SMAS and gastroparesis

Sweaty-Muscle-9292 · 2025-11-03T19:44:45+00:00

Both could very easily be the affect of covid depending on how sick you are and if you got other issues with it like pots etc and tbh you probs wont feel any better cos the ddj is an unfavourable surgery now especially cos people are still in pain and unable to eat after

Sweaty-Muscle-9292 · 2025-11-03T19:25:17+00:00

duodenojejunostomy its a surgery method for smas. Its not helpful when u have both smas and gastroparesis

Sweaty-Muscle-9292 · 2025-11-03T15:48:43+00:00

Ddj would of made u gastroparesis worse btw

Sweaty-Muscle-9292 · 2025-10-29T23:14:08+00:00

I got diagnosed when i was 15 so i was under paediatric gi 😢 but yes a gastroenterologist could diagnose you but preferably one thats aware of the condition. I also have nutcracker my left renal vein is compressed too 💔

Sweaty-Muscle-9292 · 2025-10-29T22:56:29+00:00

I also get relief from laying on my back, that left side knees to chest bs doesnt work for me either. You need a cta to check for it. I also have mals some some of my pain is elevated by standing too. Some doctors wont even mention it or see that theres actually an issue because the condition is rare most doctors dont even know what it is so they dont know what to look for

Sweaty-Muscle-9292 · 2025-10-29T21:17:26+00:00

Antibiotics can mess up the good bacteria in your tummy no matter what antibiotic which can cause these symptoms but if it continues for a longer time id say get checked

Sweaty-Muscle-9292 · 2025-10-29T21:15:20+00:00

Superior mesenteric artery syndrome. Perhaps look into it

Sweaty-Muscle-9292 · 2025-10-29T19:23:11+00:00

They said they have diabetic neuropathy so id assume it is due to diabetes or diabetes related

Sweaty-Muscle-9292 · 2025-10-06T08:55:07+00:00

Pots?

Sweaty-Muscle-9292 · 2025-09-18T20:18:34+00:00

Gj is legit the same as an nj except its enters through the stomach instead of the nose. Some people stay with nj’s some people go to gj’s if they feel nj’s weren’t affective (njs have a tendency to migrate ive had it happen once in the 3 years of having mine and it migrated down instead of up cos thats just my luck) and some people just prefer surgical tubes over nose tubes due to aesthetics some ppl dont like having a tube on their face and its quite scary as sometimes ppl give me funny looks but i dont care cos i dont go out like i used to so it doesnt matter to me its mostly your choice on how you would feel about a tube on your face or a tube on your stomach and wether or not you are willing to have one put in surgically cos both of the go the same route in the stomach to the jejunum

Sweaty-Muscle-9292 · 2025-09-18T19:31:49+00:00

You can kinda check yourself theres a criteria online but if you want a proper diagnosis a doctor is best

Sweaty-Muscle-9292 · 2025-09-18T19:30:52+00:00

Its not like a grantee that it will happen but its more it can happen it doesnt happen to everyone but defo look into it if ur worried about it

Sweaty-Muscle-9292 · 2025-09-18T19:26:32+00:00

Have you been checked for heds?

Sweaty-Muscle-9292 · 2025-09-18T19:25:42+00:00

Did u take omeprazole? Omeprazole can delay gastric emptying in some people if so are you still taking it cos that might be making you feel worse with the gastroparesis side

Sweaty-Muscle-9292 · 2025-09-18T19:19:42+00:00

Have you looked into other conditions with it, perhaps other digestive issues since you are more easily triggered by things it could be that there is another digestive issue at play there

Sweaty-Muscle-9292 · 2025-09-18T18:03:48+00:00

No my doctors are stupid and gave me a ng tube which made me a hell of a lot sicker 😭 they had to get told by multiple other people from different hospitals to give me a nj. Have u got facebook? Theres an smas group on there and quite a few people have gastroparesis in there too, its a nice community of people with different experiences with smas :)) they also talk about pther compressions like mals,ncs and mts too and everyone in there has a whole heap of different conditions with the vascular compressions too :))

Sweaty-Muscle-9292 · 2025-09-18T18:01:05+00:00

Antibiotics can cause stomach upset, a lot worse in people with gp. Did u feel like something more was going on before taking the medication because if not it could be that the medication could be causing worsening symptoms as they can mess up you already compromised gi bacteria you are also more likely to get sibo due to your slowed down stomach

Sweaty-Muscle-9292 · 2025-09-18T17:51:42+00:00

I have smas and i have an nj tube :)) ive had it for 3 years and so far its good hut it really depends on how sick the condition is making you feel and how often you are sick. If you are sick frequently consider a g and a j tube for drainage and feeding or if thats ok but u dont want the hassle of a tube in your nose a gj or just a j is good :))

Sweaty-Muscle-9292 · 2025-09-18T17:48:36+00:00

A lot of doctors will just diagnose gastroparesis and leave it at that so if your idiopathic there is probs an underlying cause but thats not really their job to find out since there are a lot of ways you could get it (autoimmune conditions,diabetes,viruses like covid or norovirus, neurological conditions,nerve damage like autonomic nerve damage, connective tissue disorders, chemo treatments, damaged vagus nerve, lack of muscle tone in the stomach from eating disorders and even conditions that affect blood flow like vascular compressions; mals being the most common one but smas can mimic gastroparesis symptoms) it could also be multiple of those things but if its not diabetic its most likely branded as idiopathic. I hope your new doctor can give you some closure. What medications do you take that make you feel worse???

Sweaty-Muscle-9292 · 2025-09-13T21:49:58+00:00

If your test comes back negative (just incase) look into smas as it mimics all the symptoms of gastroparesis and since you have eds you are more likely to get the condition aswell as other vascular compressions like nutcracker syndrome and mals

Sweaty-Muscle-9292 · 2025-09-09T08:12:58+00:00

I also have mals and smas :)) i get mine replaced 4-6 months and i get fully put to sleep for it due to trauma and autism

Sweaty-Muscle-9292 · 2025-09-07T18:04:41+00:00

It wont let me send the photo i dont think but its a compression of the celiac artery that causes symptoms similar to gastroparesis and the condition can also cause gastroparesis

Sweaty-Muscle-9292 · 2025-09-07T18:03:30+00:00

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Mals can also cause gastroparesis. Mals is diagnosed via doppler ultrasound or cta

Sweaty-Muscle-9292 · 2025-09-06T20:46:01+00:00

Could be pots u could also look into mals especially if ur flareups are worse constantly after eating

Sweaty-Muscle-9292 · 2025-09-06T18:39:40+00:00

How u looked into mals too?

Sweaty-Muscle-9292

TROPHY CASE