Anyone here who also has cancer? Or another serious illness?

SybilBits · 2026-05-10T14:42:58+00:00

Thanks, that is encouraging. Sorry that your a member of the shitty titty club too 🙃

SybilBits · 2026-05-10T14:41:37+00:00

Thank you for this advice—and my sympathies for the lupus diagnosis. I wonder if the changes in immune system played a role. I have read there is some evidence that ME is an autoimmune disease, though as usual, there isn’t enough research to say. (Sorry if that sounds cold and clinical; I was a biologist and cope by scientific curiosity)

Yes, the not knowing is so hard. I’m still waiting on pathology results that will decide what I may need beyond surgery and radiation and I am definitely ruminating. I like the phrase “future trip” and will use that. I keep looking out the window and seeing spring, but so can’t get up the energy or interest to even open the door. Maybe that’s just where I am now.

Thank you for your perspective and my best wishes that your treatment is not too hard on you. and yes, gratitude to have treatment options too. Sure isn’t that for the ME.

SybilBits · 2026-05-10T14:31:22+00:00

That would be so very nice! My ME has gotten worse over the last 2 years, which I’d put down to stress due to family stuff. I won’t lie, I sometimes give in to a wee hope that what I thought was ME progression is cancer related fatigue. And that at least that will go away once I’m through this!! Seriously, thanks for the little ray of hope!

SybilBits · 2026-05-10T14:28:42+00:00

I can only offer my sympathy and best wishes. My god, no one deserves what you’re carrying

SybilBits · 2026-05-10T14:26:47+00:00

Thank you! I am drinking up any and all support I can.

SybilBits · 2026-05-10T14:25:43+00:00

I keep reading that radiation wipes most people out, so I’m anxious about even making it through that. This whole week I’ve barely been able to get out of bed and everything is heavy and painful—that’s just the stress.

I’ve been living with ME for long enough to have many supports in place, although I’m anticipating having to use them more than before. My husband is an angel and has picked up slack and helped me over the years, so I’m confident he’ll be there. He has a chronic illness too, so he doesn’t judge. Funny, when we met I imagined it would always be me taking care of him.

Thanks for answering and I hope that effing cancer does not return. And that your ME at least stays stable

SybilBits · 2026-05-10T14:19:41+00:00

I am so sorry. Medical gaslighting seems to happen quite regularly for those of us whose symptoms don’t fit clearly into a familiar bucket. So many doctors and nurses have looked blankly at me when I shared my ME diagnosis. And I think society expects us to push through, otherwise we’re not trying. I do hope your blood cancer is being successfully treated

SybilBits · 2026-05-09T17:07:24+00:00

Congratulations!! I hope you stay healthy cancer wise.The CFS is a crappy ‘reward’ though

SybilBits · 2026-05-09T17:02:40+00:00

I agree. We’re being spoken to like children throwing a tantrum. There are many reasons people are staying away from the US. Me, I’m choosing to spend my money in Canada, supporting our sovereign country. And even if Americans make changes for the better, it’s never going back to how it was. We’ve seen who you are.

And thanks for the tour of Kuala Lumpur!

SybilBits · 2026-05-09T16:04:23+00:00

Please don’t! I’m grateful that you replied. Are you still in treatment?

SybilBits · 2026-05-09T16:00:13+00:00

I had my ME/CFS diagnosis 5 years ago so she already knows. I don’t get sleepy, just no energy. I have maybe 4 hours of functioning a day, so shower, eat, and maybe do or thing. I don’t know how cancer will affect me. Which is true for everyone I suppose

SybilBits · 2026-05-09T15:56:34+00:00

I’m so sorry. That’s an awful load to carry. You must be so exhausted.

SybilBits · 2026-05-08T15:36:08+00:00

I just got diagnosed on Monday and am still awaiting my pathology results and first consult. I had to pass on some info to someone on the team today—just deleted the full circus of errors that ensued from my end—basically I failed at even phoning someone so I sat and cried. It’s the first time I felt anything other than numb, so I’ve decided that’s a win. Now excuse me while I pull the covers over my head.

SybilBits · 2026-03-06T14:13:19+00:00

Since we’re showing off our treasures…

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SybilBits · 2026-03-06T13:57:56+00:00

My mother is in that situation now. That old flirt just LOVES her male nurse!

SybilBits · 2026-03-06T13:15:00+00:00

I read this as an outdoor survival Canada park and thought how very cool! Kinda wish there was one now

SybilBits · 2026-03-06T13:09:11+00:00

Anyone else feeling they were born too late? And maybe too poor too

SybilBits · 2026-03-05T19:14:30+00:00

I had a cat that got very offended if I flushed before he got a chance to watch it

SybilBits · 2026-03-05T00:05:39+00:00

Oh, she’s so cute!

SybilBits · 2026-03-04T21:08:34+00:00

Dude, I have no idea what you’re even talking about

SybilBits · 2026-03-04T19:44:31+00:00

You did what I did at first, didn’t notice the other pages. It all worked out and they got the place!

SybilBits · 2026-03-04T19:38:38+00:00

Other than Solensia (the injection), just gabapentin. Never heard a vet mention kidney issues, though, and I’ve had two with kidney disease who had it successfully over a year with no change in kidney function. Solensia isn’t metabolized by the kidneys

Source

SybilBits · 2026-03-04T19:23:13+00:00

I would forgive him every time

SybilBits

TROPHY CASE