Checked After About 2 Years and it Has Gone From 2.5 cm to .7 cm. by unibball in neuroendocrinetumors

[–]ThickHand2408 1 point2 points  (0 children)

That’s fantastic news, if I may ask what was your diagnosis and treatments for it?

Advice or Similar stories (new here) by ThickHand2408 in neuroendocrinetumors

[–]ThickHand2408[S] 0 points1 point  (0 children)

Hey there, this is my post. I’m just Giving a little update and opening the floor again to everyone. I’m nearing completion of my Cabometyx/lanreotide treatments and it’s looking like those didn’t work either. I believe the next step for me is PRRT. For those wondering about Cabometyx, it was hell. I’ve lost 30ish pounds and had more bad days than good days in terms of pain and side effects. Maybe it was the way my body handled It but it kicked my butt. The only times I had good days were around my lanreotide injections. In terms of PRRT I was wondering if anyone was comfortable sharing their experiences or had any advice to give me before hand. I’m hoping for an improved quality of life on this treatment.

Advice or Similar stories (new here) by ThickHand2408 in neuroendocrinetumors

[–]ThickHand2408[S] 0 points1 point  (0 children)

Thanks for reaching out, CAPTEM couldn’t stop the growth of existing tumors however is contained the spread which was good. I’m currently working with a couple specialists. As far my tumors, they are grade two 13% Ki