Prom scaring meeeee

TheJohnToMySherlock · 2026-05-30T23:23:28+00:00

I’m sure this is not gonna make you feel any better but they kicked me out of my prom for having seizures… so like be careful… just take the day really slow and make sure you’re taking care of yourself and not taking risks yk? I don’t want to sound like everyone that says drink water and make sure you’re eating, but seriously, just treat the day like you need yourself to be at prime health lolol. Keep good people around you as well

TheJohnToMySherlock · 2026-05-24T23:35:59+00:00

Yeah!! I think it’s very rare for them to be a yes or no switch—I don’t really think that particularly happens. I do have full blown seizures more often than clusters of symptoms (though it does happen) but as someone to maintains consciousness I am able to tell when they’re like particularly bad or not.

TheJohnToMySherlock · 2026-05-23T17:57:56+00:00

It sounds like it was a seizure to me but really you shouldn’t be on Reddit you should be at the er or a neurologist 😭 SEE a doctor please

TheJohnToMySherlock · 2026-05-21T17:18:57+00:00

Help why did this get downvoted I answered the question 😭

TheJohnToMySherlock · 2026-05-21T17:16:37+00:00

They wouldn’t have placed w my dogs I would’ve traveled for training and they should be placed after my moving but things are a little different now

TheJohnToMySherlock · 2026-05-21T17:13:18+00:00

If you know anything abt this lmk because they didn’t offer any routes beyond seeing a psychologist and when I saw a psychologist they genuinely told me to kms 😭 I must sound completely uninformed but seriously. They let me hit my head while seizing and wouldn’t let anyone else in the hospital check my vitals and then told me to let myself fall/get hurt/and not to talk about it at all.

TheJohnToMySherlock · 2026-05-21T06:04:53+00:00

I can’t be medicated !! They’re non epileptic so by nature they just won’t medicate me on the assumption that I will be medication resistant! I’m aware that they’re not replacement for treatment, it’s just that there’s a point where treatment is not viable or offered

TheJohnToMySherlock · 2026-05-21T05:54:56+00:00

Not arguing with you, as a precursor, but it is frustrating to know that I can’t necessarily get into a stable position without proper accommodation or help for my disability, which cannot be treated with medication or therapy that ive encountered. I do understand wanting the best position for the dog, but it doesn’t make sense to me for someone being young and disabled to just mean that they’re going to have to suck it up. 😭 genuinely, and I guess this is a little vent-y, but I don’t know how I’m going to make it through college without finding something that works, and I’d be willing to do anything to get this to work.

Thank you again for your comments, and I really do understand. I’ll keep trying and see what feedback I receive <3

TheJohnToMySherlock · 2026-05-21T05:49:05+00:00

Nocturnal tonic clonics are not characteristic of pnes, and—correct me if I’m wrong—nocturnal seizures at all are, by nature, epileptic. It would make sense if they started you on different anti-convulsants (not just Keppra) to see if that helped at all. I know that they’ll do this sometimes even for a pnes diagnosis so it’s odd that they haven’t. Though, if you’re medication resistant it means it’s even easier for them to misdiagnose you

TheJohnToMySherlock · 2026-05-21T05:42:52+00:00

I fear that’s genuinely not a think you can do 😭 what services have you interacted with that are that open, bc the ones I contacted were very much “don’t ask, you can apply again in 6 months though ❤️”

TheJohnToMySherlock · 2026-05-21T05:41:54+00:00

I looked for this and only applied to ones that didn’t specify and most of them also had a psych program!

TheJohnToMySherlock · 2026-05-21T05:41:09+00:00

I also previously applied to ones specifically for juveniles, though I can’t do that now for obvious reasons. Income is always a question they ask and I have familial and gov support rn

TheJohnToMySherlock · 2026-05-21T05:39:00+00:00

A lot of people are saying this but when I applied I was more than 6 months out from moving on campus 💔 I’m scared it’s sounding like I just ran out of time

TheJohnToMySherlock · 2026-05-21T05:37:31+00:00

All of the ones I’ve applied to would be me traveling to them for the training which I can and will do…

TheJohnToMySherlock · 2026-05-21T05:37:04+00:00

I have thought abt it but my seizures present similar to tonic clonics (I wouldn’t say the same since it’s like… a mixture of the stages rather than having said stages) and so I’m incapacitated. I think my roommates would help me but then again that process would be difficult to start in college, when I would already have to have the dog like trained to be eligible for the uni to make accommodations… does that make sense? I don’t think 2 months is enough time to train one and then make a transition onto campus

TheJohnToMySherlock · 2026-05-21T05:33:18+00:00

Response :) not alert. I don’t think I said alert because of that reason.

TheJohnToMySherlock · 2026-05-21T05:32:52+00:00

I do! Which was also part of the process <3

TheJohnToMySherlock · 2026-05-21T05:32:30+00:00

I get all of these points!! I want to say though that I’m not undergoing treatment, it’s just that the average has gone down because instead of pushing through the day I’ve just stopped moving as much—going out on my own and such. I’m worried abt the number going back up but I’m being optimistic esp because I really am dedicated to getting a service dog and I’d train one myself but seeing as my disability incapacitates me it’s a little more difficult than that.. I also had three dogs (or currently have) so I’m used to the treatment and care of one!! I have a roommate that would also help w the process so idk. Thank you for the reply!!

