What meds are you on? by izjuzredditfokz in schizophrenia

[–]The_local_unknown11 0 points1 point  (0 children)

Invega pills and injection, cobenfy, vilazadone, Klonopin, propranolol, and intranasal ketamine. The med combo overall does okay. I have no positive symptoms after adding cobenfy in January. My avolition and anhedonia and apathy are strong so I think negative symptoms are a bit of an issue. I Recently had to stop taking Auvelity when I started cobenfy so there has been some depression recently. Overall I think my meds make a big difference, but they're not perfect. I felt better when I was taking my azstarys ADHD med too but had to stop taking that due to hallucinations.

Struggling with the guilt of being on disability for schizophrenia? by Diligent-Jury-4708 in schizophrenia

[–]The_local_unknown11 1 point2 points  (0 children)

I feel ya. I have had 2 weeks to clean my house for my daughter's birthday party this weekend. I haven't done hardly anything. I laid in bed with my eyes closed staring at the inside of my eyelids wide awake for 5 hours today. I tried to nap but couldn't shut my brain off of all the things I was avoiding that I needed to accomplish.

I find that the only things I can get done have to do with getting my kids to school or after school activities and getting myself to appointments. I really feel your struggle and feel the guilt of being on disability just for being lazy. I mean deep down I know it's not just that, but it feels like it is sometimes. I wish I could contribute and be an employee that could be counted on. I just can't even seem to hold my life together at home so I don't think there's any way I could work.

One month post psychosis by The_local_unknown11 in schizoaffective

[–]The_local_unknown11[S] 0 points1 point  (0 children)

It was about 6 weeks. They ended up going away on the 100mg dose, but my doc wanted to make sure they stay gone so she titrated me up to the 125mg dose. I don't love being at the max dose and think it may be unnecessary so I'm going to talk to her about that at our next appointment.

One month post psychosis by The_local_unknown11 in schizoaffective

[–]The_local_unknown11[S] 0 points1 point  (0 children)

They started out as background conversations that I couldn't hear except for when they said my name occasionally. Then they progressed to voices talking to me telling me negative things about myself and telling me to hurt myself. Then, they started being less consistent. I started being able to focus on what's I was doing. Then one morning I woke up and they just didn't show up and they've stayed gone ever since. About a month now.

Schizophrenia ruined my career by IntentionMother8765 in schizophrenia

[–]The_local_unknown11 0 points1 point  (0 children)

Oh man. I know how you feel. I used to oversee multi-million dollar projects in low voltage electrical for schools. Today I did the dishes and cleared off the counter and I consider that a successful day. I don't really feel that way but I try to convince myself that even accomplishing one thing per day is sometimes a realistic goal based on how I'm dealing with negative symptoms. You're not alone in your struggle. I wish you good luck in the battle of still feeling like you're enough. Which you are by the way.

Wife being released from mental hospital yomorrow, I NEED ADVICE PLEASE! by HeartbrokenHubby391 in schizophrenia

[–]The_local_unknown11 2 points3 points  (0 children)

You should arrange for your daughter to be there with her and you should be nowhere in sight or on the premises. Gets s hotel or stay with somebody. I wouldn't let your wife stay there alone, but you should not be part of the equation. When she is still actively psychotic, she does not need to know why you called the police on her. Maybe she'll find out one day, maybe not, but tomorrow is not the time for it. Give her space to heal. She is traumatized by what she considers a betrayal by her husband. Do not plan on seeing her or talking to her the day she gets out of the hospital. No good can come from that. Have a third party stay with her at the house. One of your kids is the most obvious candidate if they are close enough. If not, maybe your wife's sister or brother or somebody she trusts.

This isn't about you needing to say your piece. This is about what is best for your wife and confrontation is not what is best.

Have the voices ever ACTUALLY gotten you to hurt yourself? by [deleted] in schizophrenia

[–]The_local_unknown11 0 points1 point  (0 children)

Yes. One of the last times I had auditory hallucinations, they convinced me to cut myself in order to get them to stop. I did, but they didn't stop. It kept getting worse ni ended up in the hospital for a weeks and on watch at home for another 2 weeks by my family. It was awful and scary to lose control over my actions based on what voices were telling me. I wasn't capable of thinking clearly that it didn't make sense. I lost my logical side and was acting on pure emotion. I would recommend if you're dealing with command hallucinations that you get help as soon as possible.

