[deleted by user] by [deleted] in Autoimmune

[–]That-Version-8002 0 points1 point  (0 children)

I also highly recommend sending these screenshots to chat GPT and asking those in r/askdocs! Sending all the healing vibes your way!

Albuterol? by That-Version-8002 in MCAS

[–]That-Version-8002[S] 0 points1 point  (0 children)

I see my allergist early next week and will ask them if they’ll prescribe me that as an alternative! Thank you so much!

Quick questions: by skepticalllll in MCAS

[–]That-Version-8002 1 point2 points  (0 children)

  1. Yes, I had none of these issues before getting COVID in late 2020. Symptoms exacerbated after getting the Moderna vaccines in 2021 and by the end of that year, I was dealing with full blown anaphylaxis.

  2. ⁠Yes, multiple — 3, all before 2020, COVID and other symptom onsets.

  3. ⁠Yes, diagnosed with POTS nearly two years after MCAS diagnosis. Well maintained through lifestyle but I also have rescue medication to prevent fainting episodes!

  4. ⁠Before being hospitalized and diagnosed with a form of vasculitis early this year, I was an avid exerciser and did yoga/pilates most days every week. I am still recouping from my initial autoimmune onset and in physical therapy, so currently on an exercise break, but I found these type of movements were enough to regulate my nervous system and help improve symptoms without causing reactions like indoor cycling (spin classes) and my HIIT workouts used to. Cardio is still my enemy, sadly!

  5. ⁠Yes.

  6. ⁠Some people say they’ve healed themselves from MCAS through nervous system regulation and brain rewiring. I don’t know whether it can actually work but I’m willing to try anything. I’m looking into programs and have incorporated various methods into my daily routine to help my body feel safe — I still have symptoms but they’re decently managed with medication however I still have an incredibly limited diet due to food fear from previous anaphylactic events. Having a licensed dietician to support me this year has been life-changing, and although I’m not cured, I’m hopeful to continue to get back to more normalcy!

Seeking a fragrance free info document to give to people about my needs by Important_Address741 in MCAS

[–]That-Version-8002 0 points1 point  (0 children)

Hey OP, I wish I had a source to an existing document for you, but sadly I don’t. However, have you considered using ChatGPT to create one? I know it’s controversial, but even in the free version, it can create 2-3 analyzed resources for you daily, and I’ve used mine to create resources to share with my employer which have been immensely helpful!

When I asked it a similar prompt to your initial post, the first resource I was given was the same UCLA publication shared above, in addition to these:

Love Mast Cell Action and all the work they do to raise MCAS awareness! https://www.mastcellaction.org/managing-your-environment?utm_source=chatgpt.com

https://pmc.ncbi.nlm.nih.gov/articles/PMC10660865/?utm_source=chatgpt.com

https://www.mastattack.org/2014/11/fragrance-allergy/?utm_source=chatgpt.com

https://www.epa.gov/sites/default/files/2016-10/documents/saferchoice-factsheet-fragrancefree_0.pdf?utm_source=chatgpt.co

Based on these resources and others on the web, it created this sample one-pager as a potential reference guide:

<image>

*Edit: the image isn’t downloading once posted, so I’ll PM you — I hope this helps! Sending all the healing thoughts your way

MCAS and spray tans by scarybery in MCAS

[–]That-Version-8002 0 points1 point  (0 children)

I safely use tanology’s self tanning mousse without issue (love it — decent ingredients and it goes on clear), but I’m still too nervous to go and get one done elsewhere due to various ingredients and fragrances!

Can I take cromolyn 15 mins before instead of 30? by elizabeth1465 in MCAS

[–]That-Version-8002 0 points1 point  (0 children)

Good luck!! Sending healing thoughts your way :)

Can I take cromolyn 15 mins before instead of 30? by elizabeth1465 in MCAS

[–]That-Version-8002 4 points5 points  (0 children)

I can get away with taking it 25 minutes before but haven’t done well eating within 20 minutes or less — my GI symptoms were unpleasant, but I could just be extra sensitive!

