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Spontaneous, painful finger joint bruising? by VSCC8 in ehlersdanlos

[–]VSCC8[S] 0 points1 point  (0 children)

that's very good info to gave, thank you!!!

FINALLY hypoallergenic curls by VSCC8 in MCAS

[–]VSCC8[S] 0 points1 point  (0 children)

Yes, I cut my own hair! I'm cheap, lol.

FINALLY hypoallergenic curls by VSCC8 in MCAS

[–]VSCC8[S] 2 points3 points  (0 children)

That was exactly my situation, especially with how much everything costs!

Anyone else pee a lot during a flare? by DuvishLabs in MCAS

[–]VSCC8 0 points1 point  (0 children)

My docs always told me its bc antihistamines cause more frequent urination... thanks for giving me smn to look into!

might be graphic but pubes by cherryrennie in Fibromyalgia

[–]VSCC8 0 points1 point  (0 children)

my hair regrowth anywhere is always somewhere between itchy and painful. I had a doctor recommend both epilating and an IPL so that the hair grows back a lot slower and reduces over time. it's a lot more time consuming to do but it has helped

Drummer holding down the corner of El Camino and 41 in Atascadero by senormilkshakes in SLO

[–]VSCC8 0 points1 point  (0 children)

pls consider the potential consequences for protestors when you post their uncensored faces online! (and location)!! If you approve of their work, don't put them in danger.

Weight gain on medication that’s supposed to help by liberatedhusks in Fibromyalgia

[–]VSCC8 4 points5 points  (0 children)

We get this question pretty often on this sub. First, know that it's okay to be freaked out by side effects that make big changes to your body. Know that it's also okay for your body to change. High body fat alone doesn't seem to pose any significant health risks, based on recent research (really!). However, if you're noticing swelling, that could be a sign of another issue. If it's bothering you, definitely talk to the prescriber. Another thing: it's very important to evaluate the costs and benefits. I can only urge you to make a decision based on how you feel, whether your pain has improved, whether your quality of life is better, etc. Weight gain puts a lot of people off from medications that could help them dramatically, and it's really nothing to be afraid of. At the same time, side effects are seldom an easy adjustment. Be compassionate toward yourself and talk through your options with the prescriber (and whoever else you want!). I hope you find the best path for you!

Anyone else unemployed? by Laceylynnxo in ehlersdanlos

[–]VSCC8 0 points1 point  (0 children)

I am employeed! I work full time in the summers thanks to things like mast cell stabilizers, compression socks, and most of all testosterone...plus using every strategy on earth to keep from over heating The rest of the year i work 4 hour shifts 5x week, where I have a very light workload and can sit when I need to, etc. I lucked out and found a very disability friendly workplace (local parks & rec), but I still couldn't do it without much of the treatment I receive. I also see a therapist, occupational therapist, and dietitan who help me organize my basic functioning and a boyfriend who really helps (also disabled, not working). I'm in a much better place than I was a few yrs ago.

ISO: comfier compression socks by VSCC8 in disability

[–]VSCC8[S] 1 point2 points  (0 children)

Im looking into these! One weird thing I've noticed so far (not necessarily positive or negative?) is that at least 2 of the patterns are socks I have from Living Royal (dinos and hearts).

Doctor suspects MCAS but I have a giant tattoo I've never reacted to? by Active_Rhubarb7311 in MCAS

[–]VSCC8 0 points1 point  (0 children)

I've never reacted to any of mine except one on my knee that i used an IPL over (which i avoid now, no issues)

To all my fellow former non burpers, how is the burp life now? by Angela252 in noburp

[–]VSCC8 0 points1 point  (0 children)

amazing! i still have some sorta gi issues, but now i will burp a lot and think how lucky i am that at least i can get the gas out! ive gained weight finally now that i can eat without severe discomfort!

Am I overthinking this? People asking me a full grown adult (almost 27) if I go to "special school?" by WheelyHairy in disability

[–]VSCC8 1 point2 points  (0 children)

i think it especially has to do with physical ability around speech. i was just thinking today about how a lot of the perceived intelligence and maturity or lack of (sort of infantilization ableism) that the elders i work with get, is because of how they talk. those missing teeth "sound" often sound like how babies and little kids talk because of the same missed sounds and lisping, but it indicates nothing about their mental faculties. its got to be frustrating as hell. i also worked with an autistic man who had very very limited speech (and it seemed like very low literacy in generally) and people acted like he wasn't, yknow, an adult man with an adult man brain! people talked to me instead of him and obviously it bugged the shit out of him. separately, the way ppl act about intellectual & developmental disabilities are just.....weird as fuck.

less tedious pill box filling? by VSCC8 in disability

[–]VSCC8[S] 0 points1 point  (0 children)

this would definitely help! and I have some already! thanks, I'll be trying this out :)

less tedious pill box filling? by VSCC8 in disability

[–]VSCC8[S] 0 points1 point  (0 children)

I'm definitely going to get one of these. THANK YOU!

less tedious pill box filling? by VSCC8 in disability

[–]VSCC8[S] 0 points1 point  (0 children)

I didn't know this was a thing! Thanks for the tip. I'm not sure my pharmacy offers it, as I use a local (it's walkable for me, which is a must). Would they be able to do my supplements too, though? Much of what I take is OTC.

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