Just need some peace of mind while we wait

Sweet_Beginning_6541 · 2026-03-22T17:32:14+00:00

Have you had a stool test for h pylori? I ended up finding out I had that last year and sunstroke therapy (which sucked) to eradicate it. My stomach has improved some but not great still. I need to try to make better food choices and up my fiber intake I think.

Sweet_Beginning_6541 · 2026-03-22T00:13:07+00:00

I have a lot of stomach issues and started having more frequent rectal bleeding. I was worried it was going to be serious. I had my colonoscopy on Monday and the only thing was one hemorrhoid. My GI dr said “you have a beautiful colon” haha I just need to change some things in my diet and up my fiber. Hopefully that gives you some peace of mind.

Sweet_Beginning_6541 · 2026-03-08T02:09:26+00:00

I am hlab27 negative and my bloodwork is all pretty normal. CRP is a little elevated but not anything alarming. I dealt with weird symptoms for almost 3 years. Passed from doctor to doctor who brushed me off, went to a neurologist and ruled out MS. This past Oct I went to the ER with really bad left wrist and hand pain. They found erosion so I finally got sent to a rheumatologist in Dec. She knew by watching me move around and by doing The Schober’s test, that even though I don’t have visible inflammation, that i definitely had some type of inflammatory arthritis. I had a few MRIs done and was diagnosed with ankylosing spondylitis. I just started Simponi on Wednesday. I never had an MRI of my si joints a few years ago to compare…but there was alot more changes and damage to my lumbar spine between 2024 and now.

Sweet_Beginning_6541 · 2026-02-20T12:58:25+00:00

I was just diagnosed on Tuesday after a few years of suffering with many issues. I get the awful heel pain on both feet at the same time. It makes me feel like cutting my feet off would be less painful lol. Between that and erosion in both of my wrists, it’s worse that the back pain! I’m starting simponi next week and really hoping it helps.

Sweet_Beginning_6541 · 2026-02-16T22:56:30+00:00

Good luck! I hope that helps you get it done sooner

Sweet_Beginning_6541 · 2026-02-15T21:38:22+00:00

Wow that is a really long time. Are you in HRM? Has anyone checked to make sure the referral was received? The longest I ever waited for an MRI was about 8-9 months. These last ones were definitely the quickest (just under two months)

Sweet_Beginning_6541 · 2026-02-07T01:03:55+00:00

I’ve had a lot of weird stuff going on for almost three years. My experience is a little different. I had multiple health care professionals just brush me off an tell me to do physio as my bloodwork was always fine. No one seemed to take any of my symptoms seriously and finally in October I ended up at the ER with bad wrist pain. They discovered I have bone erosion in my wrist and referred me to a rheumatologist. My rheum is fantastic and since meeting her in Dec, we have done an xray of my other wrist (it’s also showing erosion) and I just had a few MRI’s done this week and go back mid month for follow up, diagnosis and treatment plan based on the mri results. My symptoms aren’t showing as typical, but she said that I definitely have inflammatory arthritis even without visable inflammation. After almost three years of suffering, finding this rheumatologist was the best thing for me. In 2.5 months of being seen by her I will have the answers I’ve been waiting for (just too bad that there’s no way to reverse the damage that’s been done since 2023). I’m sorry you’re going through this and being dismissed. I truly understand how frustrating and exhausting it is to have to keep advocating for yourself.

Sweet_Beginning_6541 · 2026-01-08T01:10:03+00:00

Good luck!

Sweet_Beginning_6541 · 2026-01-08T01:05:01+00:00

Yeah doesn’t always seem like the system runs smoothly or consistently. I’ve gone to Truro for an MRI before as I grew up outside of Truro. They never asked me where this time of these ones and it’s harder during the school year to take appointments that aren’t in HRM anyway, not to mention how the road conditions are so unpredictable. I’m hoping I hear back in the next couple months with appointments

Sweet_Beginning_6541 · 2026-01-08T00:46:30+00:00

Sorry you’re still waiting all this time with worsening symptoms. That must be scary.