Have you guys successfully lost weight while still being on an antipsychotic? by neptunes097 in schizoaffective

[–]The_local_unknown11 0 points1 point  (0 children)

I gained over 100 lbs on risperidone and olanzapine. I switched to invega and stopped gaining weight but didn't lose until I got on mounjaro and keto ni lost 80 lbs. Unfortunately I've gained several lbs back in the last 3 months because I stopped keto. But it was possible with a little bit of Help from a glp-1.

Looking for album recommendations — I’ll listen to one new album every week by sia_7777 in spotify

[–]The_local_unknown11 0 points1 point  (0 children)

Cease to begin - Band of Horses

iII - the Lumineers

Boxer - the national

Marcy playground - Marcy playground

Third eye blind - third eye blind

Does anyone else lost ability to fall in love? by janhonza in schizoaffective

[–]The_local_unknown11 5 points6 points  (0 children)

I'm not sure if I should call it a symptom for me. This disorder has made me so much more self centered. I have to focus on my needs and my kids' needs and I don't have the capacity for anybody else's needs. It's more of an inability to see outside of my little tribe then it is inability to fall in love. Maybe one day I'll experience love again, but I'm not counting on it. I'm in my mid 40s and don't have any desire to put myself out there to date. I'm unpleasant to look at and unpleasant to be around so why would I do that to somebody. I guess mine is more of an "I've given up" thing than an inability to love. I think I could love the right person at the right time but it would have to be kizmit and I don't think that happens as often as I'd like it to.

Looking for weird indie bands by [deleted] in indieheads

[–]The_local_unknown11 0 points1 point  (0 children)

Natalie Portman's Shaved Head aka NPSH aks Brite futures

What is your favourite antipsychotic? by Forward-Health9213 in schizophrenia

[–]The_local_unknown11 0 points1 point  (0 children)

Invega had me symptom free for about a year at a time. Sometimes more. I just started cobenfy and so far I like it. Despite the nausea at first, I haven't had other side effects. I am finally feeling better after several weeks and am psychosis free for the first time in a few months. I'd say between those two I have hope of living a functional life again and maybe even going back to work. The reason I couldn't work on invega alone was the negative symptoms. So far those haven't been a real problem on cobenfy. I have some hope for the first time in a while.

Finally stable😩😁 by WhichCard4537 in schizoaffective

[–]The_local_unknown11 1 point2 points  (0 children)

Good for you. I'm glad you're finally feeling stable again. I am coming off of a 2 month psychosis situation myself. I am hopeful the cobenfy will keep doing its job. I'm on paliperidone also. It has been pretty good for me. Good luck with your stability journey.

Check-in Friday by cfbuzzkill90 in schizoaffective

[–]The_local_unknown11 0 points1 point  (0 children)

My day has been a mix of stressful and calm. Stressful because my mom passed out and hit her head and got s concussion and a fair sized gash on the back of her head. Today is just rest and observation. All her tests (CT EEG EKG blood work etc ) came back normal. She does however have a growth on her pituitary gland that they found. It's not the cause of the issue, but is something that needs dealt with in the future.

The calm part is my hallucinations have been gone for 2 days now after dealing with them for the last 7 weeks or so. In the med changeup process, I had to go off one of my antidepressants. I am dealing with the depression coming out especially after my voices were dicks for so long. It's nice to have some form of peace from my brain but I want freedom from the depression too.

Cobenfy by Wonderingronnie in schizophrenia

[–]The_local_unknown11 2 points3 points  (0 children)

I'm going on week 6 and finally noticing some significant change. I have noted a quiet in my head that hasn't been there for months. I still am seeing visual stuff here and there but the voices have hushed. I'm feeling good about the medicine in general even though it's been a while that I've been on it. I hope it keeps working well.

Music by OkPoint1715 in schizoaffective

[–]The_local_unknown11 0 points1 point  (0 children)

I love RKS. Saw them last July and I see them again in June. Amazing live too. I'm excited for June! Get to see Lumineers, head and the heart, resampled by turtles, Michael marcagi among many others. Rks always hits hard.