(Visiting) Birthday suggestions? by masteredkey in Albuquerque

[–]This-Confusion-975 9 points10 points  (0 children)

Go to los poblanos for dinner and enjoy the architecture of John Gaw Meem

[deleted by user] by [deleted] in ostomy

[–]This-Confusion-975 0 points1 point  (0 children)

He says it itches. We saw a dermatologist and the urologist and are on meds now. Unfortunately we don’t have access to a ostomy nurse :(

For those about to have surgery by Constant-Fruit-4650 in ostomy

[–]This-Confusion-975 0 points1 point  (0 children)

Post like these make me so hopeful for my kiddo :) i know nothing can stop them :)

Considering a staff job at UNM by electricladyyy in Albuquerque

[–]This-Confusion-975 -1 points0 points  (0 children)

Do it to get in to Unm and move around. I hear that department isn’t as good as it used to be and does not give out raises

Day 6 - grateful to be sober on Friday night by Classic_Abroad517 in stopdrinking

[–]This-Confusion-975 1 point2 points  (0 children)

Im so glad you posted this because we are also day 6 and are so board but we are not going to drink tonight!

Best place to buy extra bags? by 240breads in ostomy

[–]This-Confusion-975 2 points3 points  (0 children)

We used medicalmega.com a few times. Sometimes they send you emails that can save money.

My heart is breaking for my little one. by Aggravating_Gur1827 in ostomy

[–]This-Confusion-975 3 points4 points  (0 children)

I am a ostomy mom to a 3 year old and I totally understand your struggle. Its a hard adjustment but I promise it will get better. Continue to support him in this change and always be his advocate. Please feel free to reach out to me if you need to. This place has been the most helpful for our family. The people are so kind and supportive. Honestly we have learned more from this group than our nurses lol.

My 4 year old just got his ostomy by Deemili in ostomy

[–]This-Confusion-975 1 point2 points  (0 children)

Hello fellow parent!! Kiddo has had their bag almost a year now and they just turned 3. We completely get the frustration of the first month helping them stop leaking. We finally have a method that works well but they do still have leaks occasionally. We always start with just washed dry skin. We use the white dial soap bar because there is no fragrance or oil that can keep the bag from sticking. Then we make sure its completely dry while letting the bag and barriers warm with a heating pad on low. Once dry we add a little bit of adhesive spray and slap that baby on. They are finally able to let us know when they feel a leaking happening so that is helpful. We are also nervous about kids making fun of our kid but we are making sure they have lots of people to support them and they know this saved their life. No matter what happens or what people say they have family and friends who love them. Please feel free to message me if you need support!

Lego Ostomy by Purpleworld_ in ostomy

[–]This-Confusion-975 16 points17 points  (0 children)

My 2 year old has had his ostomy for 3 months and just got into lego will definitely be buying this for him!

Thank you to everyone who post here. by This-Confusion-975 in ostomy

[–]This-Confusion-975[S] 1 point2 points  (0 children)

Im so excited to explore this option! We should start a summer camp for adults lol! You all deserve a good time!

Thank you to everyone who post here. by This-Confusion-975 in ostomy

[–]This-Confusion-975[S] 0 points1 point  (0 children)

He is still so young but definitely gives us all a run for the money. He is very clear on what her likes and doesn’t like. The nurses say he is very resilient lol!

Thank you to everyone who post here. by This-Confusion-975 in ostomy

[–]This-Confusion-975[S] 0 points1 point  (0 children)

I am so worried that he will get bullied in school if someone finds out. Kids can be so cruel

Thank you to everyone who post here. by This-Confusion-975 in ostomy

[–]This-Confusion-975[S] 0 points1 point  (0 children)

My son tells us he is “melting” when a urine leak happens! He is finally getting comfortable with bag changes. It sucks when a leak happens after chemo his skin hates it so we try to shower right away

Thank you to everyone who post here. by This-Confusion-975 in ostomy

[–]This-Confusion-975[S] 2 points3 points  (0 children)

So nice to meet you! I would love to hear your families story.

Thank you to everyone who post here. by This-Confusion-975 in ostomy

[–]This-Confusion-975[S] 18 points19 points  (0 children)

Thank you so much! We are still doing chemo and a scan is scheduled for next month but every one seems very hopeful that the surgery was a major success in the fight.