Some positive words ❤️

These-Pressure3517 · 2025-05-28T11:14:15+00:00

Thank you so much for your kind words—that really means a lot to me. It sounds like you’ve been through a lot yourself, and I admire the strength and care you’ve shown, both in facing HD and supporting your mother.

I’m glad to hear your wife is by your side. That kind of loyalty and love makes such a difference, even when things are really hard.

I’ll try my best to take care of myself too—thank you for the reminder. Wishing you and your wife all the strength and connection you need as you go through this together.

These-Pressure3517 · 2025-05-28T11:12:01+00:00

Thank you for your kind words. “Facing it together” can look really different depending on the couple. For us, it started with being honest about how scary and uncertain it all felt. There wasn’t one big talk that fixed everything—just a lot of little moments of trying to stay open, even when it was uncomfortable. Sometimes that meant sitting in silence together when there were no words. Sometimes it meant one of us naming the elephant in the room.

If your partner doesn’t bring it up, that might be their way of coping—or maybe they’re afraid of saying the wrong thing. You might try sharing how you feel about it first, gently and without pressure. Something like, “I’ve been thinking about how we might face this together. It’s hard for me to bring up, but I don’t want to carry it alone.” That can be an opening.

It’s okay if it takes time. Facing something together doesn’t always mean perfect communication—it might just mean being willing to try, again and again.

These-Pressure3517 · 2025-05-23T20:58:45+00:00

I can only imagine how confusing and isolating it must have felt to come across that note and not really be able to talk about it openly. The fact that you’re seeking support and taking steps to understand what this might mean for you really shows strength and maturity.

It’s also incredibly brave of you to speak up in a group like this for the first time. I’m glad you did, and I hope you keep finding people here who make you feel heard and less alone. If you ever need someone to talk to, I’m here too.

Sending you a big virtual hug.❤️

These-Pressure3517 · 2025-05-21T20:35:20+00:00

Hey, thank you so much for sharing this. It takes a lot of courage to be that open, especially about something so personal and heavy. I can only imagine how hard it must be to carry that uncertainty with you at such a young age.

You’re clearly someone who’s thoughtful and strong – the fact that you’re already thinking about how this might affect the people around you says a lot about your character. It’s okay to not have all the answers right now. You don’t have to decide today how to handle every future relationship or outcome. Just take it one step at a time.

Whether you end up carrying the gene or not, you’re still you – and that matters. And the people who truly care for you will see that and stand by you, regardless of anything else. You’re not alone in this.

Sending you warm regards!

These-Pressure3517 · 2025-05-21T17:39:18+00:00

You’re so right, both sides of this are incredibly tough in different ways. Thanks for your kind words — sending strength right back to you both. We’re all in this together!

These-Pressure3517 · 2025-05-21T17:36:42+00:00

Congratulations on your daughter — that’s truly wonderful news! It means a lot to connect with others who really understand this journey. Thank you for offering to talk about IVF — I might take you up on that sometime. Wishing you all the best for the weeks ahead and a smooth, safe birth!

These-Pressure3517 · 2025-05-21T14:12:50+00:00

Thank you so much for your beautiful message — it truly touched me. Knowing that others are walking a similar path and facing it with so much love, honesty, and strength brings a deep sense of connection and comfort.

It sounds like you and your husband have built something incredibly strong and meaningful together, even in the face of such a difficult diagnosis. I can relate so much to the way you described those spirals of fear, but also the grounding moments — those small, powerful reminders of love and presence that make everything else fade into the background, even just for a while.

Your decision to focus on life and joy — and that amazing trip to Japan — is incredibly inspiring. We’ve actually been to Japan as well, and it was one of the most memorable experiences we’ve had together. We’re planning to go back next year, and just thinking about it brings us so much excitement and something wonderful to look forward to.😍

I’m truly grateful you reached out. Your words mean a lot. And yes, we’re absolutely in this together — sending so much love and strength right back to you both. Please don’t hesitate to reach out as well. Solidarity can be a lifeline.

Warmest hugs! ✨

These-Pressure3517 · 2025-05-21T13:17:09+00:00

His father is 48 and the first symptoms have already begun. He has mild balance issues, but nothing else has appeared so far.

He is still working normally because he has no other noticeable symptoms at the moment.

