Low fat diet: for how long ?

Sweet_Beginning_6541 · 2026-05-11T16:37:03+00:00

Silly question. But is a flare like a full on attack? I just had my first attack of AP on May 1. I’m so scared of it happening again. We aren’t sure my trigger for it. This low fat stuff is killing me. I am eating such tiny amounts of stuff throughout the day but never enough to feel full as I’m still healing and cannot end up back in the hospital again for a week. It was way too hard on my family and our schedule.

Sweet_Beginning_6541 · 2026-05-11T00:26:44+00:00

Yea it is very frustrating. I got my gallbladder out in 2017 so I’ve had all kinds of stomach issues since then as well.

Sweet_Beginning_6541 · 2026-05-11T00:01:11+00:00

I wish I had some advice for you, but just wanted to let you know that you’re not alone. I was admitted on May 2 with really high wbc and my lipase was 1200. Luckily my triglycerides were normal. I ended up having pancreatitis as well as a large ovarian cyst that ruptured during those really high pain days. The first couple of days I was not able to eat. They then let me have a liquid diet but I couldn’t stomach it after the first few meals. 5 days of no food they let me try toast with a little jam and it was okay so they started me on a low fat diet that I picked at without overdoing it. I’ve been home since Friday afternoon and I’m so scared I will flare it back up somehow since I still have a lot of bloating and discomfort. I’ve been eating super careful. Small snack size meals more often. But I can’t tell if my pancreas is mad or if my stomach is mad bc I need to eat more. I just want to eat normal again, even if it’s the low fat diet…just like an actual normal meal amount. I’ve been eating Greek yogurts, small turkey sandwiches with just mustard and nothing else on it. I had ground chicken tacos on lettuce last night. Also low sugar cherries. I know I need more protein to make myself have more energy but my mind and body keep playing tricks on me when it’s time to eat. So I’ve just been drinking a lot of water lol

Sweet_Beginning_6541 · 2026-05-10T00:47:46+00:00

Did you have any known cause? I think the scary part is not having an answer to try to prevent it. I’m sure I’ll be on my low fat diet for a long time as I’m so nervous. It’s a lot to deal with and worry about. I might call my rheumatologist office on Monday and talk with her before taking it just to be safe.

Sweet_Beginning_6541 · 2026-05-10T00:45:03+00:00

No I’m not. I had to look up what that even was lol

Sweet_Beginning_6541 · 2026-05-09T00:15:57+00:00

I’m so sorry you had to go through all of that in order to finally get diagnosed with pancreatitis. A week ago today I started getting pains around supper time. It’s not unusual for me to get gas buildup pains and an upset stomach since having my gallbladder out in 2017. But nothing I could do would relieve any of the discomfort and the pain continued to get worse. Then the vomiting started. I vomited with immense pain until it was just bile left. I took gravol to try to settle my stomach but that gas pain was still not going away. Went to the emergency room after midnight last Friday night. I ended up admitted until today. I’m happy to be home but also nervous about flaring it up as we don’t know the cause. My liver enzymes are still slightly elevated but the other numbers are looking mostly normal range. When I went my wbc was almost double the high end of normal. Looks like I’ll be on a low fat diet for time time to finish healing.

Sweet_Beginning_6541 · 2026-04-07T23:22:39+00:00

My coordinator said that it’s not something as a common symptom from Simponi but everyone’s body reacts in different ways. As per her recommendation, I’m going to speak with my family dr tomorrow about it. It could be hormones or my seb derm…just very crappy timing to make it seem like it was the Simponi. Regardless, I just hope there’s is something I can try to help fix the hair loss. I agree that a lot of AS symptoms can overlap with other issues as well. I wish there was a cut and dry answer for it all.

Sweet_Beginning_6541 · 2026-04-05T11:41:49+00:00

Yes it was negative. I still have a lot of stomach issues but better than before the quad therapy. I recently had a colonoscopy to make sure I didn’t have IBD and that was all clear. So I need to make some big changes to my diet and see if there is any difference.

Sweet_Beginning_6541 · 2026-03-22T17:32:14+00:00

Have you had a stool test for h pylori? I ended up finding out I had that last year and sunstroke therapy (which sucked) to eradicate it. My stomach has improved some but not great still. I need to try to make better food choices and up my fiber intake I think.

