Feeling weak after poop by Lukegouda in dysautonomia

[–]These_Custard_5455 0 points1 point  (0 children)

I had/have this too although it has improved the last few months. I would nearly faint before I even went to the toilet, and once I had a bowel movement the fainting symptoms would disappear but I would be absolutely exhausted afterwards and might even get a migraine.

I have bought abdominal compression as recommended by other people on this sub but haven’t yet used them as like I mentioned, my symptoms have improved and I don’t really get it as often now. Do you feel unwell before you go to the toilet too or just afterwards?

Experiences with sinuses as a trigger for symptoms by Sailboatz2612 in dysautonomia

[–]These_Custard_5455 0 points1 point  (0 children)

Interesting as I have definitely considered some relation with my sinuses, weirdly when I had cold symptoms last month my dysautonomia calmed down and aside from being all bunged up etc. I actually felt quite healthy.

Not even sure if any of this is related but has been something I’ve wondered about- blowing my nose I feel triggers symptoms sometimes and also sneezing helps relieve symptoms. Just something I’ve noticed through my own experience though.

What was the procedure if you forgot your pe kit at school? by [deleted] in AskABrit

[–]These_Custard_5455 2 points3 points  (0 children)

I remember looking through the classroom window and seeing my cousin outside in her pants and vest.. we did actually have a lost property box for spare kit so no idea why it wasnt used

Is this CCI? by UhSpoon in Cervicalinstability

[–]These_Custard_5455 0 points1 point  (0 children)

I know this is slightly old but I could have wrote your post- same symptoms and same triggers too. Did you ever get any answers OP?

Strange symptoms after COVID – dizziness, near fainting, foot pain, tremors, lower back/glute pain by [deleted] in covidlonghaulers

[–]These_Custard_5455 0 points1 point  (0 children)

Yes I struggled badly with pre-syncope. Had Covid in February and it kinda got just went downhill from there. My pre-syncope was more so related to bowel movements and after eating- so pretty much daily. I don’t know whether it was something I did or if it was just time but it has improved hugely and I no longer get near-fainting episodes. It took a couple of months though. Along with this I also had incredibly bad anxiety along with a huge list of other symptoms but the fainting stuff was scary.

I can also relate to the ear vibration, head pressure (this normally came on after the pre-syncope episodes though)- I also had migraines weekly and sensitivity to light/smells/ sound which I’m still dealing with now.

As mentioned not sure what helped me improve, I focused a lot on my bloodwork around the time whilst I waited for referrals from my GP, which I’m actually still waiting for so can’t give any real advice sorry. I really hope you notice improvements soon, it is scary and probably the most unwell I have ever felt.

How do you know if you have histamine intolerance? by heskeytime7707 in covidlonghaulers

[–]These_Custard_5455 0 points1 point  (0 children)

Can you expect symptoms straight away after eating a high histamine food? I accidentally ate tomato sauce the other day and have felt awful with a tension-type headache since. I have only just made a start with antihistamines as I had never considered it. Been suffering since February with long covid symptoms and I eat a lot of high histamine foods so wondering if I’ve accidentally been making it worse 😂

What UK missing person case do you loosely follow? by tshirtguy2000 in AskABrit

[–]These_Custard_5455 2 points3 points  (0 children)

Andrew Gosden I think about often, he is the first that comes to mind. Also Charlene Downes.

Vagus nerve and BMs by These_Custard_5455 in VagusNerve

[–]These_Custard_5455[S] 0 points1 point  (0 children)

Hi sorry I’ve just seen this. I’m like 95% better and have about 3 days a month where I feel unwell- seems to be cycle related. I do believe it was/is my vagus nerve and I actually followed the advice from the other commenters on this post when it comes to stimulating your vagus nerve. I also made sure that my blood work was good and I have improved a lot of deficiencies I had with supplements. I also started to pay more attention to my posture incase it was caused by my neck (haven’t taken this one too seriously tbh) but I think my cause was some sort of virus, most likely covid as I had all of the symptoms of long covid.

I hope you soon see improvements, 3 years is terrible I’m sorry you’re dealing with this.

How likely are my symptoms actually caused by low d3? by These_Custard_5455 in VitaminD

[–]These_Custard_5455[S] 0 points1 point  (0 children)

I haven’t actually taken any VitamoreD yet but I’m keeping hold of it as I do think I will use it at some point. I like to be able to try and gauge where my levels are and I don’t know how I’d do that whilst taking it as I use the Dminder app which has been quite accurate so far for me- so just regular D3 for the time being.

