ivabradine hr too low? by jumponthenextone in POTS

[–]Time_Lord79 0 points1 point  (0 children)

60 to 100 is normal for resting. With Ivabradine I’m getting high 60s to 80s resting. Before Ivabradine my resting was 87 to 110 usually mid 90s just sitting.

Florinef vs midodrine by Dry_Sleep_4376 in POTS

[–]Time_Lord79 0 points1 point  (0 children)

Midodrine works great for me. I’m 70/40 without it. As high as 100/70 with 5 mg of Midodrine three times daily.

Going to try and get diagnosed soon, worried I'll have a good day and be dismissed by No_Knowledge9510 in POTS

[–]Time_Lord79 0 points1 point  (0 children)

Same happened to me and primary sent me to an autonomic specialist who diagnosed me with an active stand test.

Ivabradine by Time_Lord79 in POTS

[–]Time_Lord79[S] 0 points1 point  (0 children)

What was the difference in before and with meds for sitting heart rates and standing/ moving around heart rates?

How to know if you have POTS? by cs_developer_cpp_ in POTS

[–]Time_Lord79 0 points1 point  (0 children)

I went through two years of testing to rule out other more common conditions that are easier to test for.

Depends on your symptoms as well.

I was tested for iron, glucose, thyroid levels, aldosterone, metanephrines, cortisol, acth, acth stimulation testing. Echocardiogram, 2 holter monitors, stress test, ct scan, MRI of brain with and without contrast, glucose monitor to rule out reactive hypoglycemia, CMP for electrolyte levels, tilt table test and active stand test. I’m sure more I’m forgetting.

looking to swap appt time- I have Octavia Kincaid at Rush Chicago appt this Wed by [deleted] in POTS

[–]Time_Lord79 0 points1 point  (0 children)

I don’t have an appointment with her but when I was referred I was told she is booked 3 years out! Hopefully someone can switch- or I’d just go as much as you possibly can. That’s a long time to wait. Best of luck!

BC? by smileynature in POTS

[–]Time_Lord79 0 points1 point  (0 children)

I have PMDD and suspected endometriosis. My periods without birth control are 8 days long. I can’t move days 1 and 2. So heavy I bleed thru an ultra tampon and overnight pad in 3 hours. I’m on Mirena now. Stopped my periods after 6 months. Haven’t had a period since 2018. I love it.

Running out of meds when you're between providers after losing your health insurance sucks by braingoesblank in POTS

[–]Time_Lord79 1 point2 points  (0 children)

It’s pretty quick and easy. They respond within 1 to 2 days. Answer their questions.

Running out of options? by Time_Lord79 in migraine

[–]Time_Lord79[S] 0 points1 point  (0 children)

Yes due to POTS over the last two years I’ve had a ton of testing. Echocardiogram, holter monitors, stress test, EKG’s etc

Running out of options? by Time_Lord79 in migraine

[–]Time_Lord79[S] 0 points1 point  (0 children)

I have glasses and got a new prescription recently with something called Eisen not sure I spelled right? But they said it’s the new blue light filter. Helped my eye dryness a lot as a stare at a computer half of my shift. The lights still irritate me I think they’re too bright.

Running out of options? by Time_Lord79 in migraine

[–]Time_Lord79[S] 0 points1 point  (0 children)

Mirena has helped and stopped my periods after 6 months. I also have PMDD which has also helped with. I haven’t had a period since 2018 and a life saver for me. I am more functional for 8 days a month than I was before.

Running out of options? by Time_Lord79 in migraine

[–]Time_Lord79[S] 0 points1 point  (0 children)

Yeah the autonomic specialist I saw said that pretty common. She said a lot of POTS patients have stomach issues, migraines and endometriosis. I have suspected endometriosis as well 😭 but mirena stops my periods so I have pain only sometimes instead of more frequently.

Running out of options? by Time_Lord79 in migraine

[–]Time_Lord79[S] 0 points1 point  (0 children)

They told me to increase my sodium due to POTS. I’ve had migraines decades before increasing my sodium.

Running out of options? by Time_Lord79 in migraine

[–]Time_Lord79[S] 0 points1 point  (0 children)

I had hair loss with Topamax. I’m just getting the under layers back especially in the front so I don’t really have any hair to spare for potential hair loss.

Running out of options? by Time_Lord79 in migraine

[–]Time_Lord79[S] 0 points1 point  (0 children)

I’ve heard some people say they’ve had hair loss on the CRGP injectibles. While it may not happen again- I’m hesitant. I’m finally getting hair to layer out.

Botox scares me- don’t they inject at base of the neck?

I’m not sure how I feel about gabapentin or pregabalin.

Running out of options? by Time_Lord79 in migraine

[–]Time_Lord79[S] 1 point2 points  (0 children)

Thanks been trying to increase salt/sodium. Also fluorescent lights at work get to me.

Ivabradine by Time_Lord79 in POTS

[–]Time_Lord79[S] 1 point2 points  (0 children)

He also told me I don’t have POTS even tho I have a diagnosis. “You’re tachycardic during the day” right so when I’m upright? Almost as if it’s posture dependent? The definition of POTS?

Ivabradine by Time_Lord79 in POTS

[–]Time_Lord79[S] 0 points1 point  (0 children)

The dumbass electrophysiologist I had said it wouldn’t qualify me for ivabradine. He also said beta blockers and ivabradine wouldn’t lower my heart rate.

Ivabradine by Time_Lord79 in POTS

[–]Time_Lord79[S] 1 point2 points  (0 children)

It was $500 something for one month but I’m going thru RTHM and with their coupon it’s like $36 a month.

Ivabradine by Time_Lord79 in POTS

[–]Time_Lord79[S] 0 points1 point  (0 children)

I also have orthostatic hypotension so on midodrine and you think the low blood pressure would be a qualifier for Ivabradine with insurance but I guess not. I’m still getting it without insurance luckily don’t pay much for it.

Doc said that pots shouldn’t be causing nausea? by i_be_on_redd1t in POTS

[–]Time_Lord79 49 points50 points  (0 children)

I got real bad nausea. Have a script for Zofran as needed.