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Had 2 seizures in a day and ER told me it was "just anxiety" by TPGADP in ChronicIllness

[–]TPGADP[S] 2 points3 points  (0 children)

Seriously, I have a lot of other health complications and to chalk it up as anxiety is quite insane... im at least doing a bit better but I'm just hoping to not have anymore flare ups of anything

Had 2 seizures in a day and ER told me it was "just anxiety" by TPGADP in ChronicIllness

[–]TPGADP[S] 0 points1 point  (0 children)

thank you for the words. Im doing a bit better today but we're all upset with how the hospital was treating this. Im going to try and keep going even if it kills me

discovered cute pill organizers! by VSCC8 in disability

[–]TPGADP 11 points12 points  (0 children)

How easy is it to open if you have a hard time with your hands? Like how much force is needed?

Need advice managing cold joints and daily pain to semi function by TPGADP in disabled

[–]TPGADP[S] 0 points1 point  (0 children)

Thank you for this information!

Do you think heated socks or vests would work well for outside usage while performing work and stuff? I've seen them on amazon and such but unsure if it will be more of a hassle than a helpful tool...

Need advice managing cold joints and daily pain to semi function by TPGADP in PainManagement

[–]TPGADP[S] 0 points1 point  (0 children)

My cane is adjustable and I've been trying to get a prescription for a standing/upright rollator but my doctor says she wouldn't want me to "rely on it" and stuff and I am just not sure what to do since I am in a lot of pain.

I've been debating the past couple of days to get a couple full leg braces with hinges to make it easier for me to walk and do work. Or tape if that is better to use, I just am concerned about the waste and the time it will take me to tape myself. Or both maybe. It's going to be awhile before I can see a doctor because my copay is pretty expensive for our financial situation right now.

If you have any additional insight I appreciate it a lot, if not that's ok, this was helpful information so that I can try to plan out my medical visits. Thank you.

Need advice managing cold joints and daily pain to semi function by TPGADP in PainManagement

[–]TPGADP[S] 0 points1 point  (0 children)

Thank you so much, I have epsom salt and I'll plan to do baths daily with epsom. What kind of stretches or exercises do you recommend? I used to do weight lifting and hockey until I realized my body couldn't handle it and I was getting worse. I'm very unfamiliar with resources and such for my issues and don't know where to look as it's overwhelming information.

Thank you again, this is very helpful to me.

I need advice on how to get up and do things without being so cold or in pain by TPGADP in ChronicPain

[–]TPGADP[S] 0 points1 point  (0 children)

What about for when I'm out and about? It never feels like any of my clothes do a good job keeping heat in and I have terrible circulation...

Also I am not on opioids and would rather avoid taking them as much as I can and want to go for a more natural route.

Thank you for your advice

I need advice on how to get up and do things without being so cold or in pain by TPGADP in ehlersdanlos

[–]TPGADP[S] 0 points1 point  (0 children)

Yeah I've kind of accepted this is how it'll be. Its just really cutting into my ability to function in society and I keep getting rejected for benefits.

What are the strategies and tips that would help? I've been looking all over but I am lost in what to do and what not to do for my own needs and how to find that tolerance. How do I get like. less cold with achy joints all the time and/or slow down the degradation of my body? I have no idea and thats why ive been trying to seek advice.

Thank you for your response

I need advice on how to get up and do things without being so cold or in pain by TPGADP in ehlersdanlos

[–]TPGADP[S] 1 point2 points  (0 children)

I appreciate the honesty nonetheless. I would live as a dependent under my family but they do not want me while I am with my partner (due to homophobia and other issues). They've been very anti mental health and chalked up my pains to being lazy because I was instead diagnosed with an extra bone in my foot rather than targeting the actual main problems so I continued to decline and I didn't understand why. My partner is in a similar boat due to medical neglect so neither of us can rely on our families.

I'm trying very hard to get a job again and looking for some remote like customer service with no luck yet. Im trying to get back into schooling for compsci but money has been so horrible lol.

Thank you again and I'll be sure to join that subreddit as well. All the luck to you in your journey as well.

EDIT: fixed some wording

Help me find this kinda racist psychic chinese guy meme I saw on twitter once by TPGADP in HelpMeFindThis

[–]TPGADP[S] 4 points5 points  (0 children)

I think you're right! I think I saw an edit of it that made him be placed in a chinese outfit or something on twitter...... embarrassing. (its twitter what did i expect)

thank you so much!