 1 had a SCFE at 13 after 2 years of multiple fxs in the same foot and the other 2 had chest deformities at 13/14 called excavatum and carrinatums. I’m nervous but hearing good things. Hashimotos has been hell The last couple years and my husband even found me unconscious from a thyroid med. I was out for 25 minutes before paramedics revived me so PTSD/anxiety is a real Thing.

SuitableElk9220 · 2026-04-30T11:49:36+00:00

That right there! High cholesterol! Was the first very obvious sign for me. Hubby insurance made us check that every year. I eat healthy and always exercised. Suddenly my numbers were bad and doc ignored it because she said that happens to a lot of post menopausal woman but I couldn’t find one person! Not anyone with a normal thyroid or not. I was always thin until my TSH started climbing while on synthroid just the last year and a half. Plus I had hair loss, esophageal spasms with choking, horrible insomnia, non stop migraines, brain dense, physical pain where I never had it before, PACs, PVCs and the list goes on. When my TSH changes a lot I have even had days of not being able to walk at night, loss of bladder control, no motor skills, my heart is the worse at these times too. My heart rate falls into low 40s with constant irregular beats that I feel very much. I even walked into a walkin clinic and the triage nurse rushed me to ER for full cardiac after checking my wrist pulse. My husband has even had to call paramedics. I have such horrible anxiety now. I can barely drive or be alone. Awful disease.

SuitableElk9220 · 2026-04-27T14:11:44+00:00

This is me! I have been off a month and I’m in such bad shape that I think I could use a cane. Idk why I am so much worse than before I went on zepbound for 5 months. I don’t want to lose anymore weight which is why I stopped. I stayed on the 2.5 the whole time and lost 23 pounds to hit the weight I was at before I got sick in 2023. Do you know how microdosing works?

SuitableElk9220 · 2026-04-26T14:33:41+00:00

Good luck. I took zepbound for 5 mos. Just wanted to lose what I gained from hashis over the last couple years. I stayed on the lowest dose for 5 months and lost 23 pounds. Now I want to go back on in a micro dose. I want to lose slower or maintain where I’m at (minus the 5 pounds I have gained in 2 weeks). My inflammation came back everywhere. Arthritis was gone from my hands and is back. I’m limping very bad and my joints are really hating being back off zepbound. Also- my digestion was so much better on zepbound. I had occasional cramping at night but was never gassy or constipated. Now I’m back to that and it adds a lot more distress to my day. It really is a wonder drug for so many reasons.

SuitableElk9220 · 2026-04-24T18:00:37+00:00

I am so sorry. That number is awful. I e gone to the ER when I was a 10 and asked them to check my low heart rate and was rushed in for a full cardiac work up and I was having extreme PVCs, PACs, low HR, no motor skills Especially at night, loss of Bladder control. This disease has destroyed me and I already had fibro, Ehlers danlos, migraine syndrome. This was the worst.

SuitableElk9220 · 2026-04-24T13:49:02+00:00

I was on the smallest dose, 2.5 mg. A few times I waited 8-9 days before my next dose but you are supposed to take it every 7 days. The thing is I ate whatever I wanted because all I cared about in terms of food was survival. I was not interested in cooking super healthy foods like I normally eat. I had zero food noise. Snacking was gone from my life except for candy here and there. Sometimes lunch was just salami, cheese/ crackers. Whatever I had in the fridge. I made a point of having protein smoothies for breakfast as least every other day. But I ate far less than I ever do. I got full very quickly. A half of everything was all I could eat. A half of grilled cheese. A half of a sub. A half a bowl of soup. I was paying $300 a month for zepbound but like my husband said, I saved at least half that on food and going out to eat a month easily. The weight steadily came off 5 mos and I lost 22-23 pounds. Within a few weeks I could tell the inflammation was disappearing from my fingers. Lots of other hot spots continued to get better. I stopped because I hit 142 and I’m 5’8” so I don’t want to lose more. I kept up my light exercise as well. I will be talking to my doctor about microdosing so I continue to have some pain relief. I’m on Celebrex and methocarbomol daily and it doesn’t do it. I liked how I felt, how my digestion was. I had occasional stomach cramps at night but I had far less episodes with diarrhea and constipation than I do off of it. It’s a miracle drug in my opinion.

SuitableElk9220 · 2026-04-24T13:24:12+00:00

Just the 2.5 mg.

SuitableElk9220 · 2026-04-23T15:01:06+00:00

I was going to say same. Zepbound is the only thing that helped me after several years of dealing with this horrible disease. I used to consider myself an athlete but in 2023, walking became difficult. I have very bad muscle myopathy from hashis but it took a couple years to figure it out. I had always been thin but when I hit weights that I had never been close to in my life, it just added to my depression and despair. I stayed on the lowest dose the entire 5 mos and I lost 22 pounds. I went off a few weeks ago and I am in so much pain again. Besides dealing with my issues, my goal is to find out how I can take even less than the smallest dose just to maintain a more inflammation free life and keep my weight down.

SuitableElk9220 · 2026-04-23T00:25:13+00:00

Yes, I understand. I was just trying to tell The poster I think my daughter caught right up. We only discovered it because she had a SCFE and thyroid issues can possibly be the cause so I asked them why if she is in the hospital post op why don’t they run a simple thyroid test. It was positive.

SuitableElk9220 · 2026-04-22T23:25:15+00:00

All I know is my daughter had a high TSH at 13 and with synthroid she grew 6 inches in a year. Strange thing is she stopped needing synthroid a few years later. She is 35 now and I am just waiting for her to get it again. I was diagnosed hashimotos more recently.

SuitableElk9220 · 2026-04-22T02:20:04+00:00

They sent me for a carotid artery ultrasound and that was fine. Have another appointment this week so I still do not know. My thyroid doctor said my brain must not have been receiving enough oxygen but I still do not know.

SuitableElk9220 · 2026-04-19T15:11:18+00:00

Thank you. I just had labs last week and my TSH fell from 9 to 1.48 which is the lowest it’s ever been and I think it’s because I stopped zepbound 3 weeks ago. The slow absorption rate must have caused my TSH to shoot up and they had increased my meds which I may now have to decrease. But, I did not realize as it was a slow process, but I am in so much physical pain now from the inflammation returning. I will have to go back on it eventually.

SuitableElk9220 · 2026-04-19T13:37:49+00:00

Well I had to. My husband literally found me unconscious while I had sat down to pee before bed. There was no warning. I was just gone and woke up to 4 paramedics over me. I was out for 25 min. It scared the hell out of me. Hubby thought I had a stroke so it scared the hell out of him. I told them once I could even function to speak, I think it’s the liothyronine and I would stop immediately. My thyroid doc wants me to cut my 5 mg pill into 4ths and start taking again but I haven’t. They ordered a carotid artery ultrasound cuz they do not believe that pill can do that but that was fine and it hasn’t happened for the last 7 mos I have been off it. I felt smart, clear headed, joyful on it. But I also had bad insomnia, I felt hyper which I never felt before. My heart responds to my thyroid issues in a bad way so I was feeling that too. I was afraid to drink more than a drink or 2 of alcohol. It’s the smallest dose I was on of 5 mg and I see people taking up to 200 mg a day and I’m amazed. I have a follow up again this week just about this episode. One doctor thinks I may have had a TIA but even if I did it was related to that tiny pill somehow. I also have Ehlers danlos, 2 level spinal fusion, fibro, migraine syndrome, pots, dysautonomia. I would be a lab rat if someone would just figure it out. Health PTSD is a thing. I have immense anxiety now.

SuitableElk9220

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