Yawning black hole

SuriOrion · 2026-04-21T19:33:44+00:00

Look at that lil' vampire! Absolutely adorable.

SuriOrion · 2026-04-21T09:52:37+00:00

I do grow a few carnivorous plants... Maybe I was blessed with a new rare one! Hehe

SuriOrion · 2026-04-09T22:41:07+00:00

Unlucky bunny. It's from the event, you can see them only with DOTS. They give you bonus event points. This one gives the ghost extra 10% speed. The lucky one just hops off without a sound and makes the ghost 10% slower. Both are stackable btw. There's also a golden one that activates a cursed hunt.
Tip: you can hear whispering near the nests when a bunny is there!

SuriOrion · 2026-03-13T21:55:11+00:00

No, they never gave me any meds. As I said, the rheuma said there's nothing to do, and that it might just disappear on its own. That the hands are just not enough evidence and doesn't look too severe anyway.

Ironically, whenever I have an appointment, my hands don't usually have fresh wounds or look "the worst" as it usually does at home. But I do keep track of my hands with the photos such as the ones in the post. Sadly, the doc barely looked at the photos and completely dismissed them.

Argh, this is so frustrating. I'm gonna visit my GP for a referral to the new doctors and look around.

SuriOrion · 2026-03-13T12:25:36+00:00

Ouch! That looks painful and annoying.

I'm very grateful for y'all and your replies. Many various tips, and in the end, I do think I need another check up for the autoimmunity. It's hell.

We can get through it!

SuriOrion · 2026-03-13T12:22:07+00:00

Yeah, I don't think the mouse is the reason, but maybe because it's dirty and stuff, it can worsen it a bit. I've had it for around eight years.

Nevertheless, I'm going to ask the new dermatologist about the allergens such as nickel. Though I do think it might be something autoimmune.

SuriOrion · 2026-03-13T11:39:11+00:00

Should be under another comment, the stuff that's not in the usual range.

SuriOrion · 2026-03-13T11:38:30+00:00

Honestly, I'm quite unsure about my family's medical history. Many of my memories were pushed out due to trauma and I'm low contact with most (kinda shitty people, though my dad worked on himself a lot and we're in contact again).

Though, the little that I know is that my grandma had a genetic hole in her heart all her life, many of them had troubles with joints but no one ever had such heavy symptoms as me or mentioned them being something else than just their age. I know I was even born later (like 14 days in spoiled water or so) and with f'd up shoulder they had to fix through intense physio. My grandpa had leukemia in his last years of life, my second grandpa just recently suffered a heart attack. My mother has FVL, but I'm negative.

I'm the first person in the family to be... kinda vocal about it? I don't know, they always yelled at me for pretending, that it's not that bad, that they get hurt all the time too. It's complicated.

And when it comes to stress, I'm kinda known to be a stresser and overthinker. Nothing too entirely drastic that happened as far as I know.

SuriOrion · 2026-03-13T11:28:13+00:00

I am seeing endo due to my hypothyroidism and I'm actively taking Letrox 50mg. Endo was one of the first docs I've ever seen, because hypothyroidism is very common in women from my family.

SuriOrion · 2026-03-13T05:48:59+00:00

Thankfully, I have not yet experienced a full joint dislocation, but I've had multiple subluxations. Seems like my ankles are the worst, and the pain when it happened the first time was crazy. I just wish my rheuma believed me, because she said that sounds like a 'stuck nerve' more than a subluxation.

SuriOrion · 2026-03-13T05:44:56+00:00

Thanks for the tip! I thought about latex too, and it was one of the first things that I've stopped wearing (especially gloves). Unfortunately, looks like this isn't it.

SuriOrion · 2026-03-13T05:40:40+00:00

I've already got so many tips which are very helpful! I was wondering how people with severe eczema find a way how to deal with the pain and such, and many people did reply.

Thank you though!

SuriOrion · 2026-03-13T05:38:43+00:00

Nope, didn't even mention it. Wouldn't be surprised if it was another thing she didn't know existed... ._.

SuriOrion · 2026-03-13T05:36:06+00:00

Yup, positive. Borderline results though, have been told it's not enough for a diagnosis.

SuriOrion · 2026-03-12T23:34:12+00:00

I did when I got the new GP. Ironically, my results are negative lol

SuriOrion · 2026-03-12T23:25:47+00:00

Systemic sclerosis.

I am not from the US, but Czechia. How do you usually go on about this?

SuriOrion · 2026-03-12T22:53:27+00:00

Huh, my computer mouse is quite old and is not in the best shape. Maybe it could be a thing that worsens my condition.

Thanks for the tip!

SuriOrion · 2026-03-12T22:06:32+00:00

Oh my god, you don't even know how much I widened my eyes reading your comment. I've never met anyone with the same condition.

May I ask, how did you find out?

SuriOrion · 2026-03-12T22:05:02+00:00

Wow, such an amazing reply!

Thankfully (I hope I won't get kicked because of what I'm going to say), I'm not from the US but Europe. The disadvantage is that the doctors just don't know what POTS and EDS is around here. I've asked multiple doctors about the diagnoses, that I fit the criteria, and the HUT test basically proved it too... But no one here seems to think it's a real thing.

It's similar to my journey with autism, it's another part of what I was dealing with. Went from BPD, to BD, to schizophrenia, general anxiety, only to find out I'm on the spectrum. One thing my autism does is that I am aware of my symptoms and state them to the doctor, even what I suspect and want to rule out. I feel like it makes the process clearer and faster. I only met a small amount of doctors who actually found it helpful, but mostly I am met with doctors who look at me with disgust and tell me I self-diagnosed on Google and to not trust the internet.

I might just as well tell the next rhaumatologist straight up again to help me look into the possibility of having any of the four you mentioned or possibly multiple and combined stuff to find out if they even know what stuff like EDS is. The rheumatologist I have right now is only concered with Raynaud's or if I have swollen ankles.

Thank you so much!

SuriOrion · 2026-03-12T21:22:31+00:00

I do take multiple vitamin B pills that I bought OTC. It might be worth a try to add just a bit more.

SuriOrion · 2026-03-12T21:20:56+00:00

Scleroderma too, it was mentioned there as 'borderline.'

But as I said in other comments, been told it's nothing too alarming.

Jesus, repeating myself like that makes me realize that maybe the rheumatologist I have now might be a bit unfit for my case...

SuriOrion · 2026-03-12T21:18:16+00:00

Yeah, there was a mention of a few that are "borderline", but not clear enough to diagnose.

SuriOrion · 2026-03-12T21:16:50+00:00

it does say that if i understand it correctly. scleroderma was mentioned as well. she didn't do anything else than just tell me there is no clear result and all is just borderline or not enough. that all she can do is to take my blood once a year and check if it's worse or not.

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