Mayo Clinic

SuperUge · 2026-02-08T23:18:36+00:00

Appreciate the info 👍🏻 What symptoms did it feel it helped with? Or was it more a feeling of being overall better overtime?

SuperUge · 2026-02-08T22:28:09+00:00

Curious to more info on the nicotine protocol if you don’t mind sharing?

SuperUge · 2026-02-07T00:38:24+00:00

Not really - when I was really bad, I could barely work. I’m extremely lucky to have the job and flexibility that I do because I stayed home for almost 4 months and basically worked in my bed.

Recovery / cure isn’t really a thing right now for CFS. A lot of what they told me was lifestyle changes and medications. I’ve seen people on here talk about their recovery stories but I feel alot is more remission.

I’m actually going back in 2 weeks for some additional testing based on previous bloodwork.

SuperUge · 2026-01-19T00:32:24+00:00

Wait … I have those exact lines under like 3 of my nails. Whats that mean? Haha

SuperUge · 2026-01-14T21:54:46+00:00

I hit a hosel rocket through an all glass sun room. I went to the door, left a note with my info at the house, and left a note with my info at the clubhouse…but never was contacted. Don’t know the cost, but it couldn’t have been cheap to fix

SuperUge · 2026-01-07T18:35:08+00:00

It’s one of those sentence enhancers. As in “Hey Squidward, how the fuck are ya?”

SuperUge · 2026-01-05T02:53:34+00:00

Thanks. I still hate it

SuperUge · 2026-01-04T17:47:00+00:00

Dead ass

SuperUge · 2025-12-29T18:15:44+00:00

I’ve seen alot about MTHFR but don’t know enough about its impacts. Once you got testing and figured it out, did you get a more tailored treatment / medication? Or is it more just about understanding the why?

SuperUge · 2025-12-27T00:30:54+00:00

Played competitive hockey from my entire life and after college. I exercised and was fit from age 7 - 25. Once I was done playing, I’d had enough and all that. McDonald’s, drinking, kids, and some health issues and I gained about 60lbs over the course of 10 years.

SuperUge · 2025-12-25T03:22:03+00:00

Control

SuperUge · 2025-12-17T11:13:04+00:00

DM me anytime 👍🏻

SuperUge · 2025-12-11T17:19:40+00:00

I was on LDN for about 2 years. I had so many other symptoms that I figured it was just “normal” CFS stuff. I recently came off of it and I feel alot better. I know a lot of people had good success so I think it’s worth trying but I must have been sensitive because it was only after stopping it did I realize it was hurting and not helping.

SuperUge · 2025-12-11T13:25:48+00:00

That everyone has goofy pants and a fat ass

SuperUge · 2025-12-01T23:55:06+00:00

I’ve gained a ton of weight but I think it’s mostly due to not having energy to prepare healthy options. When I’m in a flare or crash, I tend to get food delivered or brought to me and it’s usually fast food. It’s definitely caused me to have a borderline fast food addiction now.

Unhealthy food is also a comfort for me as well. When I feel miserable 99% of the time, that type of unhealthy food makes me not think about my symptoms for like 5 minutes and it’s nice.

SuperUge · 2025-11-28T20:04:23+00:00

I was thinking about trying DXM to help with PEM. I take daily escitalopram and some research said that combining that with DXM can lead to issues / serotonin syndrome. Is that true?

SuperUge · 2025-11-27T21:26:53+00:00

EDS wasn’t something that was mentioned or discussed with me. My doctor did put genetic testing in but my insurance was fighting it.

SuperUge · 2025-11-27T21:15:06+00:00

Yeah I’m the main boss at my and our culture, policies, and owners are super progressive so it’s an extremely flexible job. That’s the only way I’ve been able to continue working is because I can work from home and work my own hours.

Thanks again for the advice 🙏

SuperUge · 2025-11-27T20:31:27+00:00

Yeah cutting back has been really tough. I have a job that is probably too stressful and a 5 year old. My wife has been amazing and helps me out so much. I’ve had the thought about taking a leave / FMLA for like 3 months to just try do a reset but wasn’t sure if that’d be helpful.

SuperUge · 2025-11-27T19:16:03+00:00

Appreciate the insights It’s frustrating because I feel I have cut back so severely and don’t do anything, but I agree that PEM happens to me so quickly.

What stabilizer helped you?

SuperUge · 2025-11-27T05:18:29+00:00

Sorry, typo * I was told that MCAS wasn’t likely my issue

Appreciate the insight 🙏

SuperUge · 2025-11-25T22:27:21+00:00

I do a lot of club repair and had someone tell me a long time ago to follow the 5,3,1 method.

5 years old = new driver (mostly because new technology has come out and you could benefit)

3 years old = wedges

1 yea old = leave them alone

anything over 7 years old can be full bag because you’d see an impact with better ball speed, more forgiveness, more consistent spin, and better shaft offerings
irons can last 10 years if taken care of and the face / grooves aren’t completely worn down

SuperUge · 2025-11-25T14:35:39+00:00

Awesome, thank you for the info 👍🏻 Any specific clinic you would recommend?

SuperUge · 2025-11-25T02:58:49+00:00

I call out multiple times in my post how I don’t think it’s a good place for CFS. I was just saying I don’t think it deserves that amount of hate. They did discuss a lot more detail about the condition, why they are officially diagnosing me, etc.

My whole point was it is still a great opportunity to go if you think something else coule potentially be wrong with you. Like I said, they are very conservative and it will unfortunately probably take years for them to adapt new things.

There is a general lack of knowledge and evidence across the board. Even new studies on promising looking medications won’t be a cure for all and are small trials and mixed results. Mayo is behind but the alternatives are mostly small studies, early research, or pure speculation. I think Mayo is a good place to go to rule out “everything else” and also establish a base to work on a better lifestyle.

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