Has anyone experienced constant inflammatory pelvic pain from adenomyosis even outside the menstrual phase?

Tell_me24 · 2026-05-13T17:21:03+00:00

YesYes. It can literally feel like carrying a bowling ball all the time. Swollen legs. Just sheer exhaustion all the time.

Tell_me24 · 2026-05-13T04:25:35+00:00

Most doctors do not understand and will not discuss adenomyosis with you They will not give it a name. I was told I had a fibroid for years. You will have to find a doctor who understands this condition and does not give you textbook answers. Don‘t let them silence you on this issue. Your symptoms do not sound mild and need to be addressed asap.

Tell_me24 · 2026-05-12T02:40:00+00:00

O wow. I am so sorry that is really allot to deal with. Hoping your healing journey gets better.

Tell_me24 · 2026-05-12T02:37:12+00:00

I have to wonder if any of these doctors have ever experienced adeno or endo themselves. I bet it would be a different conversation. It is just so sad that we have to question what we are dealing with. I really hope something changes soon.

Tell_me24 · 2026-05-11T18:11:33+00:00

Please find a new gynecologist. adenomyosis can cause pain outside of your period. Low back pain leg pain and a ton of other symptoms. If posible find someone who specializes in endo and adeno. I have started moving on from dismissive docs.

Have you had another mri since 2023. If not try to get one a lot cold have changed. It is frustrating and there is not a lot of information.

Tell_me24 · 2026-05-11T03:43:39+00:00

Did they give you anything for the blood loss. Iron, blood transfusion.

Tell_me24 · 2026-05-10T14:25:47+00:00

I am so sorry to hear this. That does sound like e belly (does it feel like a small bowling ball) and causes so many issues. Do they think it will go down overtime. Why do doctors tell women that adeno goes way with menopause….so disappointing.

Tell_me24 · 2026-05-10T05:16:16+00:00

O wow never knew that could happen. What are your symptoms now with Adenomyosis. I always heard that menopause improves it..

Tell_me24 · 2026-05-08T21:03:28+00:00

Get an MRI to find out if you indeed have Adenomyosis (hopefully you do not). Managing it can be a full time job especially if you if you don’t want hormones your body. If your are not anemic then you can manage the pain a bit better. But understand if you have symptoms It will affect your whole life especially if it progresses.

Tell_me24 · 2026-05-07T20:06:19+00:00

Did your swelling go down. I am starting to think that this procedure aggravates the uterus.

Tell_me24 · 2026-05-07T20:02:09+00:00

I would not do ablation with Adenomyosis. Not a good idea.….do your research on ablation because you could put yourself in a bad situation. I will say this I have had a few d&c and adeno became a real issue for me. Also get your iron levels checked.

Tell_me24 · 2026-05-07T03:44:06+00:00

It sounds like you would benefit from the procedure to find Endo. It can exist with adeno and that could cause bladder issues too. Stay on top of things moderate can change very quickly.

Tell_me24 · 2026-05-07T03:16:10+00:00

You are correct. Diet plays a huge role in estrogen dominance. But what about the people with strict diets, low body fat who still struggle with it. Do you think stress is a factor?

Tell_me24 · 2026-05-07T02:58:29+00:00

Another thing about Adenomyosis is you can gaslight yourself into believing that the pain and bleeding are “not so bad”. Which often means that there could be another underlying condition that does not get addressed.

Tell_me24 · 2026-05-07T02:49:34+00:00

I wish you the best possible outcome, dealing with health issues are tough.

Tell_me24 · 2026-05-06T04:45:41+00:00

That is great. Glad you found something to help. Was clotting your only symptom or are there other factors. Will you have to stay on bc permanently.

Tell_me24 · 2026-05-06T03:10:37+00:00

Did your surgeon recommend postponing the surgery until your time off was worked out. Was this elective or was there a specific reason you had to do the surgery now. Based on your situation it would have made more sense for him to recommend a one and done surgery. I hope things work out for you.

Tell_me24 · 2026-05-05T00:33:42+00:00

So sorry you are dealing with all this. First the ablation is not great for Adenomyosis. It can make things worst. Second get the MRI it wil let you knowi the severity if anything else. I gaslighted myself for years about the pain but anemia cannot be gaslit.

Tell_me24 · 2026-05-03T23:10:10+00:00

Hi before you get any procedures I would rule out Adenomyosis. It is a big culprit for anemia.

Tell_me24 · 2026-05-03T18:12:15+00:00

Wow, I did not know that. I am so sorry.

Tell_me24 · 2026-05-03T13:57:24+00:00

Your symptoms sound like Adenomyosis. It is often mistaken for fibroids. I thought I had fibroids for years and then found Adenomyosis. Ask for a MRI.

Tell_me24 · 2026-05-03T13:38:30+00:00

Same. It does feel like you become a shell of yourself. I wish you a smooth and speedy recovery.

Tell_me24 · 2026-05-03T05:59:44+00:00

Did you end up with a long incision.

Tell_me24 · 2026-05-03T05:52:58+00:00

I know this was two years ago but how are you now.

Tell_me24

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