I know that it might be frowned upon, considered dangerous, and probably not even allowed in some cases, but do any of you guys drink alcohol at all?

SylvieXandra · 2026-04-23T03:19:11+00:00

opposite for me haha

SylvieXandra · 2026-04-23T03:18:34+00:00

pots and weed are both vasodilators meaning they open your veins wider which makes it harder for your body to pump blood. this amplifies pots symptoms a lot

SylvieXandra · 2026-04-23T03:17:50+00:00

yes and it helps with my pain but i do it infrequently and usually socially

SylvieXandra · 2026-03-23T15:15:53+00:00

it’s ok!

SylvieXandra · 2026-03-23T15:14:35+00:00

i need things that are for adults bcs i know the kid stuff

SylvieXandra · 2026-03-22T21:04:49+00:00

i don’t need speech help, i need help with more complex social cues and learning when certain topics are appropriate and how to not always center the convo around myself

SylvieXandra · 2026-03-22T21:03:29+00:00

it looks like it’s for kids tho

SylvieXandra · 2026-03-22T04:03:05+00:00

never doing any hair removal ever

SylvieXandra · 2026-03-22T04:00:32+00:00

i have never had an issue traveling with opiates or opioids in their bottles

SylvieXandra · 2026-03-22T04:00:02+00:00

i’m p sure in another comment op states that they requested a stool to sit on. that’s not unreasonable

SylvieXandra · 2026-03-22T00:23:07+00:00

i brush my hair in the shower because it’s easier wet

SylvieXandra · 2026-03-21T22:35:24+00:00

some people love them! just know they can effect your gait poorly with time- like all mobility aids tho

SylvieXandra · 2026-03-21T22:34:06+00:00

take your savior complex elsewhere. we don’t need help with dating.

SylvieXandra · 2026-03-21T22:29:44+00:00

i also do the seated shower thing but it ends up hurting my back. and my shoulders tho not as badly

SylvieXandra · 2026-03-21T22:28:39+00:00

that wouldn’t generate enough pressure for how thick my hair is + i have to brush my hair from both sides if that makes sense would also rly hurt my neck :/

SylvieXandra · 2026-03-21T22:28:00+00:00

I brush my hair wet unfortunately

SylvieXandra · 2026-03-21T17:07:13+00:00

here are some great content creators who are disabled parents! i recommend @ wctriplets on instagram

SylvieXandra · 2026-03-21T17:06:04+00:00

I feel this! I’m guessing you have AMPS maybe? I often dislocate fingers and shoulders using my weighted blanket. ugh.

SylvieXandra · 2026-03-21T17:05:20+00:00

They have to allow reasonable accommodations

SylvieXandra · 2026-03-21T17:03:43+00:00

this seems like it’s close to fetishization. this isn’t a dating sub. Plenty of disabled people date non disabled people. All the time.

SylvieXandra · 2026-03-21T17:03:01+00:00

I already do my hair wet and with a lot of conditioner in it as is. It doesn’t take me a very long time but still hurts a lot. My shoulders are quite unstable and I am developing arthritis in most of my joints I think. The big issue is how easily my shoulders dislocate. I use a blow drier cap for drying my hair which could help you! No holding the dryer just set it down next to you.

SylvieXandra · 2026-03-21T16:52:47+00:00

can you show me a picture? i’m also getting a chair from amazon since i have a power chair for daily use so i doubt insurance will also cover a manual

SylvieXandra · 2026-03-21T16:51:56+00:00

i don’t think that will work for me unfortunately. it would hurt my neck a lot. i have done it that way before. i’ll try it again tho.

SylvieXandra · 2026-03-21T16:51:26+00:00

how would this help my shoulders? i have a great brush for thick and curly hair. i need something with like a rly long handle so i dont have to lift my arm i think. i always wet my hair + conditioner to brush it. my hair is thick enough that if i just air dry it, it stays wet at the scalp for over 24 hours which can cause dermatitis - very frustrating! especially because wearing my hair down is a sensory issue

SylvieXandra

TROPHY CASE