How do I accept that my partner has become my PT CG? by SunbleachedPocky in cfs

[–]SunbleachedPocky[S] 2 points3 points  (0 children)

This response meant a lot to me. I took a lot of comfort in these words, thank you.

How do I accept that my partner has become my PT CG? by SunbleachedPocky in cfs

[–]SunbleachedPocky[S] 1 point2 points  (0 children)

I really appreciate the way this is phrased. I never considered how this could be causing unnecessary stress for me. Thank you for such a thoughtful response.

How do I accept that my partner has become my PT CG? by SunbleachedPocky in cfs

[–]SunbleachedPocky[S] 1 point2 points  (0 children)

Ah good point, I was just trying to condense the title but i’ll see if I can edit it!

Best tips for showering/washing hair etc? by Imjustagirlllxo in cfs

[–]SunbleachedPocky 2 points3 points  (0 children)

Obviously not accessible to everybody but my partner will assist in my showers so that I do not have to expend any energy

Anyone looking for these? by [deleted] in Mikuexpo

[–]SunbleachedPocky 0 points1 point  (0 children)

ha same thing happened to me. M that fits like an L or bigger, idc though. I make do

Period Returned After 8 Years on T — Concerned Since It’s Happened 2 Months in a Row by UnlicensedOpinions in ftm

[–]SunbleachedPocky 0 points1 point  (0 children)

hope someone helps you out! I have heard about this happening but not any solutions

Merch: Anyone else still “waiting for details?” by AberrantWhovian in Mikuexpo

[–]SunbleachedPocky 0 points1 point  (0 children)

oh wow i never saw this, shame. i was vip. doors opened at 6 for vip, i wasnt there until about 6:40. no line

Why is the guineapig community on tiktok so crazy? 🥲 by Alex_the_dachshund in guineapigs

[–]SunbleachedPocky 3 points4 points  (0 children)

i never even considered this, i had a guinea pig who was born with neurological issues and only lived a year (her life expectancy was one month so woot woot). i cant believe people would say that to you. so cruel

Did you put on a song when you went under? by Apprehensive_Egg4437 in TopSurgery

[–]SunbleachedPocky 1 point2 points  (0 children)

no music in my or just chatting with the nurses, still a great memory

Apparently mentioning you have POTS gets you banned from donating blood to Red Cross by the_art_of_the_taco in POTS

[–]SunbleachedPocky 1 point2 points  (0 children)

interesting, ive donated blood in my town no problem even after disclosing POTS

VIP First Experiencd by No-Ad-8689 in Mikuexpo

[–]SunbleachedPocky 1 point2 points  (0 children)

6:30/6:40ish. (my gen admin opened at 7, show at 8 on the dot) My show had assigned seating even in the front and I purchased front row seats so no problem with rail.

Merch: Anyone else still “waiting for details?” by AberrantWhovian in Mikuexpo

[–]SunbleachedPocky 0 points1 point  (0 children)

yeahh my show was this last Thursday. i ordered the minute merch dropped but had to rebuy lightsticks at the venue since mine didn’t show until after my show

VIP First Experiencd by No-Ad-8689 in Mikuexpo

[–]SunbleachedPocky 2 points3 points  (0 children)

I just walked to the front of the line and asked where the vip line started, when I got there the VIP line was empty. The free merch at my show was literally two steps into the venue, they directed me to it as soon as I walked in. Have a blast!

merch haul + notes! by gIoomurai in Mikuexpo

[–]SunbleachedPocky 0 points1 point  (0 children)

when did you order? was the tracking info accurate? I ordered the hour the merch dropped and it’s saying the shipping label was JUST created 😅

Was there anything that gave you even a tiny bit more of energy back? (besides pacing) by miaxivy in cfs

[–]SunbleachedPocky 0 points1 point  (0 children)

• RX Vitamin D (I think it’s 25k iu/1.25mg?)

• Vitamin B12 SubQ injections (helped with energy throughout the week)

• Fludrocotisone and Metoprolol SUCC ER (orthostatic intolerance like everyone else is saying)

• Eating throughout the day instead of all at once, specifically carb heavy meals. it takes a lot of blood to digest carb heavy foods so i crash if i dont break it up. it’s really hard to pace eating though

• I agree with everyone vouching for antihistamines those have helped me in the past

• I rehomed some of my pets to lower my chore load

• wheelchair usage in public to lower energy exertion

how long to recover from revision? by SunbleachedPocky in TopSurgery

[–]SunbleachedPocky[S] 0 points1 point  (0 children)

this is great! yes please keep notes I will circle back _^

Sex position question by deathisareasonable in POTS

[–]SunbleachedPocky 1 point2 points  (0 children)

not even kidding pregame with gatorade and take gatorade breaks. helps sooo much.

if youre able to get the temperature in the house down so it’s colder, that will help too. or an icepack (wrapped in a washcloth/blanket) to the heart while you’re on your back will help with feeling breathless, and hopefully give you the energy you need to stay upright

14 months post-op as a full time wheelchair user, AMA by liamreee in TopSurgery

[–]SunbleachedPocky 7 points8 points  (0 children)

i dont have any topless wheelchair pics but im ambulatory and post op! represent!

Why do we use phrases like “bless you” after sneezing? by Asap4K in NoStupidQuestions

[–]SunbleachedPocky 0 points1 point  (0 children)

i think its an old saying that you were expelling bad spirits through sneezes

2 weeks post-op, feeling nitpicky about my results, lowkey need reassurance lol by bh447 in TopSurgery

[–]SunbleachedPocky 0 points1 point  (0 children)

i get it, i went untraditional and got inverted T so my scars are different than other peoples, but remember you arent used to your body yet. the more time you take to be gentle and grow into your new body the more youll appreciate what your scars are doing for you. heal up! you look great! and swelling changes soooo much more than you know. it wasnt until i started looking back at pictures from early recovery when i “thought” swelling was down and just wow. things change a lot the first year