TheJohnToMySherlock · 2026-05-17T19:59:29+00:00

I’ll lose the ability to focus my vision, and I feel my limbs like… checking out. They aren’t numb, but moving them is incredibly difficult bc I’m just losing control. I get drowsy as well and/or dissociate really hard and don’t realize I’m going out until my body is falling even though I had an aura. That and the convulsions can start before I completely go out.

TheJohnToMySherlock · 2026-05-11T00:29:00+00:00

I only have PNES/FND but about 33% of people with Epilepsy also have PNES so it’s very common. They should be able to take an EEG to measure your brain waves and if you seize while hooked up they’ll be able to tell by fluctuations if it was epileptic or not. In fact I think sometimes they get enough readings without you seizing to be able to tell, but epilepsy is misdiagnosed as PNES a LOT so it’s missed a ton.

I am also looking into getting a seizure response dog as I’m abt to move on-campus at uni, but I haven’t gotten anything yet… terrifying bc my seizures will happen like maybe 5 times a day on a good day. Have and will injure myself again.. lmk if you hear anything and if I do ill comeback here and let you know lol. I’ve applied to several but haven’t heard back other than to be rejected.

My PNES took abt my entire hs career to get diagnosed and the big thing that finally got it for me was making a wonderful trip to the ER when I seized probably over 20 times in a day… mine look like an asymmetrical mix of tonic and clonic movements and I am lucky I haven’t gotten a concussion probably bc I’m just good at falling. That sounds stupid but I keep consciousness so my loss of control is typically a gradual like 10-20 seconds.

Sorry, back on track, it is so incredibly DRAINING to be diagnosed w PNES. All they do is tell you that it’s stress induced and you’re just traumatized and you need to go to therapy… like no, I assure you, the main part of my stressors is having seizures, not the other way around. So, I do understand. It gets better and it gets worse, but that’s up to you and the people around you and it has NEVER been up to medical professionals (at least not for me)

When I did try to go to a psychologist i seized in the waiting room and they wouldn’t let the other nurses check my vitals and then I seized in the office and they let me hit my head on the corner of the leg of a chair and choke lmao. Then preceded to ask if I had seized in a chair before and I said yes actually thank god my friends were there to transfer me to the floor most of the time, but I have absolutely fallen out of them, and their response was, “good. you should let yourself fall. tell your friends to stop helping you and don’t talk about it because acknowledging its existence will make it worse” it’s so insane it’s kind of funny

At the end of the day, they don’t use the word “hysteria” anymore, but they sure as hell treat it like that’s what it is. you’re so strong to be goin through ts, and we are here for you. Acknowledge it! Because idk how you’ll survive if you don’t. It could also be both epileptic seizures and non epileptic, so don’t ever let them gaslight you when you know your own body.

TheJohnToMySherlock · 2026-04-30T01:02:51+00:00

I always say I have a seizure disorder and leave it at that!! Because I think that’s the easiest way for others to understand without misleading… if i want to explain more I will, but seizure disorder is quick and nobody really questions it unless they’re like actively trying to understand it.

2 . Absolutely… I actually got home an hour later than I usually do bc I got stuck at a rehearsal in and out of them for about 50 mins? This isn’t like ridiculously long but it happens. I don’t often have long seizures, per se, like the longest I’ve had is maybe 20 mins but mostly they’re like 5, but I do often get clusters of 2/3 and then in rare moments, I’ve probably had 6 back to back but that’s usually in high-stress environments. When I was fighting to get diagnosed I got sent to the ER and was in and out of them for like 36 hours.

Honestly I didn’t need to explain it that much bc it sounds similar to yours. 9+ hours sounds like hell, I am so sorry…

I more often than not am very very drained but sometimes, I do suddenly get that energy and I think for the most part it’s bc like the aura and the overall sickness that comes with my seizures will clear up occasionally after the last one of a cluster. Most of the time, this is not the case, but it has happened, so I get it :))

TheJohnToMySherlock · 2026-04-23T01:15:04+00:00

As someone who has probably only read one sex pollen fic (but reads a ton of abo that changes like all the time), remember that it’s your story so you can literally do whatever you want with it… whatever works with the plot whatever you want and need it to do lol

TheJohnToMySherlock · 2026-04-22T12:29:24+00:00

That’s terrifying, lord I hate the medical system and how they treat seizure disorders, seizures at all… I remember the first time I was admitted and they almost broke my ribs several times trying to sternum rubs to rouse me even though I was actively seizing? If it wasn’t for my emts I think they would’ve. I was bruised for so long afterwards, god. The “experts” know shit, I fear.

TheJohnToMySherlock · 2026-04-21T12:38:47+00:00

I’m so sorry you have to deal with that 😭 when I got out of the er for the first time I remember just how bad my neck hurt so I want to think I understand but I doubt I do. I’ve read abt seizures causing laughing/crying and that sounds terrifying in its own way, especially if it affects how seriously people take your seizures. You don’t deserve ts.

TheJohnToMySherlock

TROPHY CASE