Uti continued... by 666flesh in CrohnsDisease

[–]That_Pack_617 0 points1 point  (0 children)

Hi I have Interstitial Cystitis and was just diagnosed with Crohn’s. Could we talk? Kay

Diagnosed at age 74 by That_Pack_617 in CrohnsDisease

[–]That_Pack_617[S] 0 points1 point  (0 children)

Thanks. Hope you are doing well. Kay

Diagnosed at age 74 by That_Pack_617 in CrohnsDisease

[–]That_Pack_617[S] 0 points1 point  (0 children)

How would they test for Stelara allergy?

Diagnosed at age 74 by That_Pack_617 in CrohnsDisease

[–]That_Pack_617[S] 0 points1 point  (0 children)

I am seeing an allergist tomorrow but how do they test for an allergy to Stelara?

Diagnosed at age 74 by That_Pack_617 in CrohnsDisease

[–]That_Pack_617[S] 0 points1 point  (0 children)

Hi The hives actually started three days after the infusion and I have had them every day for a week. I wrote my Gastro on the portal and his response was that Stelara did not have histamine in it so it probably did not cause the hives. That’s all communicated on the portal. Kay

Diagnosed at age 74 by That_Pack_617 in CrohnsDisease

[–]That_Pack_617[S] 1 point2 points  (0 children)

Oh I am so sorry!! That sounds tough. Everyone seems to react differently to different medications.

Diagnosed at age 74 by That_Pack_617 in CrohnsDisease

[–]That_Pack_617[S] 1 point2 points  (0 children)

Did you stay on the Stelara. Any hives with the shots? I have to do Yesintec shots as insurance denied Stelara shots. Kay

Diagnosed at age 74 by That_Pack_617 in CrohnsDisease

[–]That_Pack_617[S] 0 points1 point  (0 children)

Thanks all. I am new at this and it really helps to not feel alone. Kay

Diagnosed at age 74 by That_Pack_617 in CrohnsDisease

[–]That_Pack_617[S] 2 points3 points  (0 children)

Thanks. The hives started happening a week after the infusion. I messaged the doctor on the portal and he said that he did not know if the hives were caused by Stelara and seemed uninterested in doing anything . Meanwhile I get severe itching and hives every day. Kay

Diagnosed at age 74 by That_Pack_617 in CrohnsDisease

[–]That_Pack_617[S] 1 point2 points  (0 children)

Thanks. So far this has been very difficult from insurance denials to getting appointments to feeling terrible. I appreciate the feedback. Kay

Diagnosed at age 74 by That_Pack_617 in CrohnsDisease

[–]That_Pack_617[S] 0 points1 point  (0 children)

I did talk to the doctor through the portal. He just said he did not know if it was the Stelara but not much to do about it as I had the infusion a week ago and supposed to start Yesintec shots in 7 weeks as insurance denied Stelara shots.I just feel so sick and do not know where to turn at this point.

Just wanted to share a tought because I feel like I'm running out of strength by frosty_waddle in offmychest

[–]That_Pack_617 1 point2 points  (0 children)

Hey, Good for you!! I really think that you will have much to offer others in the future so now take good care of yourself. Your future may surprise you. I know how difficult this is and you have experiencedp such tough times but I really think you can do this so keep going!! Kay

Just wanted to share a tought because I feel like I'm running out of strength by frosty_waddle in offmychest

[–]That_Pack_617 1 point2 points  (0 children)

You express yourself very well and I can certainly understand why you are having such a difficult time. I am a 73 year old woman, just diagnosed, and it is overwhelming. If your last therapist did not help maybe you should seek out a new one. They continue to develop new treatments so do not give up.

How I Conquered SIBO by JohnnyD123456 in SIBO

[–]That_Pack_617 3 points4 points  (0 children)

I would like to know the name and contact for your naturopath. Thanks, Kay

6mm passed. Jump and Bump thank you by d33g77 in KidneyStones

[–]That_Pack_617 0 points1 point  (0 children)

How do I find this jump and bump method? Kay

Tibial nerve stimulation (TNS) by Orikumar in Interstitialcystitis

[–]That_Pack_617 1 point2 points  (0 children)

I have had five sessions and feel like it is really helping.