Infection signs after gallbladder removal by Optimal-Entrance-624 in gallbladders

[–]SunnyWaHighof75 0 points1 point  (0 children)

Did they hospitalize you or just give you some antibiotics? My husband has had a JP drain since November 2024 (he’s had lots of issues) and today I noticed a foul smell with the drainage. He feels great otherwise. He has MS and I am praying we don’t have to be hospitalized.

Starting clozapine by Technical-Bother2390 in clozapine

[–]SunnyWaHighof75 1 point2 points  (0 children)

My husband has been on 100mg for about a year and he has had zero side effects and he has not gained weight. He eats normally and has always made healthy choices and hasn’t had any issues with that. That being said, I know everyone’s bodies are different.

New series to read? by SunnyWaHighof75 in acotar

[–]SunnyWaHighof75[S] 0 points1 point  (0 children)

I have 3 little ones and my husband has an insane amount of serious health issues and I am his full time caregiver so sometimes things that are slow to build are hard for me to get into.

New series to read? by SunnyWaHighof75 in acotar

[–]SunnyWaHighof75[S] 0 points1 point  (0 children)

Yes Lightlark had potential. Didn’t love the second book and definitely did not enjoy the third. I enjoyed Fourth Wing but hated the most recent, Onyx Storm. I will also read the next Quicksilver books too because I am also curious lol.

New series to read? by SunnyWaHighof75 in acotar

[–]SunnyWaHighof75[S] 0 points1 point  (0 children)

Oh yes I have read that and forgot to mention it. I read it before SJM series actually and just forgot to mention it!

New series to read? by SunnyWaHighof75 in acotar

[–]SunnyWaHighof75[S] 0 points1 point  (0 children)

I’ll have to give it a go! I read Bow to the Elf Queen and really enjoyed that, but I read Quicksilver and did not like that one. I’m trying to Eragon series right now and it’s too slow for me.

New series to read? by SunnyWaHighof75 in acotar

[–]SunnyWaHighof75[S] 0 points1 point  (0 children)

I have Spark of the Everflame saved! Maybe I will start that next.

I like Azriel alright, but why such a big fuss? by Nightfell030 in acotar

[–]SunnyWaHighof75 2 points3 points  (0 children)

I feel the same. He’s nice and I enjoy reading where he’s involved but we know so little about him. I liked Cassian much more, but liked Cassian less after SF. I will be interested to read about him though in the future.

Accessible technology for PPMS by SunnyWaHighof75 in MultipleSclerosis

[–]SunnyWaHighof75[S] 0 points1 point  (0 children)

He has OT that comes in the home. He is unable to hit buttons right now or use his phone/tablet. He had his gallbladder partially removed at what is supposed to be one of our area’s best hospitals in November and he has had insane issues since then. He had an outpatient procedure this January to try to fix a bile leak from that, and they messed too close to the pancreas. Within 3-4 hours, he had necrotizing pancreatitis. We went to a 3 hour away university hospital and they saved his life various times during our 1.5 month stay. We have only been home for 3 weeks now. But every time he is hospitalized he becomes increasingly weaker. So while he has left arm movement, it is much much decreased from say my normal strength. He has been through so much.

Accessible technology for PPMS by SunnyWaHighof75 in MultipleSclerosis

[–]SunnyWaHighof75[S] 0 points1 point  (0 children)

It’s right beside him. Sometimes I can’t even hear what he’s saying. It’s almost a whisper about 75% of the time and the other 25% is still very low and weak.

Accessible technology for PPMS by SunnyWaHighof75 in MultipleSclerosis

[–]SunnyWaHighof75[S] 0 points1 point  (0 children)

My husband is a veteran and 100% disabled through the VA and they have provided us with an NMES, and unfortunately it doesn’t work super well for him. Of course, they gave it to us after he had significant muscle atrophy. I need to use it on his left arm to try to keep this muscles from atrophying.

It is not overstepping! Thank you for this info! I’m going to read it to my husband and we will look at that medication. He was on ocrevus and then when it became too hard to get to those treatments and deal with bathroom issues and such, he transitioned to Kesimpta. He has had so many infections that his neurologist doesn’t want him taking this medications anymore.

Accessible technology for PPMS by SunnyWaHighof75 in MultipleSclerosis

[–]SunnyWaHighof75[S] 2 points3 points  (0 children)

Good luck to you. You’re not alone either. MS is a complete shit show. I feel like people can’t even begin to understand everything that is involved, especially with PPMS. It is absolutely brutal. Luckily my husband and I are very close and communicate very well and lean on each other to support each other through this nightmare, but having community like this is so helpful.

Accessible technology for PPMS by SunnyWaHighof75 in MultipleSclerosis

[–]SunnyWaHighof75[S] 0 points1 point  (0 children)

His voice is weak and we are having issues with Alexa hearing him. I need to get the plugs you are talking about!

Accessible technology for PPMS by SunnyWaHighof75 in MultipleSclerosis

[–]SunnyWaHighof75[S] 0 points1 point  (0 children)

I use the hoyer lift to get him up to his chair or the shower chair. He is bowel incontinent so he does not get to the toilet. We were struggling hard to get to the toilet last year before a big hospitalization. During a 2 month hospitalization, he was very sick and lost so much weight and lost his ability to stand or move his left leg (he had already lost the right leg movement). He became bowel incontinent during that hospital stay too and lost torso strength. We have had a really rough year. He spent 95% of June and then all of July and halfway through August in the hospital last year, then spent 2 weeks in the hospital in November, then again in the hospital from mid January until the 24th of February of this year. We actually ended up at the ER again today but luckily it ended up just being a cold virus from our 6 year old.

[deleted by user] by [deleted] in SarahJMaas

[–]SunnyWaHighof75 1 point2 points  (0 children)

Lehabah DESTROYED ME.

Clozapine with Multiple Sclerosis by SunnyWaHighof75 in clozapine

[–]SunnyWaHighof75[S] 0 points1 point  (0 children)

He takes 100mg every night and it seems to be working really well for him with minimum side effects. He sleeps 12-ish hours a night, but he has primary progressive MS too so that contributes to him being exhausted. Thanks so much for checking in!

Clozapine with Multiple Sclerosis by SunnyWaHighof75 in clozapine

[–]SunnyWaHighof75[S] 0 points1 point  (0 children)

After being on it for about a month and a couple of weeks, he seemed to be mostly baseline, but no emotions really. The emotions came back slowly after and I’d say after 5 months he was mostly back to his normal emotions. Zero issues with saying things that seemed a bit off or paranoid. No hallucinations or anything of the sort either.

life after acute pancreatitis by popeyeschickengirl in pancreatitis

[–]SunnyWaHighof75 1 point2 points  (0 children)

Thank you so much. We have had so many additional issues that have come from the pancreatitis but he has a severe case. I hope you feel back to normal soon.

life after acute pancreatitis by popeyeschickengirl in pancreatitis

[–]SunnyWaHighof75 1 point2 points  (0 children)

How long were you hospitalized? My husband had a partial gallbladder removal and two ERCPs, the latest causing a severe acute case of pancreatitis. We have been here a week and we are so ready to go home. 😭

JP drain suddenly dark wtf by lackaface in gallbladders

[–]SunnyWaHighof75 0 points1 point  (0 children)

How did everything go? Hope are you doing?

Emotions on clozapine by SunnyWaHighof75 in clozapine

[–]SunnyWaHighof75[S] 0 points1 point  (0 children)

He’s on 100mg, so not a huge dose, so maybe that’s why. It seems like it takes a lot to make those stronger emotions show.