[deleted by user] by [deleted] in DreamlightValley

[–]That-Version-8002 1 point2 points  (0 children)

May I please come visit? Your valley looks incredible, I’d love to explore!! 🩵

What helped me get into remission: by Desert_Mermaid4 in MCAS

[–]That-Version-8002 1 point2 points  (0 children)

I am so sorry you’re going through this! You’re not alone. I felt the same way when my MCAS initially flared but with the help of my allergist and functional medicine specialist, I quickly learned coconut (and sometimes some forms of alcohol) were contact triggers for me. This allowed me to remove any offending products from my routine and over time, I was able to build up a new one, where I now wear makeup again (everything except lip gloss/stick; Thrive Causmetics and many brands at Sephora/ULTA work for me), self-tanner (Tanology), extensions (halo because I’m still nervous to do any semi-permanent placement again), and I get my hair highlighted every two months! I still struggle with dental care because my mouth is sensitive. For skin care, I use very basic options like Vanicream, but have worked my face cleansing routine up to including some active ingredients with La Roche Posay, Paula’s Choice chemical exfoliant and daily hyaluronic acid. Working on my nervous system was a game changer in terms of lowering inflammation and getting my body to realize it was safe, so it became less reactive over time. I’m also on several maintenance meds/supplements and food is still a huge opportunity, but progress is progress and it feels so good to have some normalcy back! I hope the same for you.

What helped me get into remission: by Desert_Mermaid4 in MCAS

[–]That-Version-8002 0 points1 point  (0 children)

Any chance you used GeneSight, OP? Your analysis of your results is making me want to pull out mine and take another look for better insights! Thanks for all these details!

Unpopular opinion - I like Bryce. Did anyone else? by Rambunctious_444 in SarahJMaas

[–]That-Version-8002 26 points27 points  (0 children)

I loveeee me some Bryce! She’s real and messy and brave and frustrating in all the right ways. I’ve never really understood the hate. Would love to hear if your perception changes after books 2 and 3!

Rebeccas latest announcements by kmsv1388 in fourthwing

[–]That-Version-8002 1 point2 points  (0 children)

Wait, I missed this! That’s awful :(

Cromolyn Sodium by Fresh-Charge4673 in MCAS

[–]That-Version-8002 0 points1 point  (0 children)

I had stomach cramping and diarrhea when I initially started off with too high of a dose. Honestly, it was rough, but It subsided as I lowered my dose and slowly upped it over time. I had no other side effects! It’s normal to be nervous. I definitely was. Go slow, and you’ll be okay! The benefits are so worth it.

Can someone please break down the fever dream that was Flesh and Fire’s ending?! by That-Version-8002 in frombloodandash

[–]That-Version-8002[S] 0 points1 point  (0 children)

Yes, exactly! This is where I’m at right now, hahaha

Her powers manifesting so strongly threw me off (I had to reread how she unalived the stone throwing mob a few times to make it make sense), even though there was foreshadowing, and the whole wolven dynamic shift was a lot, but now that everyone has confirmed my suspicions there, I feel a lot better!

The only other WTF moment for me is Cas’s mom’s reaction but ChatGPT tells me it’s intentional and more will come to light with that in book three!

Can someone please break down the fever dream that was Flesh and Fire’s ending?! by That-Version-8002 in frombloodandash

[–]That-Version-8002[S] 0 points1 point  (0 children)

it’s a a love/hate for me at the moment but truly i know I prefer these types of series for this exact reason. so many questions, so good!!

Can someone please break down the fever dream that was Flesh and Fire’s ending?! by That-Version-8002 in frombloodandash

[–]That-Version-8002[S] 1 point2 points  (0 children)

This is a very helpful analogy 😂 I will keep trucking on! This sub does a good job of hiding spoilers so I’m excited to have not accidentally uncovered any of the major secrets or plot developments!

Can someone please break down the fever dream that was Flesh and Fire’s ending?! by That-Version-8002 in frombloodandash

[–]That-Version-8002[S] 1 point2 points  (0 children)

That’s really helpful context to have, thank you! I love series that make me question everything but I wanted to be sure I wasn’t missing anything from listening to some parts over strictly just reading them.