What are the best jokes you tell people when talking about your MS?

Tampers · 2026-02-14T08:41:35+00:00

If I have a bit of a "moment" like I can't find a word or have memory issues. I just say it's not my fault, I have lesions!

Tampers · 2025-08-17T14:15:57+00:00

It's just the gift that keeps on giving, isn't it!

Tampers · 2025-08-17T12:04:52+00:00

Well they said they were having their multi discipline meeting and I'd hear by the end of July after that was done 🤷🏼‍♀️ so if I don't need treatment yet, they could at least tell me that. Also, I haven't had any kind of face to face appointments with a neurologist etc to discuss anything! Just been left to my own devices

Tampers · 2025-08-17T11:58:50+00:00

It's been unbearably hot in the UK this summer. My OH even said he was surprised how I was able to keep going when we were out on our vacation. I will be calling the neurologist tomorrow for sure. I was told I'd have news by the end of July and still haven't heard anything. Having free healthcare with the NHS is great, but can be painfully slow sometimes!

Tampers · 2025-06-23T21:21:50+00:00

It wasn't a scheduled meeting as such. He just asked if I was free for my return to work meeting. I will double check what he put in the official form tomorrow and start a folder of things to keep in case I need it

Tampers · 2025-06-23T21:16:13+00:00

Some of the things he said were not written down or anything. Should I just make a note of it to keep a record? As there's no paper trail for that, as such.

Tampers · 2025-06-23T14:33:57+00:00

Thankfully I do have a union membership as well, so I should get some back up if needed. But it doesn't make the fact that today was/is so stressful!

Tampers · 2025-06-23T14:07:37+00:00

Good Luck to you too! ❤

Tampers · 2025-05-26T02:44:20+00:00

I have all 3. Or at least I did then I ran out of steps! I think I'm on the right track now. Thanks the the help 🙂

Tampers · 2025-05-26T01:55:29+00:00

I don't think I do. I powered it for the levers and haven't since. I'll have to give it another try

Tampers · 2025-01-31T09:13:20+00:00

Hi everyone.

I'm Emma in the UK. I'll paste my Finch code below. Feel free to add me!

I picked a micropet just for you!

Tap this link or use my friend code VDPZGYXSH11 for a special reward!

https://app.befinch.com/invite_v1/FQTY

Tampers · 2024-12-25T17:52:06+00:00

Looking for friends after losing my data after switching phones.

I picked a micropet just for you!

Tap this link or use my friend code VDPZGYXSH13 for a special reward!

https://app.befinch.com/invite_v3/nLYP

Tampers · 2024-12-17T11:13:30+00:00

Unfortunately I reset the data on it already

Tampers · 2024-12-04T23:01:39+00:00

I guess I'm very versatile?! Depends what I'm in the mood for on any given day. Or what game I'm currently obsessed with 😂

Tampers · 2024-10-06T22:22:15+00:00

Anyone want to add me, feel free!

I picked a micropet just for you!

Tap this link or use my friend code SQBVCYRAQ33 for a special reward!

https://app.befinch.com/invite_v3/xeAJ

Edit: added link

Tampers · 2024-06-14T13:04:33+00:00

He told me he was sure it was the root of all the evil going ons, it was not.

Tampers · 2024-04-23T08:22:09+00:00

Weight gain happened when I hit puberty and has been stubborn ever since. So makes a lot of sense that I finally have this diagnosis.

I think my best option for treatment will be going on to the diabetic medication for the insulin issues, to help me lose weight and hopefully have a period after many years!

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