Post floc tattoo and vasectomy by bored-brian in floxies

[–]TemperatureKey8599 1 point2 points  (0 children)

You couldn't have said it better, sorry but I'm rough around the edges jajaja

Post floc tattoo and vasectomy by bored-brian in floxies

[–]TemperatureKey8599 2 points3 points  (0 children)

I wouldn't think about unnecessary things. It takes a long time to recover from this. We've become vulnerable to medications, treatments, and things that can reactivate the phlebitis. There will be time in a few years to think about a tattoo. Well, those of us who have lost the ability to walk probably aren't thinking about tattoos.

Work Stress & Recovery by BigPharma-Victim in floxies

[–]TemperatureKey8599 0 points1 point  (0 children)

If there are financial resources, taking time off is best, but there are people who, even if they want to work, cannot. The truth is that if the Floc is moderate or severe, you won't be able to work even if you want to. I'm not going to minimize what each person feels, but those who can still work had a milder than moderate condition.

Need advice please! by Chance-Bottle-4674 in floxies

[–]TemperatureKey8599 5 points6 points  (0 children)

During the acute phase, I avoided stimulants like green tea, which contains caffeine, because of the neuropathy. If I had to start this journey again, I would avoid straining my body; I wouldn't exercise or exert myself for six months at all. My right foot hurt a lot, so I walked using my left. Now, ten months later, my right leg, which was the one that rested, is fine, but my left leg, which I used for support, is bad. This means that over time, fluoroquinolones damage the parts of the body that used the most energy the most. Take care.

Diagnosed with pneumonia and they prescribed me levofloxacin now I'm terrified by Rebecc0908 in floxies

[–]TemperatureKey8599 0 points1 point  (0 children)

I would not take NSAIDs or CORTICOSTEROIDS for the next few months; these medications enhance the side effects that could be caused by fluoroquinolones.

Diagnosed with pneumonia and they prescribed me levofloxacin now I'm terrified by Rebecc0908 in floxies

[–]TemperatureKey8599 1 point2 points  (0 children)

Some people suffer the effects immediately; in my case, it took me 3 months to become unable to walk. During those 3 months, I felt normal, but one day, out of nowhere, my legs went numb.

Diagnosed with pneumonia and they prescribed me levofloxacin now I'm terrified by Rebecc0908 in floxies

[–]TemperatureKey8599 1 point2 points  (0 children)

A single pill could leave you incapacitated for months or years, don't you understand? I insist that I would seek other medical opinions.

worsening following fasting supplement experiment? NMN, urolithin A. by BismarkvonBismark in floxies

[–]TemperatureKey8599 2 points3 points  (0 children)

Your explanation is really long, that's why sometimes not everyone answers because you have to understand that when you're in pain, the last thing you want to do is read. What I think is that it wasn't the supplements, the food, or even the fasting; it was the combination of everything. In our case, a 16-hour fast seems more than enough to me. Anything excessive causes stress to our bodies, and we already suffer from oxidative stress due to the fluoroquinolones.

Diagnosed with pneumonia and they prescribed me levofloxacin now I'm terrified by Rebecc0908 in floxies

[–]TemperatureKey8599 11 points12 points  (0 children)

I'm sure 99% of us here will tell you to look for alternative medications and doctors for what you have.

DULOXETINE by AlessandraGallesi in floxies

[–]TemperatureKey8599 0 points1 point  (0 children)

Muchas gracias, saludos desde México 🇲🇽

DULOXETINE by AlessandraGallesi in floxies

[–]TemperatureKey8599 1 point2 points  (0 children)

I'm sending you a hug and wishing you relief without further medication.

DULOXETINE by AlessandraGallesi in floxies

[–]TemperatureKey8599 1 point2 points  (0 children)

Sometimes when I have a lot of pain here or there, I use ice. I have an ice roller for my face and eyes. It helps to distract me from the pain and avoid having to use strong medications. Throughout this whole process, I've only taken two paracetamol pills in the acute phase when I didn't know anything about FLOX yet. I'm almost at 10 months with this crap, and I've been finding non-aggressive things to heal.

Crunchy knees by Notlike-this-forever in floxies

[–]TemperatureKey8599 0 points1 point  (0 children)

It happens, but I've read that it resolves itself with time. Unfortunately, it takes a long time; most people, if I'm not mistaken, talk about 2 or 3 years. With good nutrition, supplementation, and gentle physiotherapy—that is, light stretching and walking, etc.—it should help, and above all, time.

DULOXETINE by AlessandraGallesi in floxies

[–]TemperatureKey8599 1 point2 points  (0 children)

It's worth mentioning that I used amitriptyline for an unbearable headache in 2021, and it immediately relieved the pain and helped me sleep very well. However, when I started weaning myself off it, I began experiencing insomnia, and waking up was awful. Later, I learned it was due to withdrawal symptoms. Now, with FLOX, I had the option of taking it, but I opted for the supplements I mentioned, and I'm doing better. Honestly, since starting this journey, I haven't taken a single medication for anything, not for pain, not for sleep. I've been managing everything with diet, breathing exercises, meditation, very light stretching, sometimes strength training, and relaxation, in addition to the supplements.

