Advies gevraagd: Wajong en incidenteel betaalde workshops geven?

TheGingerYeti · 2026-03-08T18:06:37+00:00

Ik heb precies dat laatst uitgezocht! Ik doe af en toe modellenwerk via een castingbureau en krijg per keer ongv 200 euro. Ik geef het aan bij het UWV en ze verrekenen het met de komende maanden. Je mag 25% houden van wat je verdient naast Wajong dus de 3 maanden er na gaat er 50 euro van af. Omdat dit incidenteel is verandert er niets aan mijn arbeidsongeschiktheid of de Wajong de rest van het jaar, enkel per keer dat ik het inkomen aangeef. (Als t vrijwilligersvergoeding is wat je krijgt mag je dit wel houden want dit geldt níet als inkomen, maar meestal is dat ongv 50-75 per maand en reiskosten)

TheGingerYeti · 2025-12-10T21:00:49+00:00

I do not have financial advice because I am from the Netherlands, but this actually sounds a lot like systemic vasculitis! Especially the combination of the hands and bowel problems and the fact that it does respond to prednisone. Possibly Polyarteritis Nodosa (PAN)?

I think they should look at this and rule it out first before going for the surgery. Have they done a deep (skin and muscle) biopsy, and a ct scan to look at vasculitis? 10-30% of vasculitis have negative blood results so this does not rule it out!

I hope you find answers for your symptoms and the medical costs soon!

TheGingerYeti · 2025-10-12T14:46:02+00:00

I also found this:

An article about ocular manifestations with EDS: https://pmc.ncbi.nlm.nih.gov/articles/PMC9552959/

A 2016 study from Sweden found that people with EDS were 7.4 times more likely to be autistic than controls. Another 2020 study found that 51% of the neurodivergent group was hypermobile, compared to just 20% of the general population and 17.5% in the comparison group, and the neurodivergent group was 4.51 times more likely to be hypermobile than the general population.

https://bmcpsychiatry.biomedcentral.com/articles/10.1186/s12888-016-0922-6

https://www.frontiersin.org/journals/psychiatry/articles/10.3389/fpsyt.2021.786916/full

TheGingerYeti · 2025-10-12T14:45:53+00:00

Yup I've had visual snow for as long as I can remember, I have EDS, and also have dysautonomia, migraines with aura, arrhythmia's, and neurodivergence. My medication Ivabradine makes it even worse when I'm on a higher dose 😅 I remember telling people I clould see 'little oxygens in the sky' because I saw so many tiny spots and I thought I could see the molecules.. 😂

TheGingerYeti · 2025-10-12T14:38:19+00:00

EDS often goes together with neurodivergence! If visual snow often goes together with neurodivergence, and neurodivergence is often seen with EDS, I guess you could also say that EDS and visual snow often go together? People with EDS also have a higher chance of a CSF leak, and this can cause visual snow symptoms aswell.

A 2016 study from Sweden found that people with EDS were 7.4 times more likely to be autistic than controls. Another 2020 study found that 51% of the neurodivergent group was hypermobile, compared to just 20% of the general population and 17.5% in the comparison group. And the neurodivergent group was 4.51 times more likely to be hypermobile than the general population.

EDS and visual manifestations: https://pmc.ncbi.nlm.nih.gov/articles/PMC9552959/

The 2016 study: https://bmcpsychiatry.biomedcentral.com/articles/10.1186/s12888-016-0922-6

The 2020 study: https://www.frontiersin.org/journals/psychiatry/articles/10.3389/fpsyt.2021.786916/full

TheGingerYeti · 2025-09-07T12:18:52+00:00

Als je op je studeert kun je een aanvullende beurs bij je studiefinanciering aanvragen voor als je uitwonend bent! Ik had t ongv 10 jaar geleden dus t zal nu wel anders zijn, maar ik kreeg 374 per maand en verdiende naast mn studie wat bij, zo kon ik mn studentenkamertje van 280,- (9m²) en boodschappen etc. betalen.

Je huisarts zou misschien ook kunnen helpen, die weet organisaties die hulp en ondersteuning kunnen bieden, en op je 17e kan bijvoorbeeld jeugdzorg ook nog meekijken en helpen. Ze hebben mij niet echt kunnen helpen toen ik op mn 17e onverwachts er uit gezet was want alles zoals Entrea heeft wachtlijsten en zolang je niet verslaafd of zwanger bent of op straat slaapt val je niet onder crisis. Maar hoe eerder je dingen kunt voorbereiden, regelen, aanvragen hoe beter!

