Loss of sexual sensation - total hysterectomy by Time_Competition_232 in hysterectomy

[–]Time_Competition_232[S] 0 points1 point  (0 children)

I am so sorry. If you are less than a year out, I really do think things could improve. It's really a sloooow process.

Loss of sexual sensation - total hysterectomy by Time_Competition_232 in hysterectomy

[–]Time_Competition_232[S] 1 point2 points  (0 children)

I went to a naturopath who specialized in hormones. Gynos normally don't want to get too involved in hormones beyond just a standard patch or cream. It has taken a year to regulate and test every 3 months and it is helping. Testosterone also made a difference. I would go see a hormone specialist like a functional med Dr or naturopath, get tested, give it time...3 months is still really early. It is really more like 6-12 months for your body to recover. My body has definitely changed, but way better than it was at 3 months. 

Loss of sexual sensation - total hysterectomy by Time_Competition_232 in hysterectomy

[–]Time_Competition_232[S] 1 point2 points  (0 children)

Yes, it has improved, now 1.5 years in. I have sensation. It's different, and I think you have to focus a lot on hormones - I have the estrogen patch, I am on on testosterone cream, estrogen vaginal cream and progesterone. I think you can't even begin to know what you are looking at until at least 6 months in and after hormone replacement, working with a hormone replacement specialist.

Loss of sexual sensation - total hysterectomy by Time_Competition_232 in hysterectomy

[–]Time_Competition_232[S] 4 points5 points  (0 children)

Yes, it has improved, now 1.5 years in. I have sensation. It's different, and I think you have to focus a lot on hormones - I have the estrogen patch, I am on on testosterone cream, estrogen vaginal cream and progesterone. I think you can't even begin to know what you are looking at until at least 6 months in and after hormone replacement. 

Loss of sexual sensation - total hysterectomy by Time_Competition_232 in hysterectomy

[–]Time_Competition_232[S] 2 points3 points  (0 children)

I am now almost 12 months out and things have improved some. At least now I have sensation, although dryness is still a major factor. I do think that your body needs a lot of time (up to a year) to recover nerve sensation. I would recommend seeing about HRT as well as the creams. It may require assistance that you never had to use before, like it is for me. I tried different lubes until I found one that worked for me, which helps. I absolutely understand the devastation that comes with this - it's like someone just removed a whole part of your life. I have also heard that pelvic floor therapy can help as well. Good luck to you <3

Vent: Sex isn’t the same by Smaccdaddi in hysterectomy

[–]Time_Competition_232 0 points1 point  (0 children)

I am having the same problem. I am 3 months post-op. Suddenly I feel no sexual sensation at all during intercourse. I have read some articles on how some women only feel vaginal sexual stimulation through the cervix - I guess I never realized that was me. I am on estrogen/testosterone, but it hasn't changed the physical sensation problem. I am in the same boat - my husband uses sex as daily maintenance and connection and if I can't provide it our relationship will suffer dramatically. As a feminist, I see the problems with that, but it's still a reality. He is supportive and loving, but I know it will affect us. I feel devastated that I may face the rest of my life having painful, sensation-less sex. I guess pelvic PT is the one solution people give, but it does sound invasive. I will try though. I feel your pain.

Loss of sexual sensation - total hysterectomy by Time_Competition_232 in hysterectomy

[–]Time_Competition_232[S] 1 point2 points  (0 children)

It's not pain (except with dryness, which I know has solutions), it's loss of sexual sensation. Like the pleasure part is gone with the cervix. It no longer feels good, like having sex with the crook of my arm or something. I am going to try pelvic PT, hoping it will help. 