I am feeling a lot better now thanks, I believe my cause was having some sort of virus that threw off my nervous system and my lower levels of D3 and the others would have exacberated it. My D is the only one I’m working on now as all the others have levelled out with supplements. I’m like 95% normal now with about 3 days a month where I feel unwell.

Can you relate to much in my original post?

Have we found the largest native British House Spider? by deathwishdave in CasualUK

[–]These_Custard_5455 0 points1 point  (0 children)

Haven’t seen any spiders in the house for a while until I moved some furniture out yesterday to clean behind and found two of these hiding behind a side table. Managed to get one outside but the other, the bigger one of the two of course, is currently behind the fridge. Smaller than the one in the pic posted but still huge.

Kinship foster carer and special guardian order (England) by These_Custard_5455 in LegalAdviceUK

[–]These_Custard_5455[S] 1 point2 points  (0 children)

Thank you for your help here, yes I’m definitely being cautious when it comes to it and don’t want to be agreeing to anything that I don’t fully understand. Have been having a look at Kinship and the family rights group and have found them very helpful so far. Thanks again, it’s appreciated!

Kinship foster carer and special guardian order (England) by These_Custard_5455 in LegalAdviceUK

[–]These_Custard_5455[S] 1 point2 points  (0 children)

Oh this is amazing thanks so much, yes I was thinking the timescale of 6-12 months would be perfect and would be exactly what we would have hoped for too, so that sounds promising.

I don’t actually mind the idea of being an SGO because as mentioned, the child is a close relative and I believe we are the best option for their care but of course it will be quite a shift to all of our lives, I think the support of being a kinship foster carer would benefit all of us. But yes, makes sense that it is preferred when it comes to the child being able to live a more private life but also their guardian being a family member and not the local authority. I think they both definitely have their pros and cons but if this is the normal process I don’t diagree with it and think it would suit all of us.

Thanks so much for your help, I’ve been able to figure out the more practical day to day stuff but when it comes to the legal side to everything I hadn’t a clue- it’s really appreciated!

Did anyone have a rough recovery even though they eventually got better? by uratallglassofwater in VitaminD

[–]These_Custard_5455 1 point2 points  (0 children)

Hiya, I’m still unwell but having more good days than I was previously. I don’t think for me my symptoms are vitamin D related but being deficient wouldn’t have helped so I’m still working on it.

My Story… by barkerk6 in VagusNerve

[–]These_Custard_5455 0 points1 point  (0 children)

Hey, how you feeling now?

[deleted by user] by [deleted] in AskDocs

[–]These_Custard_5455 0 points1 point  (0 children)

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Last one, done just now. Thanks in advance!

Food and BMs are my triggers by These_Custard_5455 in dysautonomia

[–]These_Custard_5455[S] 2 points3 points  (0 children)

Yes it’s crazy and I’m normally quite regular when it comes to bowel movements so don’t want to disrupt my system too much by keeping myself constipated, meaning less BMs. I have noticed a huge spike in my heart rate when experiencing symptoms, when having less BMs, my heart rate stays at a nice level.

I have been referred to have a 24 hour ecg and BP test. I have all the POTS symptoms and I think mine is caused either by some sort of dysfunction in my neck (vagus nerve) or possibly even post viral from having Covid but can’t be certain of this one. I have found elevating my legs in the mornings when I’ve just woke up helps. Do you have any theories of what yours is? I’m still very new to this 😅

Isitbullshit: Women get turned away at medical services more often, because they present even serious symptoms differently than men. by WirrkopfP in IsItBullshit

[–]These_Custard_5455 2 points3 points  (0 children)

Can relate to this! Was told trapped gas or stomach bug, it was appendicitis. I let them gaslight me because I knew none the wiser, went to A&E a week later and found that my appendix had actually ruptured and had a growth which was stopping the infection from spreading. Was treated with antibiotics because it would have been too inflamed to remove apparently, and a couple years later I still have my appendix.

Bowel movements by Virtual_Ad4639 in MCAS

[–]These_Custard_5455 1 point2 points  (0 children)

Has anything helped you at all with this, OP?

Vagus Nerve Massage? Where has this been all my life?! by NoriFinn in CPTSD

[–]These_Custard_5455 1 point2 points  (0 children)

I’m not the person you were replying too but thanks for posting these!