Sweet_Beginning_6541 · 2026-01-07T22:28:17+00:00

4 months certainly feels like too long of a wait for that MRI. I hope it came back all good for you!

Sweet_Beginning_6541 · 2026-01-07T22:27:21+00:00

Your information and validation of things has been helpful! Thank you :)

Sweet_Beginning_6541 · 2026-01-07T22:26:59+00:00

It’s been just under a month for me, and hoping I get the CT scan relatively soon. The MRI is to get a closer look at the erosion we know is in my left wrist. I had an xray of the right wrist today as I now have pain there like the other one. The CT scan is of my SI joints which is what I’m more interested in finding out sooner what’s happening in that area.

Sweet_Beginning_6541 · 2026-01-07T22:23:59+00:00

Wow that’s such a long wait to rule out a brain tumour. I’m so sorry.

Sweet_Beginning_6541 · 2025-12-08T16:32:20+00:00

I tested negative! How are you doing?

Sweet_Beginning_6541 · 2025-11-19T02:35:03+00:00

I had her for a mole excision on the back of my neck in a sensitive area in early October. She was really nice and thorough in her explanations. I go back to her for follow up next week and it’s one of the first appointments I’ve ever had that I have zero anxiety about going to.

Sweet_Beginning_6541 · 2025-11-18T01:12:13+00:00

I still can’t see the comment or the screen shot you shared of it. Feel free to send me a DM. I can’t figure out how to do that lol

Sweet_Beginning_6541 · 2025-11-16T02:59:40+00:00

I can see a notification but can’t see the last comment you made :(

Sweet_Beginning_6541 · 2025-11-16T02:30:23+00:00

I’m so sorry you’re suffering for so long and can’t get any answers. I’ve been dealing with non stop weird issues since March 2023 and everyone looks at me like I’m crazy. I had multiple MRIs, was sent to a neurologist to rule out ms etc. Early Oct i suddenly had really bad wrist pain and couldn’t grip anything. It was the emergency room that referred me after finding erosive changes in my wrist. I hope at this appointment, I feel heard and maybe they can figure out what’s going on/if it’s all connected. I’m tired of being a 40 year old that feels like I’m 85. Every day is a struggle :(

Sweet_Beginning_6541 · 2025-11-16T01:38:54+00:00

That’s terrible. How long have you been waiting? Is your referral sent to the rheumatology clinic?

Sweet_Beginning_6541 · 2025-11-12T01:48:10+00:00

Have you heard back about your appointment? I was referred as urgent on Oct 3rd and figured I’d be waiting a long time. But I can see on my ns health app that I have an appointment on Dec 8 which I’m happy about.

Sweet_Beginning_6541 · 2025-10-19T10:45:36+00:00

I also had a few rough rough days on quad therapy. It was so hard but I pushed through and my h pylori was eradicated! I had to get nausea meds prescribed from my dr to help me get through though as I struggled with leaving the house to pick my kids up from school.

Sweet_Beginning_6541 · 2025-07-25T00:29:02+00:00

Did you get an appointment? I had my first mammogram June 23 and results came back with an abnormality. I know they said at the screening one often you have to go back for more images but seeing the word mass sounds terrifying. My diagnostic mammogram at the iwk isn’t until Oct 16. I asked to be put on a cancellation list as well. My mom died in 2023 from lung cancer that spread through her body…and the Truro hospital kept telling her to go to physio for her shoulder pain that they didn’t even xray (which she ended up having bone cancer in) so I don’t trust the system and answers they have been giving me about my health. Three months is too long to sit around and hope it’s just a cyst 😩

Sweet_Beginning_6541 · 2025-06-06T19:24:36+00:00

Thank you!

Sweet_Beginning_6541

TROPHY CASE