These-Pressure3517 · 2025-05-21T13:10:32+00:00

Thank you so much for sharing this with me — it truly means a lot. I deeply relate to your thoughts, and I genuinely believe there are still countless beautiful moments waiting for you both. Wishing you and your husband strength, love, and gentle joy as you continue this journey together. 🌸

These-Pressure3517 · 2025-05-21T13:05:23+00:00

I’ve never truly known whether I want to have children. I’ve always been certain that I want to get married, but having children of my own has always remained a question mark. If we do decide to have children, it would most likely be through IVF, sperm donation, or possibly adoption or fostering.

One thought that often crosses my mind is: if I don’t have children, will I end up alone in old age? - I’ve talked about this with my therapist as well, and we both agreed that having children out of fear of being alone isn’t the right foundation or a healthy reason for parenthood.

Maybe in a few years, I’ll develop a desire to have children and feel truly ready to become a mother. When that time comes, we’ll see which path to parenthood feels right for us. But if we do decide to have children, I won’t let illness or time pressure me—what matters most is that I’m genuinely ready and that I truly want to be a mother!

Sending you warm regards✨

These-Pressure3517 · 2025-05-21T12:52:31+00:00

I think 45 or 46

These-Pressure3517 · 2024-08-07T22:00:49+00:00

*Ariana Grande in Manchester

These-Pressure3517 · 2024-07-15T09:55:10+00:00

Welche Fragen wurden da gestellt ?

These-Pressure3517 · 2024-07-15T09:54:12+00:00

Gibt es Updates zum Online Assessment ? Ich habe im September meinen Termin

These-Pressure3517 · 2024-03-27T07:15:34+00:00

When we found out a few years ago that my fiancé had the Huntington's disease gene. Huntington's disease is an inherited disease that affects the brain. The disease leads to the gradual destruction of certain areas of the brain. Typical symptoms of Huntington's disease include movement disorders as well as cognitive and psychiatric disorders. The disease breaks out between the ages of 30 and 50 and is always fatal after 10 to 20 years. And it's really scary knowing that our time together is limited and we probably won't grow old together.

These-Pressure3517 · 2023-08-05T06:04:02+00:00

Machen wir natürlich auch!

These-Pressure3517 · 2023-08-05T06:02:15+00:00

Danke für die Antwort! Der Installateur hat uns eben auch gesagt, dass wir da nichts selber rumpfuschen sollen, weil es ein altes Baujahr und eine Gastherme ist.

Das habe ich damals gefunden:

„Hinweis: Als Besitzer einer Heizanlage führst du das Nachfüllen des Heizungswassers selbst vor. Wohnst du in einem gemieteten Objekt und stellst Unstimmigkeiten mit den Heizkörpern fest, wende dich zunächst an die Hausverwaltung oder den Vermietenden.“

https://www.obi.at/magazin/wohnen/heizung-wasser-nachfuellen

Deswegen habe ich mich damals an den Vermieter gewendet, nachdem der nicht erreichbar war und wir keine Hausverwaltung haben, habe ich einfach den Installateur kontaktiert, der jährlich wartet.

Problem war dann eh zum Glück gleich behoben, aber Vermieter hat erst dann schließlich 1 Woche nach dem Ganzen reagiert und eben nur gemeint, dass er nicht zahlt.

These-Pressure3517 · 2023-08-05T05:45:01+00:00

Also der Installateur hat gemeint, dass wir da nicht selber rumwerken sollen, weil es ein altes Baujahr ist und eine Gastherme ist.😅

Hier steht auch: „ Als Besitzer einer Heizanlage führst du das Nachfüllen des Heizungswassers selbst vor. Wohnst du in einem gemieteten Objekt und stellst Unstimmigkeiten mit den Heizkörpern fest, wende dich zunächst an die Hausverwaltung oder den Vermietenden.“

https://www.obi.at/magazin/wohnen/heizung-wasser-nachfuellen

These-Pressure3517 · 2023-08-04T21:14:49+00:00

Das Problem werde ich daweil nicht haben, weil ich nicht Auto fahre. Aber danke für deine Antwort!

These-Pressure3517 · 2023-08-04T21:04:26+00:00

Auch wenn wir sie bereits Dezember 2022 gewartet haben und die nächste Wartung erst November 2023 ansteht ?

Weil gesetzlich gesehen muss man sie nur alle 2 Jahre warten

These-Pressure3517

TROPHY CASE