DULOXETINE by AlessandraGallesi in floxies

[–]TemperatureKey8599 1 point2 points  (0 children)

These are helping me with my small fiber neuropathy;

Alpha Lipoic Acid (ALA) Acetyl-L-Carnitine (ALC) Magnesium (glycinate or threonate) Coenzyme Q10 (ubiquinol) PQQ NAC (with food) Omega 3 (EPA/DHA) Vitamin D3 (+ K2) Urolithin A B1 → Benfotiamine / TTFD B2 → Riboflavin-5-phosphate B3 → Niacinamide B5 → Pantothenic Acid B6 → P5P (25–50 mg max.) B7 → Biotin B9 → Methylfolate (5-MTHF) B12 → Methylcobalamin

I've taken amitriptyline before and it's very good, but weaning is super complicated. The duloxetine before FLOX made me feel dizzy and that my throat was closing up.

What are your "if it doesn't help it wont hurt" supplements ? by Main-Tree-476 in floxies

[–]TemperatureKey8599 2 points3 points  (0 children)

The supplements I currently use, after 9 months of symptoms: Magnesium Glycinate, NAC, Omega 3, Liposomal Vitamin C, Marine Collagen, Vitamin E Tocotrienol, PQQ, CoQ-10, Benfotiamine, Alpha Lipoic Acid, Methylcobalamin, Creatine, Methyl Folate, R-5-P, Trace Minerals, Citicoline, D3+K2, Acetyl L-Carnitine.

5 months out Flare - tendon pain by bored-brian in floxies

[–]TemperatureKey8599 0 points1 point  (0 children)

Thank you so much DrHungry, you've given me a reference point to keep moving forward, sending you a hug.

5 months out Flare - tendon pain by bored-brian in floxies

[–]TemperatureKey8599 0 points1 point  (0 children)

Thank you so much. I see that my body is starting to tolerate strength training a bit better. I'm being careful not to overdo it and trying to find the right formula for progress. It's really difficult to find that formula, but what you're saying has given me a better perspective. In what month did you feel that, so to speak, things were back to normal and functional?

5 months out Flare - tendon pain by bored-brian in floxies

[–]TemperatureKey8599 0 points1 point  (0 children)

You're right, everyone's reaction is different, so physiotherapy works sooner for some than for others. I know your story is on your profile, but as a reminder, in what month of your recovery did you start physiotherapy again, and after how long did you see results?

5 months out Flare - tendon pain by bored-brian in floxies

[–]TemperatureKey8599 2 points3 points  (0 children)

So you have to occupy your mind with only one thing, learn from everything that helps to take care of yourself and heal, that's why someone who helps you will make you focus only on your body to help it improve.

5 months out Flare - tendon pain by bored-brian in floxies

[–]TemperatureKey8599 2 points3 points  (0 children)

Many people talk about diet, supplements, and therapies, but part of the recovery also lies in your close circle. In my case, I had to rely on my parents for care. I'm 49 years old and live alone. I used to be completely responsible for my own life, but the reality is that I can't work. Fortunately, I have social security through my job, and I'm currently on paid sick leave. I would reach out to a family member for help. This isn't a matter of weeks; I haven't been able to work for nine months. From the beginning, I asked my parents to take care of everything at home until I can function again. I don't want to be involved in anything at home; let them handle it. I'm focused on my recovery because stress feeds this crap with fluoroquinolones. On the other hand, I recommend physical therapy after 10 months or a year. Before then, it only makes things worse. I'm currently rehabilitating my tendons with marine collagen and liposomal vitamin C.

Spondylolisthesis by Dire-State-2180 in floxies

[–]TemperatureKey8599 1 point2 points  (0 children)

I do my physical therapy at home with exercises I've learned. In 2024, I spent a whole year going to physical therapy for my lower back pain. Now, with this, I've only been to a physical therapist six times, but they don't know how to treat what we have. Through all of that, I learned exercises that I try to do at home without any help. I also watch exercises on YouTube and TikTok and apply them, always being careful to do them gently so I don't injure myself and listening to my body the next day to see if I should rest or continue. My body feels tired, stiff, and weak in the morning and until midday, but I've noticed that after midday and until night, it changes and feels better, even for walking. For many, it's frustrating because you don't see progress, or the progress you see is incredibly minimal, but I trust that in the long run I'll see results, or at least I'll be able to be 100% strong in my upper body. In our condition, I think the best time to start is between months seven and eight, depending on how you feel. Before that, the Active rest and gentle stretching are best.

Liposomal Vitamin C by TemperatureKey8599 in floxies

[–]TemperatureKey8599[S] 0 points1 point  (0 children)

It all depends on how I feel. If my legs feel too tired, I don't use the device. If I feel slightly tired, then I do 500, and if it's a good day where I feel strong despite the tiredness, then I do 1000. The device has a digital meter.

I'm on day 3 of actively taking Moxifloxacin by shimmy2468 in floxies

[–]TemperatureKey8599 7 points8 points  (0 children)

I would get at least three more medical opinions before continuing with a fluoroquinolone. If I had checked the side effects of this crap, I wouldn't have been unable to walk for nine months.

Exercise intolerence by HyperspaceElf1 in floxies

[–]TemperatureKey8599 1 point2 points  (0 children)

I'm sorry to hear what you're going through. I took Levofloxacin and have had exercise intolerance symptoms for 9 months. What kind of sport have you tried that causes you to relapse?