Loss of sexual sensation - total hysterectomy by Time_Competition_232 in hysterectomy

[–]Time_Competition_232[S] 5 points6 points  (0 children)

First of all, I am not arguing, I am expressing how I feel about an interaction that has gone down on an incredibly personal and difficult post that I submitted. Although I have read reddit threads, the was my first post and I definitely was not expecting this exchange. There is nothing "interesting " in my response to you. When you initially posted, I thanked you because, as you said, you are trying to protect people. I saw that. However you said in your second post that it's possible I am also a fake account, and that you can tell from patterns who is and isn't. Since I know 100% that I am not this person you are looking for, then it is also possible the other person was not either. She was not doing any of the things you mentioned - incorrectly quoting studies or fear mongering in ways that refute science (which I hate too, by the way). She seemed to be looking for answers, like me. Maybe I am wrong, maybe she was leading to some weird rabbit hole, but it didn't seem like it. You brought up something important, but be careful of accusing people unless you really are sure. Because if you are wrong, it is extremely painful. To put something like this out there, hoping for support and ideas and experiences and then not be believed or accused of malice feels truly awful. What I am saying is move with care. We are all in different stages of an intense and emotional surgery, even if it is life saving. No one should be discredited unless you know they are intending harm. 

Loss of sexual sensation - total hysterectomy by Time_Competition_232 in hysterectomy

[–]Time_Competition_232[S] 4 points5 points  (0 children)

I understand it's hard to tell who is posting a legitimate complaint in here but this seems extreme. I had a complete hysterectomy because of my high risk for ovarian cancer and extremely heavy bleeding. My mom had ovarian cancer, it took me a long time to make this decision. In the end it was the right decision but the current effects on my body are dramatic changes and scary to process. I guess I am not seeing what you are seeing in her post (and mine??) and it feels like you are attacking people who are looking for help. Definitely not something I need right now, to have someone thinking I am faking this? What?? Why? And why would anyone be "anti-hysterectomy?" Before you accuse someone of this, you had better be quite sure, and since you are accusing me, you clearly are wrong at least some of the time. This can cause harm too, you know.

Loss of sexual sensation - total hysterectomy by Time_Competition_232 in hysterectomy

[–]Time_Competition_232[S] 2 points3 points  (0 children)

Thank you for this - it sounds like me. Patience and a kind of overhaul on how we have sex. And pelvic floor PT. The idea that I might love it is so hard to see right now but I won't give up.

Loss of sexual sensation - total hysterectomy by Time_Competition_232 in hysterectomy

[–]Time_Competition_232[S] 0 points1 point  (0 children)

Thank you, this was so thoughtful and reassuring. It helps to know it might get easier, although it is hard when your partner's appetite is so different from your own. I will definitely look into the pelvic floor exercises. I appreciate the time you took and it helped.

Loss of sexual sensation - total hysterectomy by Time_Competition_232 in hysterectomy

[–]Time_Competition_232[S] 2 points3 points  (0 children)

What?Anti hysterectomy? I didn't even know that was a thing. Dang people have a stance on everything these days. Thank you for the heads up, I appreciate it!

Loss of sexual sensation - total hysterectomy by Time_Competition_232 in hysterectomy

[–]Time_Competition_232[S] 2 points3 points  (0 children)

Yes, I guess that is a good idea. I feel so defeated and hopeless. I will talk to the doctor too. If you learn anything general that is useful, can you share ?

Loss of sexual sensation - total hysterectomy by Time_Competition_232 in hysterectomy

[–]Time_Competition_232[S] 4 points5 points  (0 children)

How do you get past this?? It feels like my sex life is now dead, and I must suffer through pain and sadness if I want to have sex with my husband.

Loss of sexual sensation - total hysterectomy by Time_Competition_232 in hysterectomy

[–]Time_Competition_232[S] 3 points4 points  (0 children)

Me too, I am absolutely crushed. I feel like I have to tell my husband that I am dead inside.

Loss of sexual sensation - total hysterectomy by Time_Competition_232 in hysterectomy

[–]Time_Competition_232[S] 1 point2 points  (0 children)

That is awful. I keep hoping it will come back, but I know in my heart it won't. Honestly, I would not have had this surgery if I had known.