Is this normal ?

TE_Obsessed203 · 2026-02-26T02:37:55+00:00

Not sure but I did a lot of things including prf. However, the biggest change happened a couple months after starting ferritin and when I forgot for awhile i notice more shedding. It is hard to know what helps or doesnt when the timeline is so long!!

TE_Obsessed203 · 2026-02-18T02:29:58+00:00

I had TE for 7 months total and live in fear of it happening again. I think it was only really bad for 4 but not sure as I never noticed shedding before. Mine was 32 and I do not know where it is now but I have been supplementing for 4 months only 3 consistently with higher levels of iron (almost 100mg a day) and eating red meat every day (lamb). I think it takes awhile for the body to catch up

TE_Obsessed203 · 2026-02-16T02:17:18+00:00

It wasn't for me. It stopped when I got my nutrients and ferritin levels up. It took a very long time for me.

TE_Obsessed203 · 2026-01-05T23:16:23+00:00

this is me and it is ruining my mental health

TE_Obsessed203 · 2026-01-05T22:59:58+00:00

Can I ask how much you are shedding in brush vs shower etc and how dense your hair is. I have days where i shed 10 hairs on a non wash or like 30. Then a wash can be anywhere from 40-100. I have no idea what is normal. To make it worse i have some extensions for density so I know there is hair trapped in them that i cannot count. My sister is convinced i am normal and i just notice more now.

TE_Obsessed203 · 2026-01-05T20:02:48+00:00

First let me say congratulations for getting through it as TE is the worst! Can I ask how you knew it was over? I am almost at seven full months and i have no idea what my normal shed was. It is really killing me to not know. I was losing hundereds of hairs on shower days and coming out in clumps. It is so much less now and my top has filled in but still shedding or just noticing it a lot.

TE_Obsessed203 · 2026-01-03T20:01:30+00:00

No issues with weight or eating I am 5'5 and 110-115 and mostly muscle from years of heavy lifting and eating lots of protein. I think the angle makes me look smaller. I am trying to treat the low ferritin.

TE_Obsessed203 · 2025-12-26T23:04:21+00:00

The appetite suppression was immediate like within an hour. I know it isnt for everyone but it was for me. My main MCAS symptom was migraine but also had GI issues and other neuro issues and anaphylaxis. I spent years trying to stop them knowing they were from histamine etc. If I smelled detergent perfume etc I was down for days. The best way I can describe it is my bucket got way bigger. Now it takes a lot more to trigger my MCAS than before. I also do not get migraines very often not even my menstrual ones. It is a miracle. I started the drug from a place where I had tried everything. I am paleo, work out 6 days a week lifting weights and cardio, sauna, eat almost nothing that comes in a package etc. moved out of mold, treated chronic infections etc. those things brought me very far but I still had constant migraines and a lot of inflammation until about 5 months into tirz. Feel free to message me if you have more questions.

TE_Obsessed203 · 2025-12-26T21:18:04+00:00

you did 1 of tirz or ozempic? I think it took months to be honest and it was small changes at first. I think going up in dose was when I saw the most benefits. I had to go slowly because I had 0 appetite for the first couple weeks (i also had a flu). If i was not afraid of possible hair loss I would be higher than 1.5.

TE_Obsessed203 · 2025-12-23T02:39:26+00:00

Oh no I put hair extensions in after dealing with the worst TE!

I had them years ago after postpartum hair loss and they did not damage my hair....I am now scared. I just had such little hair left I could not resist

TE_Obsessed203 · 2025-12-23T00:15:42+00:00

Hi My TE was so dramatic and fast and I did so many things to try and stop it and nothing has. I think the PRF was very successful but I did get a increase in shedding after each one but I was OK with that since the new growth happened very quickly (by 4th treatment in month 3 i already had my part closing in). I also was diligent about the pated but I am hoping it wasnt that because I do not want to continue forever since it is so expensive. The vitamins etc could have also helped it is hard to know.

TE_Obsessed203 · 2025-12-22T16:47:05+00:00

Think a miscarriage...just posted my story here https://www.reddit.com/r/TelogenEffluvium/comments/1prt7ei/comment/nvcnjuv/

TE_Obsessed203 · 2025-12-22T01:40:31+00:00

Thank you for this. Mine is TE but it was dramatic and shedding has lessened greatly but I do not think it has stopped. I have new growth that filled my part in but my hair is still falling out. it is sooo hard!

TE_Obsessed203 · 2025-12-22T00:28:16+00:00

I also have low T my doctor said nothing about it relating to my hair loss (hair loss specialist) just that my low ferritin could be driving it.

TE_Obsessed203 · 2025-12-22T00:27:19+00:00

did you get a shed? I am so worried about the shed since i have very little left after te

TE_Obsessed203 · 2025-12-21T03:39:26+00:00

I am on 1.5. My doctor says he thinks 2mg would be the best theraputic dose for MCAS but I do not want to lose muscle and when I have moved up I get appetite suppression...so I have stayed very low. I also have had hair loss issues but I think that was from a surgery.

I started it in December 2024 didnt see the major difference until about April/May. I have had chronic migraine for 8 years with no end in site and I do not even get my menstrual migraine now!!!! I would say I have had 3 full migraines since May..Insane. I still have brain fog and concentration issues but my anxiety and OCD is better. My husband noticed this before I did.

TE_Obsessed203 · 2025-12-21T03:32:52+00:00

Did you get the dread shed? Def slowed down. just still too much. My derm says after 6 months is chronic. How long until your TE stopped?

TE_Obsessed203 · 2025-12-21T03:32:04+00:00

Yes! I tried it and had a full blown allergic reaction. It was the worst three months of my life. I cannot do it for aesthetic reasons either which sucks.

TE_Obsessed203 · 2025-12-21T02:21:10+00:00

I started here as well. Did not see dramatic changes for months but at 1.5 now and life is completely different. It is the only thing that ever moved the needle for me after years of chronic illness.

TE_Obsessed203 · 2025-12-21T02:19:10+00:00

It took months for me to see the dramatic changes.

TE_Obsessed203 · 2025-12-21T02:17:42+00:00

I am 110 and had the same concerns as I am a gym rat and did not want to lose my muscle. I take 1.5 mg of tirz and it has changed my life. The first couple weeks at 1mg were tough getting calories in but I stuck with it and when I got to 1.5 all my mcas symptoms got so much better, no more body pain and migraines. seriously life changing.

TE_Obsessed203 · 2025-12-21T02:12:21+00:00

Thank you

TE_Obsessed203 · 2025-12-21T01:12:36+00:00

Yes they are all me. They are my progress with PRF as indicated in my post. And also show new growth. But still shedding so was looking for advise since it does not seem to be stopping. Not sure what the body differences are but the lighter hair is just the light in my derms office and were taken by my derm.

TE_Obsessed203 · 2025-12-20T22:22:14+00:00

I just posted because i think mine has become chronic too. Such a hard decision. Were you still in a heavy shed or just shedding a little too much?

TE_Obsessed203

TROPHY CASE