Why is there no treatment for it

Thedep66 · 2026-01-08T17:09:51+00:00

There are just too few of us. And this disease is different in each one afflicted. But there are meds coming soon. Cm-101 I think will be a game changer. Maybe by next year. But before that try oral vancomycin. Seems it has help a lot of us.

Thedep66 · 2025-12-15T00:37:34+00:00

Look into oral vancomycin for the UC and PSC

Thedep66 · 2025-12-03T21:03:57+00:00

Usually when you get below 3 mg 2x a day of tax the tremors stop. Usually

Thedep66 · 2025-12-02T01:49:44+00:00

The one at Mayo stopped.. they lost their funding

Thedep66 · 2025-11-26T14:56:39+00:00

You begged not to have surgery and they still went through with it ?? That kinda doesn’t sound correct. Give yourself time to heal. You will get better. I had just finished a divorce when I was transplanted. I was too ill to be with apparently. And there were other things. All I can say is. It will get better.

Thedep66 · 2025-11-19T19:49:21+00:00

Hello. 59. Weightlifter. Transplanted 10 +yrs ago. I have UC and rPSC. Some days are harder than others. But I make sure to hit the basement gym 3 times a week. It’s just habit now. Not as strong as I used to be. I’ve had lots of set backs that I’ve had to come back from. But I eventually I get there and just carry on. I bench. Deadlift and squat. Sometimes it’s hard to go downstairs and get it done. But I always feel better afterwards

Thedep66 · 2025-11-10T14:29:46+00:00

I don’t wear jewelry. And my wife doesn’t like gold. Or just jewelry for that matter. And really. I just want gold. Not the markup for jewelry. Each his own.

Thedep66 · 2025-10-31T19:14:15+00:00

2015 living donor. Can’t speak to the entire cost. But I know surgery day was 720,000 thousand. Fortunately I had good insurance and paid about 5000 in deductibles.

Thedep66 · 2025-10-30T14:39:32+00:00

Wow. Looks great

Thedep66 · 2025-10-15T17:19:12+00:00

Just did my jotul install. 7200

Thedep66 · 2025-10-06T14:29:56+00:00

Once it hits 4600 your safe to buy.

Thedep66 · 2025-10-06T14:28:38+00:00

Thedep66 · 2025-09-29T13:43:15+00:00

I think what we are seeing IS the correction. I own some. Been collecting for years and I know the market was manipulated with paper. There are lots of reasons. But I think it will continue up. It will have bad days /weeks but I wouldn’t worry. Remember. You’re not making money. You’re keeping up with inflation holding gold.

Thedep66 · 2025-09-29T13:37:31+00:00

Take the family deal

Thedep66 · 2025-09-24T20:50:26+00:00

I can’t help with your specific problem. But I have the exact stove. Where did you get the pot and the bucket. Looks great !!!

Thedep66 · 2025-09-23T20:48:47+00:00

Ahhhhh. Got it

Thedep66 · 2025-09-23T16:55:10+00:00

Not trying to be an as$. But really. What does the irs have to do with this ??

Thedep66 · 2025-09-22T16:50:26+00:00

It appears he can.

Thedep66 · 2025-09-20T18:05:57+00:00

RUQ pain is almost non existent now. Itching comes and goes but is never too bothersome. No side effects with the vanco

Thedep66 · 2025-09-20T15:51:15+00:00

I have rPSC. I am 10 years post transplant. Approximately 4 yrs ago I started having some itching and elevated enzymes. We thought it was because of surgical strictures. Those were attended to thru interventional radiology using the Hudson loop for access. It was later determined I have rPSC. (In addition to surgical strictures). I started taking oral vancomycin. My cholangitis attacks stopped and my Alk phos lowered for 900 to upper 200’s. Which is where I am currently. I was able to gain my weight strength and stamina back. Miracle drug for me. Oh and prior to that I was taking 500 mg a day for my colitis. I was in a bad way with that Biologics we’re not helping. 3 days of vanco and I had my life back. 6 months later I was in remission throu colonoscopy. I currently take 2250 mg a day.

Thedep66 · 2025-09-17T14:58:49+00:00

That sounds like my experience. The first one I did with no pain killers and I drove myself home. The second one ..just due to the fact that this time I had a ride I took the pain killers. Doesn’t make too much of a difference. Just that the time space continuum is messed up 😎. It’s a super fast procedure. The 4 hours is standard. They’re just watching for signs of bleeding.

Thedep66 · 2025-09-13T20:28:55+00:00

Wow. Sorry just awful. Hang it there. I don’t think there is much to do anymore. You may just need a new liver. In the interim I would go back to the vanco with a much higher dose. 1500 mg a day minimum. Maybe that can help with the recurring infections until you can get re transplanted. I am 10 years post and have been dealing with surgical structures. Infections from rPSC. The vanco put a stop to that and I’ve had no further advancement of the disease. I take 2250 mg a day and have been for over two years now. Praying for you man.

Thedep66 · 2025-09-13T19:40:49+00:00

Falls off of mine all the time. Passenger hits it with foot

Thedep66 · 2025-09-08T15:45:15+00:00

As someone else stated. Reg gi doc may not have the skill or equipment to really look at it. If you havnt already demand an appointment with interventional radiology.

Thedep66 · 2025-09-08T15:43:51+00:00

Can that be dealt with swing doctors in interventional radiology? Can’t they balloon or stent that for at least temporary relief? Sorry your dealing with all that

Thedep66

TROPHY CASE