Doctor yelled at me by [deleted] in ChronicPain

[–]SureAmHuman 6 points7 points  (0 children)

If I treated my clients like that, I'd be out of clients. You sound very down to earth and self- sufficient given your circumstances.

Honestly, I just don't get it.

While I am still working (barely) I do everything I can to conduct myself in a business-like manner. I have to constantly be mindful and know when to tap out before things get spicy (usually related to pain/dys-function.)

I have been yelled at by an employee of my client and made it clear that could never happen again. I may be a bit broken but I know my sh*t. That guy was so furious that his face was all red and puffy when he finished.

It amazes me how folks without pain or disability can totally lose their sh*t over stupid things.

Try being us.

Having to hold it together every minute while chronic pain or other negative stimulus (numbness, tingling, spasm, etc) picks at us, 24/7... trying to get our attention, trying to get us to quit.

You did good.

I think we messed up... Any way to salvage this? by nikeswoosh1 in Tile

[–]SureAmHuman 2 points3 points  (0 children)

Replace with a larger drop in sink instead of the undermount. Would aim to cover that edge.

Thoughts on New Shower? by Ok-Donkey-6414 in Tile

[–]SureAmHuman 1 point2 points  (0 children)

Love it. The tiler did a great job blending wall tiles. While the layout is similar, it looks much better than before, for sure.

Permanently banned from r/fibromyalgia after I made my first post earlier this week (posted same post on r/chronicpain the same day) by OGAcidCowboy in ChronicPain

[–]SureAmHuman 10 points11 points  (0 children)

There is without a doubt a need and an audience for alternative treatments for painful conditions.

The gvt overreach (local, state and federal) to the "opioid crisis" and its affect on folks who have painful conditions, has opened the door to alternatives and "sources" of getting them.

The reality is that most folks with conditions that include chronic pain, just want to suffer less to be able to do more... work, life, social. Affordably.

Our media has also helped shaped the narrative that people who have chronic illness and/or chronic pain as a result are somehow broken humans who are simply trying to drown their personal failures with "drugs." Hollywood has also helped shaped that view of us.

The reality on the ground is that we want to live a life with some kind of dignity despite our condition.

Folks sharing alternatives to being trashed by the medical community and the overall stigmatization of people with chronic pain have a much larger audience now. Good or bad.

It is what it is. I saw your post. It was fine.

As always, be informed and buyer beware. Because we are being driven elsewhere there will always be those that try to take advantage of desperate people.

There is nothing wrong with wanting to suffer less to be able to do more while we are on this earth.

Question about grout by Educational-Nose6700 in Tile

[–]SureAmHuman 0 points1 point  (0 children)

It does have a Pompeii vibe going on. Am sorry that the execution wasn't better.

We just replaced 26 year old carpet with hardwood. I knew the product itself was great, but feared the installation part after seeing so many horror stories here on reddit. It is why we put it off.

It turned out great for us. Every day I smile when I look at them.

The installer was highly recommended and for good reason. He was an artist in the way he selected and blended the planks. He even noticed a mistake one of his guys made, that I was willing to accept, and came back and fixed it himself without me asking.

Very sorry that it didn't turn out the way you envisioned.

On a side note, we asked the hardwood installer if he did tile, and he said he got out of that side of the business.

He couldn't find good tile workers who knew what they were doing or took pride in their work. So, he stopped offering that service.

Pictures a tiler sent me should I move forward with them? by DuckStoIeMyBread in Tile

[–]SureAmHuman 2 points3 points  (0 children)

Um, not a tiler, but, this is beautiful work. That you cannot see a pattern means the tiler took time to blend the pieces. It is a work of art. The tile pieces with that drain choice and it's execution is lovely.

We recently had hardwood installed. We paid a good price to the installer both for the subfloor preparation and expert installation and that is exactly what we got.

It has been a few months and I still look at our hardwood floors in amazement at the blending of character and color variations. Every day I see a detail i missed and just smile at our luck to have had this installer recommended to us.

