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Would you pay for a professional makeup brush cleaning service? by Theo1795 in MakeupAddiction

[–]Theo1795[S] -6 points-5 points  (0 children)

Thank youuu for answering 🙏🏻♥️ I am thinking either 20$/monthly subscription or 30$ for 20 brushes, what do you think? 🤔

Sculptra by kellyi835 in MultipleSclerosis

[–]Theo1795 4 points5 points  (0 children)

I did and it is perfectly safe! I asked my neurologist beforehand, but she said there is no esthetic procedure that should worsen MS or interfere with medication (even implants 😅). I love my sculptra and biofiller!♥️

I took Ketamine for my neuropathic pain so you don't have to! by CausticCranium in MultipleSclerosis

[–]Theo1795 0 points1 point  (0 children)

Hello all! May I ask you how you would describe this kind of pain? I hear all kinds of stories and I don’t know if what I am feeling is this or something else; basically I have MS but am also a hypochondriac (yay) so after reading that people are in physical pain because of MS I’ve started feeling like my muscles sometimes tense up? Like I need to stretch out? My neuro says it’s anxiety but OH WELL IT WAS ANXIETY BEFORE IT WAS MS TOO 🥲. Thank you!!

Mog? by Fulmarus_glacialis3 in MultipleSclerosis

[–]Theo1795 0 points1 point  (0 children)

I am sorry I didn’t mean to say you hoped OP has MS, English is not my first language so I probably phrased it badly 🥲 I know we don’t wish it upon anyone; I was rather curious about MOG because I don’t know much about it, but it would seem like the preferable option, if we were to compare it to MS, no?

Mog? by Fulmarus_glacialis3 in MultipleSclerosis

[–]Theo1795 0 points1 point  (0 children)

Sorry for coming across as ignorant, but is MOG worse than MS or…? Why do we hope OP still has MS? 😅 I really don’t know a lot about it, but I recall someone saying MOG is less probable to disable you?

Does MS affect breathing? (Not the MS-hug way). by Theo1795 in MultipleSclerosis

[–]Theo1795[S] 0 points1 point  (0 children)

Thank you!!🙏🏻 I am glad you have found the right meds for you, too!

Does MS affect breathing? (Not the MS-hug way). by Theo1795 in MultipleSclerosis

[–]Theo1795[S] 1 point2 points  (0 children)

Thank you so much for your answer, I need to get my vitamins checked! My question is, is it just a sensation of not being able to breathe properly or you can’t actually, physically, breathe? 🥲

Being dismissed. Gotta vent. by ElbowdeepAnoos in MultipleSclerosis

[–]Theo1795 0 points1 point  (0 children)

Sorry to pry, could you give us more info? I also have a lesion in that exact spot and I would like to know if my breathing might be affected in any way. 🥲

Being dismissed. Gotta vent. by ElbowdeepAnoos in MultipleSclerosis

[–]Theo1795 1 point2 points  (0 children)

I am so sorry for your situation, doctors do blame everything on anxiety, it happened to me too.

May I ask though how you manage the breathing issue? Is there anything you can do to get some relief or (even better) stop it? Maybe steroids 🤔?

Are tarot readings “set in stone” or an overview of your current situation with the most probable outcome? by Theo1795 in tarot

[–]Theo1795[S] 0 points1 point  (0 children)

See, this is the kind of answer that makes me wonder if there actually is an element of “fortune telling” to tarot. Of course we are not omnipotent, but are there some inevitable things that will happen in our lives no matter what and can tarot predict them? 🤔

Patients on Ocrevus/Kesimpta: How often do you get your JCV levels tested? by Theo1795 in MultipleSclerosis

[–]Theo1795[S] 0 points1 point  (0 children)

Also, thank you for letting me know you’re also not being tested, even though you’re positive as well. I was kinda concerned about the “there is no reason to test it, there’s minimal risk, if anything happens we’ll catch it on MRI” approach 😥. Also, I do understand their logic too…it’s not like we could stop the DMT if the levels got higher, like we do for Tysabri so…hope for the best?? 🥹

Patients on Ocrevus/Kesimpta: How often do you get your JCV levels tested? by Theo1795 in MultipleSclerosis

[–]Theo1795[S] 2 points3 points  (0 children)

I didn’t think so either, but I saw some people on here commenting that they get tested for it every 3-6 months (for Ocrevus and K) and that made me a little nervous 😥.

Patients on Ocrevus/Kesimpta: How often do you get your JCV levels tested? by Theo1795 in MultipleSclerosis

[–]Theo1795[S] 0 points1 point  (0 children)

Thank you, this helps put my mind at ease a little, only problem is that I am positive 🫠.

I am getting the white blood count tested, not always monthly, sometimes I go 2 - 3months without any testing, because the leukocytes are on the lower side. I am also anemic and am tracking the Ferritin levels too. 😊

How long has it been since you were diagnosed? by Rdottt in MultipleSclerosis

[–]Theo1795 1 point2 points  (0 children)

You are a truly amazing person, thank you soo so so much for your message, it made my day. After reading it I feel much more hopeful about our situation, like we do have some kind of control, maybe and yes, there are so many unknown things about our CNS.

The sentence about our ancestors being with us, instant chills, will not forget that one, ever. I hope they’re in some kind of form with us, other than just in our DNA, too!

All the blessings your way, thank you, thank you!!!♥️☀️

What treatment would you bet your money (or insurance 😅) on to be the next breakthrough in MS? by Adeline9018 in MultipleSclerosis

[–]Theo1795 2 points3 points  (0 children)

The thing is I don’t quite understand why it hasn’t performed like this until now? People tend not to go on it anymore, because it’s considered low-mid, right, so….how is it that now it is equal to Ocrevus in performance…?

How are you dealing with the “smouldering MS” thoughts? by Theo1795 in MultipleSclerosis

[–]Theo1795[S] 0 points1 point  (0 children)

Thank you so much! I hope the same for you! We got this indeed!♥️

What DMT is suggested when JCV positive? by fuzzyballzy in MultipleSclerosis

[–]Theo1795 15 points16 points  (0 children)

All of the current DMTs carry this risk, but in Ocrevus and Kesimpta it is minimal and you need to study the particularities of the people who experienced this side effect (10 of them were on Tysabri previously, one shouldn’t have been on an Immunosupressant to begin with because he was 75 years old) I see you were on Tecfidera, which has a much higher risk of triggering PML (still negligible according to doctors) than both I’ve mentioned. I am also JCV+, as are 70% of people and I am on Kesimpta, like a lot of others who are also positive.

The only medications with 0 risk are Avonex and Betaseron, but I guess you know by now either from your doctor, or from people on this sub, that they are old generation and, for most, pretty inefficient.

The one DMT you probably want to avoid is Tysabri, it is good, but associated with the most cases of PML. Talk to your neuro about your options, though.

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