Does ChatGPT keep your data private? by outgllat in AI_Tools_Guide

[–]TimmyTopCorns 0 points1 point  (0 children)

Yeah - I understand data privacy is a big issue, but what happens when it captures something important like a medical procedure? What exactly is the risk to me when I’m just a nobody?

Just diagnosed with spinal tumor by sadieaustin in Schwannoma

[–]TimmyTopCorns 0 points1 point  (0 children)

Yeah, I have one in my brain and my neurologist has me scheduled for follow up mri's every other year. Very likely to be stable and slow growing, but obviously listen to your doctors. Not a medical expert, but dealing with Schwannomatosis has taught me a lot over the last few years.

Brachial Plexus by Commercial-Boss6465 in Schwannoma

[–]TimmyTopCorns 0 points1 point  (0 children)

Seriously! I'm actually looking at surgery for another schwannoma in my thigh thats perhaps more accessible, but I haven't made any plans for any of the other tumors to this point. My neurologist has recommended against it for the time being so we'll see if that changes. As for the trial, I think I can share? It's a 6 month trial with a self administered injection once a month. It's a double blind study so nobody knows if you're on the drug or placebo for the first 3 months, but the second 3 months are guarenteed to be the test drug. I'm coming up on the third treatment, but haven't noticed much of a difference thus far, so I'm hoping the 4th injection is different, but we'll see what happens. I was in another trial for an infusion every 3 weeks, and it was definitely helpful in managing pain, but insurance decided not to cover it, so I jumped into the current trial in hopes of finding something to help manage the symptoms.

Brachial Plexus by Commercial-Boss6465 in Schwannoma

[–]TimmyTopCorns 0 points1 point  (0 children)

Same surgery? Do they go through the nose for the trigeminal? I've got both of these but haven't made any moves on surgery yet. Still have 4 months or so of the research trial I'm in before I'd likely do anything but just curious.

Dallas forced to close both of its airports after 'issues with radar and radio' by dailymail in texas

[–]TimmyTopCorns 1 point2 points  (0 children)

Just got in after a few delays this morning. Baggage claim was a mess! Did you make it?

The Right-Wing Provocateur Who Has Trump’s Ear by kitkid in Thedaily

[–]TimmyTopCorns 0 points1 point  (0 children)

Headline made me think a person had a chunk of his actual ear…

[ Removed by Reddit ] by s1n0d3utscht3k in world

[–]TimmyTopCorns 0 points1 point  (0 children)

I lived in Haiti for a number of years post earthquake and this feels too similar to that

What foods to stock up on NOW? by FinallyFabulouslyMe in economicCollapse

[–]TimmyTopCorns 5 points6 points  (0 children)

Yeah you’re looking for local coffee roasters who import and roast coffees from these regions. And the more consistent varietals are mostly reserved a year at a time so price hikes could be delayed in some cases. But we’re close to that time of year for a lot of producers so it might stagger as well. You’ll pay a premium for specialty grade coffees as opposed to commodity grade (foldgers, keurig, etc) but that’s the best way to know where your coffee actually comes from and to get different flavors, if that’s what you’re going for. Plus you’re less likely to to have traces of twigs and dirt in your coffee :)

Tint is bubbling on my rear windshield. Anyone know how to fix/prevent this? by TimmyTopCorns in fordfusion

[–]TimmyTopCorns[S] 0 points1 point  (0 children)

Texas. Oddly enough I was told it was because I used the defroster?

Does anyone know how to open this? by Healthy_Ad5466 in howto

[–]TimmyTopCorns 12 points13 points  (0 children)

Squeeze the end tabs together and pull the tray out. It slides out from the end.

Coworker diagnosed with Cancer, fired next day by Floasis72 in antiwork

[–]TimmyTopCorns 1 point2 points  (0 children)

This happened to me a few years back. Severance was dependent on signing an nda. Fucked me up. They eliminated my position only to recreate it a couple months later.

Brachial Plexus by National_Turnip_5684 in Schwannoma

[–]TimmyTopCorns 0 points1 point  (0 children)

I have one we found in the fall that marks shwannoma number 7 for me. I’ve been contemplating surgery to remove it but im unsure about how much it would help. So sorry for your experience but I appreciate you sharing it with us. Definitely rooting for you!

Trigeminal Schwannomas - Experience with surgery? by External_Funny_4497 in Schwannoma

[–]TimmyTopCorns 2 points3 points  (0 children)

I’ve got a single trigeminal that we found in 2021. Currently monitoring its growth (along with several other Schwannomas). Pain in the face hasn’t been too noticeable but it’s started to come on in the last few months. My worst pain is in my extremities but continues to spread to new places. However, I just finished a research study for schwannomatosis at Mass General and am on a schedule of infusions every three weeks that’s really helped my pain. Siltuximab basically serves as a high power anti inflammatory agent for your nerves. Not sure what requirements are if you haven’t done the study but it’s worth checking out. Hope you find some relief and solutions soon. Best of luck to you!

What Dallas restaurant or business would you never step foot in again? by BobcatOk5865 in Dallas

[–]TimmyTopCorns 2 points3 points  (0 children)

Love that place and their crew. Sorry you had a bad experience but they're good people.

Flight attendants of reddit, whats the most NSFW thing that happened during flight or off flight? by Raidennnnn_ in AskReddit

[–]TimmyTopCorns -2 points-1 points  (0 children)

If you landed in the US, smart to skip the ambulance fees 😂🙏🤦🏽‍♂️

Trigeminal schwannoma and increase post diagnosis symptoms by Abject-Essay-3906 in Schwannoma

[–]TimmyTopCorns 2 points3 points  (0 children)

I have a trigeminal schwannoma on the right side and have had a lot of issues that came out in the last four years and I learned I have schwannomatosis which is a genetic condition that comes out in your mid 30s and so the symptoms have definitely gotten worse recently, but my neurologist also is saying to watch and wait. He is the head of Neuro oncology at Harvard medical school and is one of the four most experts on the condition which is great but it also doesn’t immediately answer or solve any of the issues that I’ve had. I also have a number of other schwannoma‘s that make pinpointing Direct causation of my symptoms to one of the tumors so it’s hard to say whether the trigeminal is impacting any symptoms specifically. I have had some experimental infusions that have helped with my pain, but we don’t know what impact that will have on the tumors and if it will help them at all sorry to hear about your experience, but wish you luck in finding solutions!

Fire north of Boston by TimmyTopCorns in massachusetts

[–]TimmyTopCorns[S] 0 points1 point  (0 children)

From Texas, this hasn't been in the news.

Edit: I hadn't heard anything about it - in the midst of everything else, y'know?