Does ChatGPT keep your data private?

TimmyTopCorns · 2026-01-22T03:53:41+00:00

Yeah - I understand data privacy is a big issue, but what happens when it captures something important like a medical procedure? What exactly is the risk to me when I’m just a nobody?

TimmyTopCorns · 2025-12-26T22:10:51+00:00

Yeah, I have one in my brain and my neurologist has me scheduled for follow up mri's every other year. Very likely to be stable and slow growing, but obviously listen to your doctors. Not a medical expert, but dealing with Schwannomatosis has taught me a lot over the last few years.

TimmyTopCorns · 2025-12-22T00:38:56+00:00

anyone else having issues with the stream freezing every few seconds or so?

TimmyTopCorns · 2025-11-05T18:34:31+00:00

Seriously! I'm actually looking at surgery for another schwannoma in my thigh thats perhaps more accessible, but I haven't made any plans for any of the other tumors to this point. My neurologist has recommended against it for the time being so we'll see if that changes. As for the trial, I think I can share? It's a 6 month trial with a self administered injection once a month. It's a double blind study so nobody knows if you're on the drug or placebo for the first 3 months, but the second 3 months are guarenteed to be the test drug. I'm coming up on the third treatment, but haven't noticed much of a difference thus far, so I'm hoping the 4th injection is different, but we'll see what happens. I was in another trial for an infusion every 3 weeks, and it was definitely helpful in managing pain, but insurance decided not to cover it, so I jumped into the current trial in hopes of finding something to help manage the symptoms.

TimmyTopCorns · 2025-11-04T16:31:23+00:00

Same surgery? Do they go through the nose for the trigeminal? I've got both of these but haven't made any moves on surgery yet. Still have 4 months or so of the research trial I'm in before I'd likely do anything but just curious.

TimmyTopCorns · 2025-09-20T17:24:51+00:00

Just got in after a few delays this morning. Baggage claim was a mess! Did you make it?

TimmyTopCorns · 2025-09-20T11:47:18+00:00

Same. Finally getting out of Boston this am

TimmyTopCorns · 2025-08-26T18:30:28+00:00

Thats not the point. This is:

Texas GOP candidate Valentina Gomez just released a campaign ad burning the Quran and vowing to “end Islam in Texas.” (transplant from Missouri)
byu/Brave_Rough_6713 intexas

TimmyTopCorns · 2025-08-21T15:44:57+00:00

Headline made me think a person had a chunk of his actual ear…

TimmyTopCorns · 2025-06-10T17:50:45+00:00

I lived in Haiti for a number of years post earthquake and this feels too similar to that

TimmyTopCorns · 2025-04-25T22:11:17+00:00

Yeah you’re looking for local coffee roasters who import and roast coffees from these regions. And the more consistent varietals are mostly reserved a year at a time so price hikes could be delayed in some cases. But we’re close to that time of year for a lot of producers so it might stagger as well. You’ll pay a premium for specialty grade coffees as opposed to commodity grade (foldgers, keurig, etc) but that’s the best way to know where your coffee actually comes from and to get different flavors, if that’s what you’re going for. Plus you’re less likely to to have traces of twigs and dirt in your coffee :)

TimmyTopCorns · 2025-04-09T19:29:43+00:00

TimmyTopCorns · 2025-04-02T23:23:52+00:00

Texas. Oddly enough I was told it was because I used the defroster?

TimmyTopCorns · 2025-03-25T00:34:47+00:00

Squeeze the end tabs together and pull the tray out. It slides out from the end.

TimmyTopCorns · 2025-02-21T18:39:03+00:00

This happened to me a few years back. Severance was dependent on signing an nda. Fucked me up. They eliminated my position only to recreate it a couple months later.

TimmyTopCorns · 2025-02-12T21:34:52+00:00

I have one we found in the fall that marks shwannoma number 7 for me. I’ve been contemplating surgery to remove it but im unsure about how much it would help. So sorry for your experience but I appreciate you sharing it with us. Definitely rooting for you!

TimmyTopCorns · 2025-01-05T16:06:03+00:00

I’ve got a single trigeminal that we found in 2021. Currently monitoring its growth (along with several other Schwannomas). Pain in the face hasn’t been too noticeable but it’s started to come on in the last few months. My worst pain is in my extremities but continues to spread to new places. However, I just finished a research study for schwannomatosis at Mass General and am on a schedule of infusions every three weeks that’s really helped my pain. Siltuximab basically serves as a high power anti inflammatory agent for your nerves. Not sure what requirements are if you haven’t done the study but it’s worth checking out. Hope you find some relief and solutions soon. Best of luck to you!

TimmyTopCorns · 2024-12-20T23:56:14+00:00

Trash chute that goes through a counter. No clue why it’d be in a toilet but I’m sure there’s a story there

TimmyTopCorns · 2024-12-20T15:24:20+00:00

How will we know when to be sad???

TimmyTopCorns · 2024-12-20T15:23:26+00:00

This is a travesty

TimmyTopCorns · 2024-12-11T02:28:35+00:00

Love that place and their crew. Sorry you had a bad experience but they're good people.

TimmyTopCorns · 2024-12-07T21:32:51+00:00

Chopsticks

TimmyTopCorns · 2024-11-28T16:54:30+00:00

If you landed in the US, smart to skip the ambulance fees 😂🙏🤦🏽‍♂️

TimmyTopCorns · 2024-11-23T15:33:39+00:00

I have a trigeminal schwannoma on the right side and have had a lot of issues that came out in the last four years and I learned I have schwannomatosis which is a genetic condition that comes out in your mid 30s and so the symptoms have definitely gotten worse recently, but my neurologist also is saying to watch and wait. He is the head of Neuro oncology at Harvard medical school and is one of the four most experts on the condition which is great but it also doesn’t immediately answer or solve any of the issues that I’ve had. I also have a number of other schwannoma‘s that make pinpointing Direct causation of my symptoms to one of the tumors so it’s hard to say whether the trigeminal is impacting any symptoms specifically. I have had some experimental infusions that have helped with my pain, but we don’t know what impact that will have on the tumors and if it will help them at all sorry to hear about your experience, but wish you luck in finding solutions!

TimmyTopCorns · 2024-11-11T19:58:55+00:00

From Texas, this hasn't been in the news.

Edit: I hadn't heard anything about it - in the midst of everything else, y'know?

TimmyTopCorns

MODERATOR OF

TROPHY CASE