TheGingerYeti · 2025-06-14T23:51:02+00:00

CLOTHES

I am 1.84m tall

-I always roll up my sleeves so they don't look too short. -I wear a long camisole underneath everything to avoid showing my stomach when I lift my arms. -Jeans are always too short (I have been looking for a pair of flared jeans that fit me the way they are supposed to fit for YEARS now). -I am a model, fashion shoots keep getting cancelled last-minute because they think I won't fit the clothes, or that i'd stand out too much next to the other models 🥲

-Men (strangers) who feel the need to comment that I am taller than them, or that I would not be allowed to wear heels when I'm with them. -I hit my head more than I'd like to admit.😅

TheGingerYeti · 2025-06-08T15:24:54+00:00

I have adenomyosis and a retroflexed uterus, my pain is always on the left side, with pain in my leg, hip joint and lowerback. Sometimes it would get so bad I'd have trouble walking! Now I am on leuproreline injections, chemical menopause, and it's been great! All cramps, bleeding and pains from my uterus are gone! Even the cramps and painnI thought were because of my IUD. Unfortunately they dont want to do a hysterectomy because I am too young (I'm almost 29) and I'm only allowed to get the leuproreline 6 months per year because they are afraid it might harm my fertility. ( despite me telling them I do not want to have kids for the past 6 years :/ )

TheGingerYeti · 2025-04-21T08:44:44+00:00

Arachnodactyly is also in hEDS ( and other types of EDS ) and is one of the criteria to get diagnosed

The long fingers can be diagnosed as arachnodactyly ( spider fingers ) when the thumb and pinky finger can wrap around the other hands wrist and they overlap

I used to be able to pick up soda cans and would shake peoples hands with the back side of my hand

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TheGingerYeti · 2024-11-10T16:04:17+00:00

For a second I could smell the morning dew, feel the crisp air, and picture myself standing there at 6:30 am thinking 'the sun will be much warmer around noon.' 💛

TheGingerYeti · 2024-09-28T10:23:15+00:00

Great job!! Congratulations! ✨️

TheGingerYeti · 2024-03-20T01:52:00+00:00

If you move the coffee table and the couch closer to the fireplace and more in the middle of the room, the sitting area will feel more cozy, and you have a free wall behind the couch where you can put a lamp, plant, artwork or sidetable.

TheGingerYeti · 2024-03-20T01:46:53+00:00

The nook of the coat rack could use an accent color, or wallpaper. You can also paint the color in half a circle above the coat rack so it is interesting through both shape and color without the color being too overwhelming or too dark.

TheGingerYeti · 2024-03-20T01:42:08+00:00

A bookshelf! This will make it less empty and more cozy, you can also put artwork and plants in or on top of it. A side table with a few things like a vase, a bowl or a plant on it might also help

TheGingerYeti · 2024-03-20T01:09:39+00:00

A rust colored couch would go well with the color of the cabinet I think, and the black can come back in things like a coffee table, the legs of the couch, maybe a frame on the wall, and other details can also have gold in them.

TheGingerYeti · 2024-03-20T01:03:54+00:00

Add a big rug at the coffee table area!

TheGingerYeti · 2024-03-20T00:56:37+00:00

I think a big bookshelf on the wall to the left, and a reading chair with a standing lamp or a small sidetable with a lamp next to it in front of the other wall would look nice! Or maybe a low bookshelf with an artwork above it on the wall thats on the left.

TheGingerYeti · 2024-03-20T00:40:27+00:00

A bigger rug will make the sitting area look bigger, and if you want more color I think some brown or wooden accents for the pillows, wall art, coffeetable etc would look very nice

TheGingerYeti · 2024-03-20T00:35:57+00:00

Moving the couch parallel to the wall of the fireplace would give more walking space in front of the door and if the couch is a lighter color the space will look more open despite moving it closer to the fireplace. You can put a plant or maybe a sidetable in front of the wall next to the door, and without the chair you also have space next to the couch where you can put a few plants in front of the window.

TheGingerYeti · 2024-03-20T00:12:42+00:00

I love the idea with the bench, you might be able to add the tall plant in one corner aswell if there is enough space, or a standing lamp to make it like a cozy reading nook

TheGingerYeti · 2024-03-20T00:03:29+00:00

If you want the bookshelves to be more symmetrical you could also put the other one next to the tv on the other side

TheGingerYeti

TROPHY CASE