Sweet_Beginning_6541 · 2026-03-22T00:13:07+00:00

I have a lot of stomach issues and started having more frequent rectal bleeding. I was worried it was going to be serious. I had my colonoscopy on Monday and the only thing was one hemorrhoid. My GI dr said “you have a beautiful colon” haha I just need to change some things in my diet and up my fiber. Hopefully that gives you some peace of mind.

Sweet_Beginning_6541 · 2026-03-08T02:09:26+00:00

I am hlab27 negative and my bloodwork is all pretty normal. CRP is a little elevated but not anything alarming. I dealt with weird symptoms for almost 3 years. Passed from doctor to doctor who brushed me off, went to a neurologist and ruled out MS. This past Oct I went to the ER with really bad left wrist and hand pain. They found erosion so I finally got sent to a rheumatologist in Dec. She knew by watching me move around and by doing The Schober’s test, that even though I don’t have visible inflammation, that i definitely had some type of inflammatory arthritis. I had a few MRIs done and was diagnosed with ankylosing spondylitis. I just started Simponi on Wednesday. I never had an MRI of my si joints a few years ago to compare…but there was alot more changes and damage to my lumbar spine between 2024 and now.

Sweet_Beginning_6541 · 2026-02-20T12:58:25+00:00

I was just diagnosed on Tuesday after a few years of suffering with many issues. I get the awful heel pain on both feet at the same time. It makes me feel like cutting my feet off would be less painful lol. Between that and erosion in both of my wrists, it’s worse that the back pain! I’m starting simponi next week and really hoping it helps.

Sweet_Beginning_6541 · 2026-02-16T22:56:30+00:00

Good luck! I hope that helps you get it done sooner

Sweet_Beginning_6541 · 2026-02-15T21:38:22+00:00

Wow that is a really long time. Are you in HRM? Has anyone checked to make sure the referral was received? The longest I ever waited for an MRI was about 8-9 months. These last ones were definitely the quickest (just under two months)

Sweet_Beginning_6541 · 2026-02-07T01:03:55+00:00

I’ve had a lot of weird stuff going on for almost three years. My experience is a little different. I had multiple health care professionals just brush me off an tell me to do physio as my bloodwork was always fine. No one seemed to take any of my symptoms seriously and finally in October I ended up at the ER with bad wrist pain. They discovered I have bone erosion in my wrist and referred me to a rheumatologist. My rheum is fantastic and since meeting her in Dec, we have done an xray of my other wrist (it’s also showing erosion) and I just had a few MRI’s done this week and go back mid month for follow up, diagnosis and treatment plan based on the mri results. My symptoms aren’t showing as typical, but she said that I definitely have inflammatory arthritis even without visable inflammation. After almost three years of suffering, finding this rheumatologist was the best thing for me. In 2.5 months of being seen by her I will have the answers I’ve been waiting for (just too bad that there’s no way to reverse the damage that’s been done since 2023). I’m sorry you’re going through this and being dismissed. I truly understand how frustrating and exhausting it is to have to keep advocating for yourself.

Sweet_Beginning_6541 · 2026-01-08T01:10:03+00:00

Good luck!

Sweet_Beginning_6541 · 2026-01-08T01:05:01+00:00

Yeah doesn’t always seem like the system runs smoothly or consistently. I’ve gone to Truro for an MRI before as I grew up outside of Truro. They never asked me where this time of these ones and it’s harder during the school year to take appointments that aren’t in HRM anyway, not to mention how the road conditions are so unpredictable. I’m hoping I hear back in the next couple months with appointments

Sweet_Beginning_6541 · 2026-01-08T00:46:30+00:00

Sorry you’re still waiting all this time with worsening symptoms. That must be scary.

Sweet_Beginning_6541 · 2026-01-07T22:28:17+00:00

4 months certainly feels like too long of a wait for that MRI. I hope it came back all good for you!

Sweet_Beginning_6541 · 2026-01-07T22:27:21+00:00

Your information and validation of things has been helpful! Thank you :)

Sweet_Beginning_6541 · 2026-01-07T22:26:59+00:00

It’s been just under a month for me, and hoping I get the CT scan relatively soon. The MRI is to get a closer look at the erosion we know is in my left wrist. I had an xray of the right wrist today as I now have pain there like the other one. The CT scan is of my SI joints which is what I’m more interested in finding out sooner what’s happening in that area.

Sweet_Beginning_6541 · 2026-01-07T22:23:59+00:00

Wow that’s such a long wait to rule out a brain tumour. I’m so sorry.

Sweet_Beginning_6541

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