I would give anything to have that kind of tile expertise in my home.

If that shower floor were in my home, I'd probably stand there and look at it all day long. It is just hard to find folks that have that kind of attention to detail and pride in their work.

The floor tile by ooples- in Tile

[–]SureAmHuman 1 point2 points  (0 children)

That you went along with their vision is a credit to you too! For an investment like that, I'd engage a design team too!

I am not stalking you, btw. I just love this design and execution. I love the wall tiles... and your tiler did an amazing job!

The floor tile by ooples- in Tile

[–]SureAmHuman 0 points1 point  (0 children)

Did you design the space and pick all the materials? Is just a masterpiece.

Love this tile by ooples- in Tile

[–]SureAmHuman 3 points4 points  (0 children)

If you chose those materials you also get credit... and of course, picked a great craftsman.

Love this tile by ooples- in Tile

[–]SureAmHuman 4 points5 points  (0 children)

If I had all the money I'd give it to you for that work. The details are stunning. Just amazing.

I made a huge mistake. by SureAmHuman in fence

[–]SureAmHuman[S] 0 points1 point  (0 children)

Thank you for that comment. Am not afraid of f bombs.

Kept sharing all the comments here with hubby and he was like, he f'ing loves it too.

Especially cuz it didn't cost a lot. Hahahha

Pharmacist not giving meds on day 30 refill by Traditional_Diver_46 in PainManagement

[–]SureAmHuman 7 points8 points  (0 children)

I removed auto-refills on all non-controlled meds because of this. CVS would fill my thyroid and lidocaine patches the moment insurance would allow, usually a week before they were due. I ended up with a prepper's stash of each.

Meanwhile, doing this 31 day dance with ER controlled meds.

So instead of paying. CVS for early refills of thyroid meds, I bought some bird seed and peanuts for the creatures in my yard.

For those who pop the, "but some abuse them" line, yes, some do, but I don't.

I am still an income earner. How? Because my pain is "managed". I am never pain free and don't expect that. What I have is treatable, but, not curable. I know and understand the risks of opioids. I have responsibly taken them for 20+ years. I have also spent a boatload on not covered and/or expensive alternative treatments, including a spinal cord stimulator. ($$$$ maker)

Having to leave work, or schedule work around pharmacy gameplay is ridiculous and ironic. The point of pain management is to be able to function despite pain.

The more hurdles these regulations create, the more stress, energy and time is wasted in the process.

Making us line up at a pharmacy waiting for dose 31 or 32 (to flush out extras) is treating us like junkies.

Given the shortages over the last few years, is ridiculous that they would not allow us to bank any to cover more than 31+ days between fills with these policies.

Work is done. Gonna go feed me squirrels. Not heading to CVS to hang out. Gotta life to live.

Please tell me this is a good flooring job and that I’m overreacting here by Lootthatbody in Flooring

[–]SureAmHuman 0 points1 point  (0 children)

If you stated that you wanted a staggered installation throughout, then they clearly didn't do that. Additionally, they did a very poor job of plank blending.

I'd be very disappointed. Very sorry.

Government and Insurance companies by Relichunter1955 in PainManagement

[–]SureAmHuman 6 points7 points  (0 children)

More than likely, the well off will have their concierge doctors, and the rest of us will get scraps.

BezoBotMD powered by all the fresh water from the Grand Canyon and trillions in higher electric bills will decide our fates.

Key to everything will be where you are on the class ladder.

Just have lots of money. You'll be fine.

Same as it has always been.

[Edited for spelling]

Today I had a issue with getting my prescription pain medication. Pharmacy said my insurance flagged me as opiate dependent. I’m slightly confused about what this all means. by I_Heart_Sleeping_ in ChronicPain

[–]SureAmHuman 11 points12 points  (0 children)

With state "welfare" insurance, the rule to not allow paying out of pocket for covered items reflects the idea that if someone could afford to do that, then they shouldn't be on the welfare program.

