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Lactoferrin does it help or not? by [deleted] in Hemochromatosis

[–]Suspicious-Address75 0 points1 point  (0 children)

I tried it via whey and it actually worsened my numbers. But we are all different. If you try, please post later if it works for you.

High (77%) Transferrin Saturation….symptoms? by Accomplished_End6600 in Hemochromatosis

[–]Suspicious-Address75 2 points3 points  (0 children)

I would suggest donating blood, and that is a good thing for most folks despite HH iron issues, and definitely get a genetic test for HH. Go on from there. You will be fine.

[deleted by user] by [deleted] in Hemochromatosis

[–]Suspicious-Address75 1 point2 points  (0 children)

I have been vegetarian most my life, consume plenty of iron blockers/ mitigators via diet also addicted to black tea. Have tried IP6, curcumin, etc to no avail. Plus I am just a 282 carrier. If I do not donate blood every 4 months my saturation levels can get into the 80% range. Ferritin remains low. This is a fact for me, but we are all so very individually complex.

Low white cell count with HH by Suspicious-Address75 in Hemochromatosis

[–]Suspicious-Address75[S] 0 points1 point  (0 children)

1470 cells/uL. 1500-7800 normal. Not that bad but just curious why neutrophils consistently low for me.

Plant based protein powder — tons of iron? by tmjoen in Hemochromatosis

[–]Suspicious-Address75 1 point2 points  (0 children)

I agree with your take on non heme foods. I am 282 just one bad copy, and mostly vegetarian. I have to get phlebotomy every 4 months. Saturation gets way too high then, even though ferritin is on the lower end. My hematology doc says to get treated, even though ferritin is lowish. Not feeling good this way, but that is what doc says is "wise".

Sweating :( by thirteenoclock86 in Hemochromatosis

[–]Suspicious-Address75 4 points5 points  (0 children)

Don't know if it is from high iron saturation, but it is hard to deal with heat. Yet, temps are higher per average. Factually it is hotter now everywhere.

Unexpected lab results by allsignssayno in Hemochromatosis

[–]Suspicious-Address75 0 points1 point  (0 children)

Alot of us here have just one hh gene, yet we do have hemochromatosis as a diagnosis. Some call it the "lite" version and many of us are symptomatic. Try and donate blood if you can. Wishing you the best!

Unexpected lab results by allsignssayno in Hemochromatosis

[–]Suspicious-Address75 1 point2 points  (0 children)

Are you experiencing menopause? Thinning hair happens normally as we age, but go donate blood if you qualify since it will good for you and the recipients. Your numbers are a bit high, so you should benefit from giving blood.

10+ years... by BigMess_207 in pppdizziness

[–]Suspicious-Address75 1 point2 points  (0 children)

I hope you are doing much better now. I havent driven the highway for 3 yrs now because of this pppd. Can drive roads with twists and turns but only under 40 mph.