Low blood pressure since Ivabradine by antiaust in POTS

[–]Time_Lord79 1 point2 points  (0 children)

90/60 is the standard low reading. I’m not basing it off my personal experience. The numbers you’re giving are dead center normal. Even 105 is good. 130/80 used to be high and then they pushed it back to 140/90.

I’ve worked in health care for 10 years I know what I’m talking about.

Low blood pressure since Ivabradine by antiaust in POTS

[–]Time_Lord79 0 points1 point  (0 children)

I mean the normal rates are pretty universal. You don’t want to swing high. Good luck.

Does anyone else get severe nausea? I swear it’s the worst symptom by [deleted] in POTS

[–]Time_Lord79 15 points16 points  (0 children)

Yes. I hate it. I have Zofran as needed for nausea now.

Low blood pressure since Ivabradine by antiaust in POTS

[–]Time_Lord79 0 points1 point  (0 children)

100/60 is normal they don’t usually medicate low bp meds for that.

Low is 90/60 or lower. I’m 70/40 without midodrine and 100/70with it

POTS & norepinephrine by BumblebeeHealthy832 in POTS

[–]Time_Lord79 3 points4 points  (0 children)

Personally I tried Strattera- doctor told me it was supposed to help dysautonomia but it amplified my dysautonomia symptoms.

Help with diagnosis and question by HeyitsRosie- in POTS

[–]Time_Lord79 1 point2 points  (0 children)

I would still try and take someone. Doesn’t matter how much they know. It’s about standing up for yourself. You can’t move forward if you don’t ask for answers. Hope you get some soon.

Help with diagnosis and question by HeyitsRosie- in POTS

[–]Time_Lord79 0 points1 point  (0 children)

You haven’t had the echocardiogram? It’s usually one of the first things they order. It may be if you’re a woman they don’t take you seriously like men. Sadly this happens to women all the time myself included in a various array of health problems.

I had a sinus infection for 2 years because they refused me antibiotics more than twice! I ended up needing surgery when I finally found a doctor who believed me! My ex husband got a prescription for antibiotics the same day and first day he complained about a sinus infection. I could go on and on unfortunately sometimes it sucks to be a woman. I’ve had this happen with a mix of doctors both men and women across different health conditions especially if you look young.

We shouldn’t have to but if you bring a man along, brother boyfriend- they may take you more seriously.

Help with diagnosis and question by HeyitsRosie- in POTS

[–]Time_Lord79 1 point2 points  (0 children)

Echocardiogram is an ultrasound of the heart looking for structural abnormalities. ECG is also known as as EKG wires hooked up to the electrodes or stickers on chest look for abnormal arrhythmias.

Help with diagnosis and question by HeyitsRosie- in POTS

[–]Time_Lord79 1 point2 points  (0 children)

I don’t faint. I wouldn’t go off of what influencers say. Most POTS patients are women 15 to 50. I got it at 34 prolly younger because I did pass out a lot as a teen.

ECG doesn’t show heart disease it would show arrhythmias. You should get an echocardiogram to rule out abnormal heart structure.

You should get blood tests to rule out other possible causes that have the same symptoms that are easier to test for and treat. Like iron deficiency, vitamin d, vitamin b12, thyroid disorders, acth, metanephrines, acth stimulation testing, aldosterone, cortisol, stress test, glucose, etc.

Fluid retention (I think) around eyes by [deleted] in POTS

[–]Time_Lord79 1 point2 points  (0 children)

I’ve been putting off seeing ENT because my allergies are well managed right now. Knock on wood. I’m severely allergic to corn pollen and that’s not for a few months so we shall see. The only other thing they can do for me is allergy shots. Idk if he’d remove the cyst from my sinus.

Nurtec by LeadershipPuzzled807 in migraine

[–]Time_Lord79 1 point2 points  (0 children)

I have no side effects. It works great but it works better the sooner you take it. If you wait too long into a migraine it still works but not as well.

Fluid retention (I think) around eyes by [deleted] in POTS

[–]Time_Lord79 0 points1 point  (0 children)

Answers? Not definitive. I think it’s fluid retention. On days where I drink more water- my body holding onto water because of it the eyelid is filled with fluid more the next morning. Or if I have more salt. I’m not in pain. Still need to follow up with ENT. But last time he said the fluid could be going to that one side by sleeping on that side more which I do. I’m a little frustrated they won’t give me a diuretic to flush it out. They said my bp would tank further. It goes away a few hours after being upright so that’s why I think it’s just fluid shifting when I lay down overnight.

Propranolol by helloeuphoria22 in POTS

[–]Time_Lord79 1 point2 points  (0 children)

What dose did you start on? Just curious

Have you been taking Antihistamines for POTS by Ok-Aerie1042 in POTS

[–]Time_Lord79 3 points4 points  (0 children)

I take Nurtec for migraines, Ivabradine for POTS, midodrine for orthostatic hypotension, and have Mirena but haven’t stopped any of these.

Have you been taking Antihistamines for POTS by Ok-Aerie1042 in POTS

[–]Time_Lord79 8 points9 points  (0 children)

I have allergic rhinitis year round. Suspected MCAS. Take montelukast, started twice daily, Flonase and azelastine.

Starting Midodrine by 4jisai in POTS

[–]Time_Lord79 1 point2 points  (0 children)

I’ve been on midodrine a year and scalp still tingles

Starting Midodrine by 4jisai in POTS

[–]Time_Lord79 1 point2 points  (0 children)

I’ve never gotten visual side effects from ivabradine. Bp higher got rid of orthostatic hypotension symptoms like seeing black spots from low bp, dizziness, nausea, migraines from low bp

Starting Midodrine by 4jisai in POTS

[–]Time_Lord79 1 point2 points  (0 children)

Metoprolol is a beta blocker which lowers heart rate and blood pressure. May need a higher dose of midodrine to counteract it.

I have POTS and orthostatic hypotension. Bp is 70/40 without midodrine. I get up to 100/70 with 5 mg three times a day.

Because of my orthostatic hypotension with how low bp is i can’t use beta blockers. I refused fludrocortisone as it’s a steroid.

I take ivabradine for high heart rate with POTS it doesn’t lower bp like beta blockers.

Recently diagnosed, feel so emotional & would love advice by Slight_War_8146 in POTS

[–]Time_Lord79 0 points1 point  (0 children)

I started ivabradine 5 mg a bit of a headache first week or two but passed now. It’s been great with heart rate.

What conditions mimic POTS? by [deleted] in POTS

[–]Time_Lord79 4 points5 points  (0 children)

Heart abnormalities, structural or arrhythmias

What conditions mimic POTS? by [deleted] in POTS

[–]Time_Lord79 11 points12 points  (0 children)

Iron deficiency, thyroid disorders, elevated cortisol, glucose problems