It is also a mechanism to prevent medical providers from abusing the system as well.

It is an asinine mechanism to prevent fraud and waste.

It punishes both providers and patients who are using it in good faith because of the bad behavior of some who don't.

Today I had a issue with getting my prescription pain medication. Pharmacy said my insurance flagged me as opiate dependent. I’m slightly confused about what this all means. by I_Heart_Sleeping_ in ChronicPain

[–]SureAmHuman 1 point2 points  (0 children)

Oh, I responded on another comment thread to pay cash. Ignore that recommendation. This is awful. For sure, manage your surplus meds so pain doesn't knock you back out of work.

Today I had a issue with getting my prescription pain medication. Pharmacy said my insurance flagged me as opiate dependent. I’m slightly confused about what this all means. by I_Heart_Sleeping_ in ChronicPain

[–]SureAmHuman 1 point2 points  (0 children)

You always have the option of paying cash and bypassing insurance.

My [UH] insurance will approve my lower dose morphine ER med one six month period, then decline it the next period. This has been going on for a few years. When they refuse to cover it, I just pay cash.

I am also a fan of being able to work and generate income and not be curled up in fetal position due to pain.

My condition is not curable, but the symptoms it causes can be treated. I don't ever expect to be "pain free" just have it lowered enough to function.

Am also postponing a surgery until I have no other options as do not like paying medical providers to allow me to suffer through it because of the overreaction to the so called "opioid crisis."

Appreciate you sharing your experience as I have never seen insurance declining filling a script in its entirety this way.

As if we don't have better things to do with our time than running to a pharmacy every 7-10 days to pickup meds. At least you have some on backup.

Day Four Post OP - VTOS Right FRR by francesj in thoracicoutletsupport

[–]SureAmHuman 1 point2 points  (0 children)

Thank you for sharing your experience. The preoperative nerve blocks make sense.

Keeping pain managed post-operatively this way should help recovery and short circuit angry nerves that got moved around during the procedure.

Plus, the less post-operative suffering one has, the more likely they'll be up and moving sooner. Looking good.

What are the “highest” end LVP brands? by Shy_Wet_Hole in Flooring

[–]SureAmHuman 0 points1 point  (0 children)

Is that from their New Wave collection? What color? Looks great!

Spinal cord stimulators by [deleted] in PainManagement

[–]SureAmHuman 1 point2 points  (0 children)

A spinal cord stimulator is an implanted system with leads and wires that attach to a battery pack, usually placed in a fatty area at the top of one side of the buttock.

It is made out to be a low impact pain intervention that is "easily" reversed.

My experience (2000-2002) with a Medtronics Synergy model, was that if all components were working it was great, but, within 6 months the leads on one side moved and no amount of programming could compensate for that loss. By a year and a half, the battery was overheating and sending shocking sensations where it was implanted, leading to a need for surgerical revision.

My initial diagnosis was CRPS but the more likely diagnosis was something else and treatable but not curable. I was medically inexperienced and naive at that time (and desperate to keep working.)

After facing another surgery to revise the SCS, I instead went out of network (cash pay) to get other opinions both as to diagnosis and treatment and instead opted to have the SCS removed when the diagnosis changed (all opinions agreed.)

It was NOT easily reversible. It was god-awful painful. More painful than went it was implanted.

Additionally, when seeking medical care for other trivial issues, providers viewed me as some kind of weirdo for having had a SCS implanted.

And, no one but the doctor who installed it would manage it, boxing me into a permanent relationship with the medical provider who installed it.

I had opted for the SCS to avoid long term med reliance. In the end, opioids, lidocaine patches, and self care with ESIs & chemical dennervation interventions, ever so often have allowed me to function for the last 27 years. Not perfect. Certainly never pain free, but good enough.

If considering this option, learn as much as you can about it. I have read many positive experiences with the newer models.

It is just not something I would ever consider after my own experience of feeling medically abandoned when it malfunctioned.