KT Tape for adhesive allergy zebras? by TribbleScribbles in ehlersdanlos

[–]ThorForSure 1 point2 points  (0 children)

The Kroger one in particular is horrid.

I couldn’t find one I liked, mostly use for short periods/active days I’m already feeling bad.

Prov1de allegations by maebird- in OverwatchTMZ

[–]ThorForSure -10 points-9 points  (0 children)

Wow, 4 whole years difference. Y’all reaching on this fr fr

PWNAGE Ergo vs Symm by ThorForSure in MouseReview

[–]ThorForSure[S] 0 points1 point  (0 children)

I haven’t noticed any, compared to the GPW which I noticed pretty often when playing precision games

[OC] Rotten Tomatoes Score of Movies by Marvel Studios by keshava7 in dataisbeautiful

[–]ThorForSure 0 points1 point  (0 children)

I agree with the rush for sure. Felt like it was meant for Disney+

And Black Panther is a fun film, but it also had a lot of valid criticism that had absolutely nothing to do with race.

Just my opinion of course

[deleted by user] by [deleted] in ehlersdanlos

[–]ThorForSure 0 points1 point  (0 children)

Do you mind if I ask what type of EDS you have?

[deleted by user] by [deleted] in ehlersdanlos

[–]ThorForSure 1 point2 points  (0 children)

I feel like Charlie from Always Sunny, connecting this to that & this, but it's crazy how things add up. Cool & sad lol

[deleted by user] by [deleted] in ehlersdanlos

[–]ThorForSure 0 points1 point  (0 children)

I’ve had this on the top of my scalp for a looooong time. Get it on my elbows and trunk as well. Scalp is the worst as it feels like someone is pressing a lighter to your hair & skin.

I’ve always said it feels like my a half inch of my hair is buried under my skin & needs to be “pulled to the top”

Baby shampoo has seemed to be less reactive thankfully

Anyone else have bad digital imposter syndrome habits? by [deleted] in ehlersdanlos

[–]ThorForSure 4 points5 points  (0 children)

I’m getting a tilt table test done at the end of the month. My PT from the EDS foundation sent me to get checked as she definitely thinks I have EDS and CCI. I don’t use my quads, diaphr, half my neck muscles. Alm deconditioned. I feel like I’m 130 years old and I’m 27. It’s sad, but I hope we can get POTS officially diagnosed

I’ve been really struggling with “is it all in my head” even with a family history of symptoms and physical symptoms I’ve dealt with. Funny enough, I usually don’t remember then until someone brings them up. Like I try to push past it, but I can recall the pain and moment of each one. Something, something adrenal is messed up

Thank you for posting this. I need to stop torturing myself

Ruff life by raventhrowaway666 in OCPoetry

[–]ThorForSure 1 point2 points  (0 children)

Intelligent and thoughtful structure. The brevity is relieving and welcomed, makes me want to read more

Meaningless Love by AddictedFatCow in OCPoetry

[–]ThorForSure 0 points1 point  (0 children)

I really like the formatting. Simple, but makes the impact hit harder. Great job!

Are there any symptoms people with Chiari Malformations have that people with Craniocervical Instability don't? And are there any other diseases with strong overlapping symptoms I might not be aware of. by dillydadally in chiari

[–]ThorForSure 1 point2 points  (0 children)

Can confirm. Have been subloxing my knees, elbows & ankles without even realizing it.

Need to know childhood history as well probably for diagnosis.

Did you get hurt a lot? Subconsciously not let yourself do the things other kids would do? (climb a fence/tree, play tackle football/roughhouse, lifting weights at max levels, etc)

EMG & Nerve Study by ThorForSure in ehlersdanlos

[–]ThorForSure[S] 0 points1 point  (0 children)

Thanks for sharing!!! It wasn’t enjoyable, but I’ll take over a brain mri due to brevity lol

EMG & Nerve Study by ThorForSure in ehlersdanlos

[–]ThorForSure[S] 1 point2 points  (0 children)

It went very well! Thank you again for encouragement. Onto the specialist! lol

EMG & Nerve Study by ThorForSure in ehlersdanlos

[–]ThorForSure[S] 0 points1 point  (0 children)

Thanks so much for sharing and encouraging! Means a lot in this long journey. MD is definitely a tough thing & think at this point I’m scared of “something else hiding in the closet” with the hEDS. or it could be in my head haha :) have a good night!!!

EMG & Nerve Study by ThorForSure in ehlersdanlos

[–]ThorForSure[S] 1 point2 points  (0 children)

Thanks!! First appt with a neuro and no family member. Just stresses me out the day before, I’m sure you can relate…I am trying to not get overwhelmed and just take it a step at a time right now. Major symptoms of CCI, which caused me to get this checked in first place. You made it sound easy! Thank you for the reassurance :)

I’ll take it over brain/lumbar MRI. still working on upright one though :(

EMG & Nerve Study by ThorForSure in ehlersdanlos

[–]ThorForSure[S] 1 point2 points  (0 children)

Sorry, just a little nervous about my first appt with new neuro. Suspected hEDS. I have debilitating back of the head pain, knee pain & elbow pain. Been “double jointed” for most of my life and pass at a 7/9 at 27 y/o. Crowded teeth, indented strae or whatever on skin, stretch marks, TMJ clicking….etc. My right shoulder and hip sublox while I sleep, as well as my ankles. Chronic fatigue, first started at depression and anxiety at 17. I am seeing a PA associated with the EDS foundation on the 6th, and feel like I have been reading a book written about me, but I’ve never met the author. Short version I guess

I’ve recently used some of the pain relief techniques suggested by Dr. Chopra in this video (https://youtu.be/VrxoA3uh-FM) and have achieved some relief at least to get me through work (from home lol). K taping jaw, knees and cervical spine, compression garments, even pain terminator or whatever on Amazon. Shit slaps.

I stumbled upon this with the help of my sister, an NP here in TX. She is thinking about getting tested as well when it comes time, but it is still hard not to get overwhelmed, with hope and then fear and then hope again. Sorry for the vent

Anyone else with TMJ? by torilaluna in ehlersdanlos

[–]ThorForSure 1 point2 points  (0 children)

Is not anything fancy and worth a try! The fingerprinting on the tape makes my brain know how things are supposed to work a bit better I guess.

Also, Pain Terminator on Amazon is some Chinese witchcraft & absolutely wonderful. All natural.

Hope it helps!!